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by zephyr
Tue Oct 09, 2018 7:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 41
Views: 15599

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

So happy for you zephyr! Hope all does well and a speedy recovery. Which Dr. did your surgery? Dr. Kern did my right lung and Dr. Drewes did my left lung. Dr. Drewes was ill at the time of the first surgery so Dr. Kern took over. They are both beyond wonderful! Stevieb: if you don’t mind sharing, w...
by zephyr
Sun Oct 07, 2018 5:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 41
Views: 15599

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Happily, I’m part of the club. 11 mets removed, 8 in the right lung, 4 in the left.
by zephyr
Sun Oct 07, 2018 5:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 23
Views: 1650

Re: Robino1 has left us today at 6:40pm.

WHAT?!? WAIT...WHAT?!?!?!?

No, no, no, no, no...

She will be missed.

She
Is
Missed

RIP
by zephyr
Sat Oct 06, 2018 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 1662

Re: Question about necessity of CEA labwork

My gastroenterologist ordered a CEA after the colonoscopy but before the surgery, to establish a baseline, I guess. Then my oncologist ordered one after surgery. It’s not a good marker for me and I’m Stage IV so the rest of the story is probably irrelevant for your situation.
by zephyr
Sat Oct 06, 2018 12:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 3200

Re: I am so worried.

If given the choice, I would go to Mayo. But that’s just me.
by zephyr
Thu Oct 04, 2018 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 1934

Re: New diagnosis and scared

There are several Stage 3 and Stage 4 survivors on this forum. They are now NED and hanging around (I think) simply because they’re good people, trying to help others. Just sayin... There’s ALWAYS hope, always a chance. Treatments are developing amazingly fast. I was recently told by a research onco...
by zephyr
Thu Oct 04, 2018 5:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 3200

Re: I am so worried.

Don’t get ahead of the data unless you want a fast trip down the rabbit hole. This will be a long process and you’re going to burn out at the rate you’re going: this is a marathon not a sprint. I know it’s hard ... but try. And as someone else said, breathe.
by zephyr
Wed Oct 03, 2018 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?
Replies: 4
Views: 170

Re: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?

A couple more things I remembered ... A&D helped me protect the inflamed skin to keep the burning from getting worse. My aunt bought me these hemorrhoid ice packs and they also helped: https://www.amazon.com/gp/aw/d/B01E5NP354/ref=mp_s_a_1_3_a_it?ie=UTF8&qid=1538570109&sr=8-3&keyword...
by zephyr
Wed Oct 03, 2018 7:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?
Replies: 4
Views: 170

Re: Diltiazem hydrochloride 2% cream or Lidocaine for fissure?

Oh boy do I remember THAT episode. You feel like you’re passing broken shards of glass. My husband could hear me cry out from the other side of the house. Ok, it’s a small house, but still. My GI doc gave me the Diltiazem (let’s just call it D cream ok?). It did not help me. Then I had a follow up w...
by zephyr
Wed Oct 03, 2018 6:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back pain?
Replies: 4
Views: 491

Re: Back pain?

Is he getting a Neulasta shot when the pump comes off? I did, in fact I'm still using it due to low WBC as a result of massive amounts of antibiotics I'm taking, and it makes my back and thighs hurt like mad for a few days. To the point I can't sleep. hiker Ask your onc about taking 2 Aleve and 1 C...
by zephyr
Sun Sep 30, 2018 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lung nodules
Replies: 11
Views: 1051

Re: lung nodules

I can only tell you about the experiences of my family, and those may not be relevant to your situation. My father and I both have lung nodules: his are from environmentally-induced lung cancer, mine are from colon cancer. I realize that lung cancer is a different disease but there may still be some...
by zephyr
Tue Sep 25, 2018 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 18
Views: 7274

Re: Any surgeons doing Laser surgery?

So, what were the chances that of all the cancer centers in the US that don't use laser-assisted lung surgery, that our family friend's cancer center does? IT DOES! Holy cow! And funny how I stumbled on it at what seems an unrelated webpage: https://www.pennmedicine.org/cancer/about/focus-on-cancer...
by zephyr
Mon Sep 24, 2018 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 18
Views: 7274

Re: Any surgeons doing Laser surgery?

Hey zephyr, good to hear your news sounds really positive, it’s a long way to go but as you say worth it. My OH has multiple mets so I’m interested in the place in Germany you mention (we live in UK). I know each case is different but could you give a rough figure in cost please. Wishing you a good...
by zephyr
Wed Aug 22, 2018 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 18
Views: 7274

Re: Any surgeons doing Laser surgery?

I am currently in Coswig, Germany, recovering from surgery on my right lung. Dr. Drewes was ill so Dr. Kern did my surgery. He’s terrific. My mets were considered inoperable in the States, both because of number and the location of two central mets deep in the lungs. My right lung was cleared of 8 n...
by zephyr
Mon Aug 20, 2018 2:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nausea/Vomiting BEFORE Chemo?
Replies: 7
Views: 864

Re: Nausea/Vomiting BEFORE Chemo?

Also, and this is going to sound weird, I just accepted that this was how I rolled. I got pretty zen about getting nauseous, accepted that it was how I reacted to stress and made accommodations. Of course, once I’d done that I stopped feeling nauseous, because brains are powerful things that like t...

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