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by BUD2016
Sun Oct 08, 2017 11:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding if I should take Irinotecan and Cyramza
Replies: 7
Views: 449

Re: Deciding if I should take Irinotecan and Cyramza

Hi, My mom now started Irinotecan (folfiri) + Cyramza. Please see signature for history. She progressed unfortunately on Folfox + Avastin, Folfiri + Avastin and now they switched her to Folfiri + Cyramza. She is being scanned every 2 months (MRIs and CT with contrasts). Her decease is currently limi...
by BUD2016
Thu Sep 14, 2017 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom's journey is over
Replies: 31
Views: 2553

Re: My mom's journey is over

I am very sorry for your loss. You have been an exeptional caregiver to your mom and this is not easy. I wish you peace of mind. You have a true angel now watching over you.
by BUD2016
Thu Aug 24, 2017 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ramucirumab + folfiri
Replies: 4
Views: 953

Re: ramucirumab + folfiri

Hi Meatie,

how is your mom doing? Would very much appreciate it if you could share any thoughts/experience on ramucirumab + folfiri.

Thank you and best wishes.
by BUD2016
Fri Jun 09, 2017 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rang the bell today!
Replies: 14
Views: 1018

Re: Rang the bell today!

Wonderful news! So happy for you! Best wishes!
by BUD2016
Tue Jun 06, 2017 5:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ramucirumab + folfiri
Replies: 4
Views: 953

Re: ramucirumab + folfiri

Hi Meatie, Our onc has mentioned ramucirumab (Cyramza). I am planned to discuss more with him in the next days. My mom unfortunately progressed on Folfox + Avastin, so they are not able to do cyber knife at this stage. She only had 1 treatment of FOLFIRI + Avastin and second is tomorrow. We -rescan ...
by BUD2016
Mon Jun 05, 2017 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blockage
Replies: 89
Views: 10594

Re: Blockage

Grouseman, I am deeply sad for your loss. I always read your posts. You have been so helpful to share your knowledge with others. I am very sad that it went so fast and time was limited. I share your pain.
by BUD2016
Mon Jun 05, 2017 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spice Trial
Replies: 11
Views: 1086

Re: Spice Trial

I wish you greatest of success! You are so brave and an example to me and my mother. You are one of those people who will find a solution and will do well. Please keep us updated here. Your news are very important. We so wish you all the best!!!
by BUD2016
Sat May 13, 2017 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blockage
Replies: 89
Views: 10594

Re: Blockage

Dear GM, I wish your wife feels better soon and they find a solution to address her current set back. I have no advice, but you are a very kind person and you know a lot about this decease. You have given your advice to me and my mother on several topics here on the forum. And we are very grateful a...
by BUD2016
Mon May 01, 2017 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CYRAMZA/Ramucirumab with FOLFIRI vs. Avastin + 5FU?
Replies: 1
Views: 350

CYRAMZA/Ramucirumab with FOLFIRI vs. Avastin + 5FU?

Hi All, Cyramza has been approved in 2015 for mCRC patients failing the first line of treatment (FOLFOX + Avastin). In combination with FOLFIRI. In people KRAS mutant. We are not taking this route yet, just preparing for Plan B in case something comes up in the scans tomorrow. One must always be pre...
by BUD2016
Wed Apr 19, 2017 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA ELEVATED
Replies: 7
Views: 1073

Re: CEA ELEVATED

Dealing with elevated CEA right now. CEA at dx, before surgery, 4 weeks after surgery, before start of chemo and during chemo - fluctuates between 3,8 and 5,2. CA19-9 always 5 or 6, never higher March 1st CEA - 5,2 April 12th before 11th treatment - CEA 11,2 :shock: April 18th (6 days later) - CEA 6...
by BUD2016
Sun Apr 16, 2017 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Blood Counts and Spleen
Replies: 5
Views: 1144

Re: Low Blood Counts and Spleen

Hi Pita, good to hear from you and to read your update. My mom's platelets have been 73 before 9th treatment, 62 before 10th and 63 before 11th last week. They discontinued oxi after 9th due to severe reaction and she continues with 5 FU and Avastin. WBC remain stable at 4,07. We are facing a bit of...
by BUD2016
Fri Apr 14, 2017 3:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling scared about urgent pet scan
Replies: 17
Views: 2109

Re: Feeling scared about urgent pet scan

good luck sammer718 with your PET scan and hope all is well. My mom's CEA just hiked before 11th treatment, next week to be re-tested, so having a bit of a worrying Easter. We are trying not to worry until we have more information, but sometimes it is not that easy... Best wishes to you and everyone...
by BUD2016
Wed Apr 12, 2017 2:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CURED!
Replies: 42
Views: 4483

Re: CURED!

Congratulations, Diane! I have been following your posts and am very happy for you.
by BUD2016
Sat Apr 08, 2017 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on liver ablation
Replies: 3
Views: 609

Re: Question on liver ablation

Thank you very much for your feedback KElizabeth and Kandj. We are going to pursue ablation route due to her age and other health issues my mom has. She has CT scans with contrast every 4 treatments. Mets have been hardly visible, but still visible in early March CT scan and unchanged since November...
by BUD2016
Sun Apr 02, 2017 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on liver ablation
Replies: 3
Views: 609

Question on liver ablation

Hello all, I do not post much but read posts almost daily. Our journey continues (please see details in my updated signature). My mom will be evaluated for liver ablation(s). We have an appointment next week before her 11th treatment. One thing our onc already mentioned that potential challenges wit...

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