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by zephyr
Tue Mar 09, 2021 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 10
Views: 2116

Re: Anyone on daily Xeloda?

Not quite what you asked but for almost 2 years I was taking Xeloda on Monday-Friday with weekends off and did great. I remember our favorite onc (that was you, wasn't it?) telling me that in Europe they take Xeloda every day with no issues. I suspect the folic acid supplemented in North American fo...
by zephyr
Sun Jan 17, 2021 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VEGF and TGF beta 1
Replies: 5
Views: 1270

Re: VEGF and TGF beta 1

beach sunrise wrote:If you think about it and want to share please let me know about your bloodwork. I also have bloodwork coming up in 2 wks to see about IP6 working or not.

I'll PM you.
by zephyr
Sun Jan 17, 2021 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLINICAL TRIALS and Important Links
Replies: 29
Views: 97628

Re: CLINICAL TRIAL FINDER

ANCORA Clinical Trial Finder You can use Ancora to search for clinical trials that might be suitable for you or your loved one. First fill in the four fields about the patient in question on the home page: the medical condition and age of the patient, and their location and willingness to travel. T...
by zephyr
Sat Jan 16, 2021 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VEGF and TGF beta 1
Replies: 5
Views: 1270

Re: VEGF and TGF beta 1

My VEGF is way high after taking a chemical break that includes an Avastin break. I'm taking Honokiol and VascuStatin to target VEGF but I won't have more bloodwork for another 2-3 weeks so I can't tell you how well it worked. Maybe ask your ND about them. If you take one or both, know that they can...
by zephyr
Sat Dec 05, 2020 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hyperbaric Oxygen Therapy After CRT
Replies: 17
Views: 3082

Re: Hyperbaric Oxygen Therapy After CRT

Sophy wrote:(signature line note) Dec 2020 stopping Chemo


Please forgive me while I hijack this discussion just long enough to say: continuing NED and stopping chemo - possibly great news, Sophy! Keeping you in my thoughts and hoping that you continue to have good news.
by zephyr
Fri Dec 04, 2020 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My first Avastin treatment.
Replies: 9
Views: 2648

Re: My first Avastin treatment.

Increased blood pressure seems to be pretty common, based on what I've heard from my oncologist and other patients, and can be dangerous if you don't keep an eye on it. It took about a year for it to hit me. Nasal congestion is common too. If you get hurt, it will probably bleed more (sometimes a LO...
by zephyr
Thu Dec 03, 2020 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 vaccine thoughts/concerns
Replies: 24
Views: 4512

Re: COVID-19 vaccine thoughts/concerns

I am more afraid of COVID-19 than cancer so I'm in ... but my current thinking is to only consider whatever vaccine Dr. Fauci receives.
by zephyr
Mon Nov 23, 2020 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have experience Jane McLelland and starving cancer?
Replies: 8
Views: 2270

Re: Does anyone have experience Jane McLelland and starving cancer?

I don't have any experience with any diet that starves cancer but I do have experience with a fasting-mimicking diet during chemo. The idea is not to starve the cancer, the idea is to put your normal cells into a protection mode because they think there's a famine so they sort of shut down. Cancer c...
by zephyr
Sun Nov 22, 2020 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommended Supplements?
Replies: 7
Views: 1045

Re: Recommended Supplements?

... if you are starting to add supplements to your list of meds, either you or your doctor will need to check whether or not these are compatible with whatever else you are already taking. This includes both drugs/supplements and foods/beverages. Excellent point and, as other have also mentioned, s...
by zephyr
Fri Nov 20, 2020 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 25
Views: 5445

Re: Xeloda Avastin Maintenance Plan

beach sunrise wrote:zephyr, are you still under the care of an ND also?


Yes
by zephyr
Fri Nov 20, 2020 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda Avastin Maintenance Plan
Replies: 25
Views: 5445

Re: Xeloda Avastin Maintenance Plan

I've been on Xeloda/Avastin for almost 2 years. I never noticed much change in my CEA but that was never a good indicator for me. Even at Stage IV before my resection, my CEA was only 4. That said, during the first 6 months on Xeloda, my scans were showing slight progression. Both of my regulars onc...
by zephyr
Fri Jul 17, 2020 2:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prep for colonoscopy
Replies: 14
Views: 2903

Re: Prep for colonoscopy

Super easy. It tastes a little weird, so make it cold. If you don’t like the taste, squeeze some lime juice into your mouth before and after chugging it. For me it worked perfectly, and just as advertised. Followed the directions so got a solid night’s sleep before the procedure. Same here (except ...
by zephyr
Fri Jul 17, 2020 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid and the non-believers
Replies: 18
Views: 2845

Re: Covid and the non-believers

This is a colon cancer support forum, not the mask debate forum. I agree with Kim. While I also agree that this is a very relevant to cancer patients & caregivers on this forum, the post was made by a first-time poster about whom we know nothing. It seems suspiciously like someone looking to st...
by zephyr
Wed Jul 15, 2020 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interesting paper about fasting and vitamin C
Replies: 17
Views: 2443

Re: Interesting paper about fasting and vitamin C

But it feels like if I could get the diarrhea to stop, maybe I would have a better chance of eating more sooner post chemo. I don't know if this will be of any help or if you live in a medical marijuana state ... but when I was battling diarrhea and clustering in the early years after re-section su...
by zephyr
Tue Jul 07, 2020 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 46
Views: 24107

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Hockey69 wrote:
Hi zephyr,

I am going to see dr drewes in early August for my lung mets as well. Would it be ok if I had your contact info as well? Just want to ask you how it went ect and if I am bringing my wife how the guest house is?

Thanks!


Sure, I'll send you an email through the Board in a few minutes.

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