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by zephyr
Fri Aug 02, 2019 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ct scans
Replies: 9
Views: 672

Re: Ct scans

I've been having quarterly CT scans of the chest, abdomen and pelvis for 3 years. Recently when I was seeing my gastroenterologist and he noted that I neglected to schedule a 1 year followup colonoscopy, I mentioned all those scans, nothing new ever showing up in the colon ... so I should be clear, ...
by zephyr
Wed Jul 31, 2019 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 40
Views: 1911

Re: Opinions on alternative treatments?

Wouldn't it be great if someone who was newly-diagnosed could come across this thread and have a definitive list of meds/supplements to acquire immediately so that he/she could take immediate control of this disease?? I can't imagine that the information in clinical trials could be too erroneous, r...
by zephyr
Wed Jul 24, 2019 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rick Simpson Oil results!!
Replies: 2
Views: 417

Re: Rick Simpson Oil results!!

For purposes of keeping information in one place rather than having it spread across different posts, you might revive your old post on this subject rather than starting from scratch each time. Just a suggestion. It makes it easier for people (especially new people) to easily locate responses dealin...
by zephyr
Mon Jul 15, 2019 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Which Curcumin supplement?
Replies: 2
Views: 389

Re: Which Curcumin supplement?

Before you take anything, please check the Memorial Sloan Kettering "About Herbs" website.
https://www.mskcc.org/cancer-care/integrative-medicine/herbs/turmeric
by zephyr
Wed Jul 10, 2019 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 13
Views: 1031

Re: Worried... no poop

Nai7 wrote:So I tried to manually disempact (sp?) myself (I know I shouldn’t have done that) then things got crazy.


If it happens again, maybe try a glycerin suppository instead. You can buy them over the counter at the drug store.
by zephyr
Sat Jun 29, 2019 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone just beginning Chemoradiation with Xeloda?
Replies: 2
Views: 415

Re: Anyone just beginning Chemoradiation with Xeloda?

I've been on Xeloda for about 12 weeks, and I'll be adding SBRT beginning next week.
by zephyr
Wed Jun 19, 2019 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Knicked ureter
Replies: 8
Views: 585

Re: Knicked ureter

I had a similar experience but mine was fixed during surgery. It happens. If you notice later that you've lost the sensation to urinate or to empty completely, feel free to PM me and I'll send you a couple of really simple things you can do to fix it.
by zephyr
Tue Jun 18, 2019 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I might have advanced cancer
Replies: 21
Views: 2050

Re: Scared I might have advanced cancer

Lee wrote:
Maggie Nell wrote:
Can you hear the drums Fernando....

:wink:


And the comment from Maggie is from a song, a long time ago.

Lee


I object! It wasn't SO long ago! :P
by zephyr
Tue Jun 11, 2019 5:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU as second line?
Replies: 12
Views: 971

Re: 5FU as second line?

After Folfox, I was on 5fu and Avastin for a while. I stopped the Avastin after 2-3 months because of issues healing and was on 5fu only for several months before going on Folfiri.
by zephyr
Fri Jun 07, 2019 4:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Visualization and Other non-medical stuff
Replies: 9
Views: 534

Re: Visualization and Other non-medical stuff

I regularly do a healing shift Yoga Nidra meditation. I really like Kamini Desai’s IAM Yoga Nidra app. Dale Evans at the Virginia G Piper Cancer Center in Scottsdale, AZ also has an excellent Yoga Nidra meditation CD with healing bowls.
by zephyr
Fri Jun 07, 2019 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thin walled cavitary lesion to solid nodule?
Replies: 3
Views: 481

Thin walled cavitary lesion to solid nodule?

Does anyone knows what it means when a 17 mm thin walled cavitary lesion in the lung turns into a solid 19x21 mm nodule? I don’t see my onc for another week and I’m trying to interpret my CT report. Other nodules are stable except one cavitary nodule has developed a thin wall.
by zephyr
Thu May 23, 2019 5:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for Options for un-resectable lung Mets
Replies: 7
Views: 858

Re: Looking for Options for un-resectable lung Mets

I also had "inoperable" lung mets removed in Coswig last year. As Jules mentioned, you need to contact Dr. Drewes and send a DVD of your most current CT scan. Don't just send the written report - he will want to review the scan "film" himself. Depending on location and other stuf...
by zephyr
Sat May 11, 2019 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 1492

Re: Chemo break

Did you guys who had growth during the break find chemo went back to working again afterwords. Hmmm... maybe. I don't really remember but I *think* in both cases I hit chemo resistance and my cocktail was changed, after which the chemo began working again. Sorry to be so vague. I second what Detox ...
by zephyr
Sat May 11, 2019 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 1492

Re: Chemo break

Over my first two years, I had a few chemo breaks, two of which I chose. Both were for about a month. There was some growth but it's hard to know what caused it: was it the chemo break or was it chemo resistance? My body was SCREAMING for a break, and the time off gave me a chance to recover physica...

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