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by DAS43
Tue Jun 02, 2020 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

Was seen at NIH 5/27 and 5/28/20. The tumor is still growing it is almost at 1cm. The good news is that there continues to be no new matastises. The plan is for me.to go back in Sept and they will do test for surgery and I will meet with surgeon. I am not happy about waiting that long but with covid...
by DAS43
Wed Jan 29, 2020 7:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exciting immune system research
Replies: 9
Views: 1794

Re: Exciting immune system research

This sounds a lot like TIL research trial I had done at NIH. They just found a maker that may work better. I would think they could move to trying on humans pretty quickly since most of what they are doing has been done
by DAS43
Fri Sep 06, 2019 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

I was at NHI Wednesday and Thursday. Unfortunately I don't have great news it's not bad news but it's not great either it seems that the tumor that they are following has changed it still has the same dimensions .9 cm by .4 cm but instead of being a light gray smudge on the CT scan it is now startin...
by DAS43
Thu Mar 14, 2019 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

I can't believe it but it's TRUE. It's been 2 years since I received my cells!. My follow up was today and praise the lord everything remains the same. I will follow up in 6 months.
by DAS43
Sat Sep 29, 2018 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

Sleen wrote:Checking in to report that follow-up FOURTEEN was all good. I am still NED. :) :) :)
Next follow-up in six months.

Celine

Yay sleen great news
by DAS43
Sat Sep 29, 2018 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

I was at NIH on Thursday and receive some great news everything is the same. although they think the tumor in my lung may have once again shrank they definitely believe that it is fading. I was shocked when the doctor told me it was my 18th month since I received my TILs. wow how fast time goes by. ...
by DAS43
Wed Aug 08, 2018 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH trial update .. my T cells are growing!!
Replies: 20
Views: 5919

Re: NIH trail update .. my T cells are growing!!

Great news. I will be sending prayers your way. Grow cells! Grow!
by DAS43
Wed Jul 18, 2018 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have less than a year to live
Replies: 9
Views: 2729

Re: I have less than a year to live

Please consider a trial at NIH. I am a partial responder and sleen is NED. We both did the TIL trial there. U can find lots of information on here about it.
by DAS43
Thu Jun 14, 2018 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

3 month check up today at NIH. Yesterday I had ct scan and brain MRI. My scans have not changed, which is great news! I will be going back at the end of September.
by DAS43
Wed May 02, 2018 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

teri3 wrote:Going this Sunday May 6th to be admitted for my TIL harvest surgery, apheresis is scheduled for Friday 11. Then the wait begins! I'll update as I know more.
Teri


Sending prayers for a quick recovery and a successful outcome.
by DAS43
Fri Mar 16, 2018 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

Just returned home from my 3 Month check-up at NIH. good news nothing has changed. The tumors they are monitoring in my left lung has remain the same size although they still think it is fading. I will go again in 3 months which will be June for another CT scan and MRI brain scan. I asked while I wa...
by DAS43
Sat Feb 03, 2018 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

Great news Celine!
Have you heard any news/reports on number of successes with the trail? I believe more people would try it if they would publish some results.
by DAS43
Sun Dec 17, 2017 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: At Slight Crossroads and NCT01174121
Replies: 15
Views: 3109

Re: At Slight Crossroads and NCT01174121

Mypinkheaven Yes I went to NIH last week of Feb 2017. Received my cells 1st week of March. In August my tumor had shrunk 49%. I just had a follow up Thurs. My Tumor hasn't shank anymore but it isn't as bright as it was it looks like it was smudged. The great thing about this trial is that as li g as...
by DAS43
Sat Dec 16, 2017 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218346

Re: TIL Immunotherapy at NCI

NHMike The great thing about this trial is it doesn't matter what your cancer mutations are. What they do is remove a cancer cell find what tumor infiltrating lymphocytes live in that tumor and they design cells that will attack that tumor type. So genetic makeup of the tumor isn't really important ...

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