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by zephyr
Fri May 25, 2018 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgeon has me feeling horrible
Replies: 13
Views: 195

Re: Surgeon has me feeling horrible

Ditto what Lee just wrote.
by zephyr
Fri May 25, 2018 2:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 10
Views: 272

Re: Feeling really sad and in need of support

No one has mentioned Avastin to me yet, maybe because I am so new to treatment, but minimal to no side effects sounds amazing. There are side effects to Avastin but many people do not experience them. It's an amazing drug but you should be aware of the known side effects in case you start experienc...
by zephyr
Fri May 25, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 10
Views: 272

Re: Feeling really sad and in need of support

I'm so sorry for what you're going through. So very sorry. It made me teary reading your message. I've been on that ride several times and my experience has been that you just need to ride it out. It will pass but it may take a day or maybe a few days. I wish I had a better answer for you. It's hard...
by zephyr
Wed May 23, 2018 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Naturopathic Practitioner- Philadelphia
Replies: 3
Views: 75

Re: Naturopathic Practitioner- Philadelphia

Below is a link my naturopathic doc gave me when a friend was looking for a practitioner in another state. Just make sure that under Category you select Cancer to make sure you get someone who is board certified in oncology. https://www.naturopathic.org/AF_MemberDirectory.asp?version=2
by zephyr
Wed May 23, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Homeopathic Remedies for Fragmented Stools
Replies: 13
Views: 315

Re: Homeopathic Remedies for Fragmented Stools

If you search for "clustering" on the forum, you'll find several posts about how people dealt with it.

Below is a link to an article that might help. It was originally part of the MD Anderson newsletter - see page 2:
http://www.redliongroup.org/roar/news014.pdf
by zephyr
Wed May 23, 2018 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rebuilding neutrophils and platelets
Replies: 4
Views: 134

Re: Rebuilding neutrophils and platelets

My spleen is enlarged and creating an on-going battle with platelets. I've been told that time is answer but it's also been suggested that toasted sesame seed oil and shark liver oil might help. I opted for plain, organic tahini made with roasted sesame seeds, and shark liver oil capsules. I can't t...
by zephyr
Sat Apr 21, 2018 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years in remission - having digestive issues
Replies: 1
Views: 383

Re: 3 years in remission - having digestive issues

However now, every time after I eat I start feeling extremely bloated and painfully full in the torso area right above my belly button and left/right sides. This has been going on for almost 2 months. I was not able to get an appointment with my GI, so last month I went to my primary Dr and saw his...
by zephyr
Fri Apr 20, 2018 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here My son has colon cancer
Replies: 18
Views: 1675

Re: New here My son has colon cancer

I highly recommend finding an oncology counselor for him to talk to. I firmly believe that we all should be referred when we get diagnosed. Ditto, ditto, ditto. DITTO. I have avoided giving my parents too much detail because I wanted to protect them. They were already so stressed and I didn't want ...
by zephyr
Wed Apr 18, 2018 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help dealing with Health Anxiety/Panic
Replies: 7
Views: 677

Re: Help dealing with Health Anxiety/Panic

Full disclosure: I haven't been through a reversal so ... basically ... I probably don't know what I'm talking about. That said, after I started chemo I remember telling my gastroenterologist that I was noticing a lot of mucus. He said the colon is basically a mucus factory. Could be (maybe?) that y...
by zephyr
Wed Apr 18, 2018 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5231

Re: Scanxiety: Anyone else having testing now?

Robino1 wrote:Cancer won't break me and keep me from enjoying life. Dammit! :twisted:


Enjoy your mini-vacation ... the time away from doctors, from infusions, and from scan reports.
by zephyr
Thu Apr 12, 2018 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5231

Re: Scanxiety: Anyone else having testing now?

Thanks, Robin & Larry. It's so nice to be able to share good news with people who really get it.
Congrats to you too, Larry!
Robin ... hoping you'll be posting a good report very soon!
by zephyr
Wed Apr 11, 2018 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5231

Re: Scanxiety: Anyone else having testing now?

Just received my latest scan results. After 9 months of "bad" scans, I finally have a good one. All lung nodules have decreased by about 30% and there's no evidence of any new metastases! I'm thrilled but also overwhelmed by hope.
by zephyr
Sat Apr 07, 2018 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 10
Views: 1369

Re: Any surgeons doing Laser surgery?

First, a BIG thanks to Sophy for continuing to provide information. I'm pursuing the Germany option. Since Dr. Rolle and Dr. Ladas have both retired, I felt more comfortable going to Germany because it's my understanding that Dr. Drewes, the thoracic surgeon in Germany, assisted Dr. Rolle on many su...
by zephyr
Fri Mar 30, 2018 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving Stage IV Colon Cancer after Failed Surgery/Chemo/Radiation
Replies: 7
Views: 1239

Re: Surviving Stage IV Colon Cancer after Failed Surgery/Chemo/Radiation

Sara!!!! wrote:Wow! Desperately in need for something like that. Let us know the details


Ditto what Sara said, especially interested in the dosages of CBD and THC oil.
by zephyr
Mon Mar 26, 2018 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 10
Views: 1369

Re: Any surgeons doing Laser surgery?

Zephyr - I found it best to phone instead of email, the number is +44 20 3553 2620, his secretary Justine is very helpful. I was very impressed by Ladas, I think he did a great job and is kindly as well. I would also recommend phoning Coswig instead of emailing, if you or a friend speak German that...

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