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by zephyr
Mon Nov 05, 2018 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here from Philippines
Replies: 5
Views: 288

Re: New here from Philippines

Several years ago, I went though hypnosis for a medical reason. Before the session, I had a get-to-know you talk with the psychologist. It turned out that she did volunteer work with HIV patients, helping them with anxiety and pain control. One thing she mentioned that I never forgot: she reminded t...
by zephyr
Sat Nov 03, 2018 1:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 13
Views: 779

Re: Foods to avoid during chemotherapy

IMO protein shakes & powders are all over the board when it comes to taste and grittiness. Before you buy a large bottle or case, first try to find single shakes or sample powders to taste. The exception is when you buy it at Costco. Other retailers may also do this but Costco will let you retur...
by zephyr
Fri Nov 02, 2018 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How To Deal With DH Family
Replies: 10
Views: 889

Re: How To Deal With DH Family

Please excuse me for a moment while I sort of hijack this thread to say: good job, bitchslapped!
by zephyr
Fri Nov 02, 2018 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 13
Views: 779

Re: Foods to avoid during chemotherapy

I agree with cbsmith and hiker. My diet was already pretty healthy before being diagnosed but I went overboard at times afterwards (it was a control thing with me). Getting through this is hard, really hard, mentally and physically. It’s one thing to make general changes like limiting red meat, eati...
by zephyr
Fri Nov 02, 2018 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news
Replies: 8
Views: 548

Re: Good news

A big CONGRATS! What terrific news! I’m so happy for your family. :mrgreen:
by zephyr
Thu Nov 01, 2018 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and nervous
Replies: 6
Views: 515

Re: New and nervous

I really do understand your fear of something going wrong during the colonoscopy. But here’s the thing: you’re much more likely to die in a car accident than from a colonoscopy. Like a lot more likely. Do you drive? I really don’t mean to make light of your fear. Honestly. But as a Stage IV cancer p...
by zephyr
Thu Nov 01, 2018 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling good. So why am I worried?
Replies: 6
Views: 610

Re: Feeling good. So why am I worried?

Oh boy, have I been there. That’s a hard one to shake, at least it was for me. Control ended up getting me through it. The first time it happened, I think I just wore myself out with cleaning closets and other projects that I felt would make it easier on my family when I was gone. I know that sounds...
by zephyr
Wed Oct 31, 2018 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approach to treatment - any advice appreciated!
Replies: 7
Views: 293

Re: Approach to treatment - any advice appreciated!

Challenging being away from home for three months and in a country where I don’t speak the language, and then there was the expense ... but so worth it. In my case, it had to happen this way: I needed to go through all the conventional steps, all the standard procedures, before making the decision t...
by zephyr
Wed Oct 31, 2018 12:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approach to treatment - any advice appreciated!
Replies: 7
Views: 293

Re: Approach to treatment - any advice appreciated!

Please forgive me if this is naive but can’t you do both, at least initially? Would it be possible to meet with the local cancer center and then go to MSK or wherever for a second opinion? That would get you in the door at both places as a patient. It could be that both will tell you to first do X, ...
by zephyr
Wed Oct 31, 2018 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RGCC test questions
Replies: 0
Views: 133

RGCC test questions

I’m considering having the RGCC test. I searched the forum and found some general discussions but those were 2-3 years ago. Does anyone have any more recent experience or knowledge about this test and the success when a patient complies with the recommendations? I’m especially interested for mainten...
by zephyr
Fri Oct 26, 2018 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox - How many Oxaliplatin rounds?
Replies: 10
Views: 619

Re: Folfox - How many Oxaliplatin rounds?

The oncologist's plan is 7 more rounds of Folfox (getting him to 12 total) resuming later today, provided labs look good. I know it's been discussed on these boards from my reading, but how many rounds of Folfox did you complete and specifically with the Oxaliplatin? If you stopped Oxaliplatin earl...
by zephyr
Wed Oct 24, 2018 1:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time from dx to first treatment?
Replies: 23
Views: 1332

Re: Time from dx to first treatment?

DX the first week of June during a routine colonoscopy, surgery the last week of June, and chemo started the first week of August.
by zephyr
Tue Oct 09, 2018 7:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 41
Views: 16112

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

So happy for you zephyr! Hope all does well and a speedy recovery. Which Dr. did your surgery? Dr. Kern did my right lung and Dr. Drewes did my left lung. Dr. Drewes was ill at the time of the first surgery so Dr. Kern took over. They are both beyond wonderful! Stevieb: if you don’t mind sharing, w...
by zephyr
Sun Oct 07, 2018 5:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)
Replies: 41
Views: 16112

Re: Laser Assisted Pulmonary Metastasectomy (8 to 100 mets)

Happily, I’m part of the club. 11 mets removed, 8 in the right lung, 4 in the left.

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