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by CRguy
Thu Apr 18, 2019 6:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Levsin (Hyoscyamine) for LARS
Replies: 1
Views: 69

Re: Levsin (Hyoscyamine) for LARS

bumping up here homie !!! no personal experience BUTT I seem to recall my B-I-L did have this or a similar med way back. He went thru a LOTTA stuff with his post-resection / take down issues ... I am seeing him this Easter weekend so I will try to massage the conversation ... THAT way Cheers and Har...
by CRguy
Wed Apr 17, 2019 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dexamethasone
Replies: 10
Views: 314

Re: Dexamethasone

Hi. My dad started chemo today. They gave him Dexamethasone 12mg pre med for 5fu. They say it's for nausea. They also gave zofran which is also nausea. Do you need dexamethasone? Nate Dex has a a nonspecific anti-emetic effect, given pro-actively with many chemos (= they don't know exactly HOW it p...
by CRguy
Mon Apr 15, 2019 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 552

Re: O/T - my furbaby has cancer....hard last weekend - UPDATED

In the past here, lohidoc and I exchanged PMs His Dad was a Vet. Marc said something to me I always knew myself BUTT have never forgotten " When you look into their eyes you cannot doubt that there is a real soul in there. " He was of course talking about animals, pets, furbuddies. There I...
by CRguy
Sat Apr 13, 2019 2:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 552

Re: O/T - my furbaby has cancer....hard last weekend

Try to enjoy these final moments with her Jaynee
and know you are doing the right thing.

Love Peace and Harmony
CRguy
by CRguy
Thu Apr 11, 2019 11:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does your Medtronic pump TICK?
Replies: 4
Views: 218

Re: Does your Medtronic pump TICK?

juliej wrote: I worry enough when I go through TSA since they know nothing about HAI pumps without an alarm going off as I'm walking through security! :shock:

Sent you a PM homie
Call me if you need to make bail money ... :shock: :shock: :shock:

:mrgreen:
Cheers
CRguy
by CRguy
Thu Apr 11, 2019 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 1292

Re: HAI pump criteria

I think we need more info about that trip to Palm Springs though... :mrgreen: :mrgreen: :mrgreen: Don't want to hijack a serious topic here .... BUTT all I recall is that it was a ... dark and stormy night all I recall is a red bikini and some kind of Bosch ... sorry it is all SO clouded in mystery...
by CRguy
Thu Apr 11, 2019 8:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 620

Re: Question about Xeloda scheduling/timing differences

behconsult wrote:Dr. Saab stated Europeans do better with it than Americans.

Which may .... have to do with folic acid supplementation of just about EVERYTHING in North America :twisted:
... leading to an increase in toxicities.

Best wishes
CRguy
by CRguy
Wed Apr 10, 2019 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe back pain
Replies: 12
Views: 1078

Re: Severe back pain

I agree with the Tx side effect issue and the bone marrow issue being possible causes of back pain BUTT don't stop searching for a cause and don't stay in pain. " Sometimes in life, pain is inevitable ... SUFFERING from it is NOT ! " - CRguy Another consideration is "posture" and...
by CRguy
Wed Apr 10, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 1292

Re: HAI pump criteria

Glad I could help homie !
I'm sure JJ will get me back for that :shock:

Best wishes
CR
by CRguy
Tue Apr 09, 2019 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 1292

Re: HAI pump criteria

I had to avoid contact sports (like volleyball), scuba diving, and hot tubs. I would think yoga would be fine, but it's always best to check with the docs first. Juliej Just gotta say ..... except for that one time in Palm Springs ... :oops: I have never really considered "hot tubbing" as...
by CRguy
Mon Apr 08, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 620

Re: Question about Xeloda scheduling/timing differences

The 1,800 mg twice daily dose was continuous, and only minor fatigue, some diarrhea and "urgency" while getting radiation. With the 2,000 - 2,500 mg given twice daily doses I had moderately severe hand foot syndrome and major fatigue ( started at 2,000, increased to 2,500 then back to 2,00...
by CRguy
Mon Apr 08, 2019 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 620

Re: Question about Xeloda scheduling/timing differences

Just as an FYI from 2007. with neoadjuvant chemoradiation I did 1800 mg twice daily ( 15 minutes after food ) with the morning dose 1 hour before radiation. Total 28 radiation treatments, 5 days per week over 6 weeks, Xeloda twice daily, 7 days per week over 6 weeks Adjuvant Xeloda post surgery : 2,...
by CRguy
Thu Apr 04, 2019 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2019 : In Memoriam
Replies: 6
Views: 3151

Re: 2019 : In Memoriam

With heartfelt grief, our new friend here Momserati
has started this memorial topic to honor her beloved husband

My husband has passed

Please accept my sincere condolences for your family's loss.

In Harmony
CRguy
by CRguy
Wed Apr 03, 2019 7:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Malaware adds or substracts cancerous nodes from scans
Replies: 4
Views: 326

Re: Malaware adds or substracts cancerous nodes from scans

Very scary proposition for sure ... BUTT this example is a white hat hacking to expose vulnerabilities Basically anything with a microchip and/or an IP address is potentially hackable. Yes JJ it is a sick world we live in sometimes BUTT .. that is exactly why we always need to be on guard and proact...

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