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by zephyr
Sat Apr 21, 2018 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years in remission - having digestive issues
Replies: 1
Views: 374

Re: 3 years in remission - having digestive issues

However now, every time after I eat I start feeling extremely bloated and painfully full in the torso area right above my belly button and left/right sides. This has been going on for almost 2 months. I was not able to get an appointment with my GI, so last month I went to my primary Dr and saw his...
by zephyr
Fri Apr 20, 2018 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here My son has colon cancer
Replies: 18
Views: 1652

Re: New here My son has colon cancer

I highly recommend finding an oncology counselor for him to talk to. I firmly believe that we all should be referred when we get diagnosed. Ditto, ditto, ditto. DITTO. I have avoided giving my parents too much detail because I wanted to protect them. They were already so stressed and I didn't want ...
by zephyr
Wed Apr 18, 2018 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help dealing with Health Anxiety/Panic
Replies: 7
Views: 663

Re: Help dealing with Health Anxiety/Panic

Full disclosure: I haven't been through a reversal so ... basically ... I probably don't know what I'm talking about. That said, after I started chemo I remember telling my gastroenterologist that I was noticing a lot of mucus. He said the colon is basically a mucus factory. Could be (maybe?) that y...
by zephyr
Wed Apr 18, 2018 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5200

Re: Scanxiety: Anyone else having testing now?

Robino1 wrote:Cancer won't break me and keep me from enjoying life. Dammit! :twisted:


Enjoy your mini-vacation ... the time away from doctors, from infusions, and from scan reports.
by zephyr
Thu Apr 12, 2018 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5200

Re: Scanxiety: Anyone else having testing now?

Thanks, Robin & Larry. It's so nice to be able to share good news with people who really get it.
Congrats to you too, Larry!
Robin ... hoping you'll be posting a good report very soon!
by zephyr
Wed Apr 11, 2018 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5200

Re: Scanxiety: Anyone else having testing now?

Just received my latest scan results. After 9 months of "bad" scans, I finally have a good one. All lung nodules have decreased by about 30% and there's no evidence of any new metastases! I'm thrilled but also overwhelmed by hope.
by zephyr
Sat Apr 07, 2018 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 10
Views: 1356

Re: Any surgeons doing Laser surgery?

First, a BIG thanks to Sophy for continuing to provide information. I'm pursuing the Germany option. Since Dr. Rolle and Dr. Ladas have both retired, I felt more comfortable going to Germany because it's my understanding that Dr. Drewes, the thoracic surgeon in Germany, assisted Dr. Rolle on many su...
by zephyr
Fri Mar 30, 2018 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving Stage IV Colon Cancer after Failed Surgery/Chemo/Radiation
Replies: 7
Views: 1230

Re: Surviving Stage IV Colon Cancer after Failed Surgery/Chemo/Radiation

Sara!!!! wrote:Wow! Desperately in need for something like that. Let us know the details


Ditto what Sara said, especially interested in the dosages of CBD and THC oil.
by zephyr
Mon Mar 26, 2018 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 10
Views: 1356

Re: Any surgeons doing Laser surgery?

Zephyr - I found it best to phone instead of email, the number is +44 20 3553 2620, his secretary Justine is very helpful. I was very impressed by Ladas, I think he did a great job and is kindly as well. I would also recommend phoning Coswig instead of emailing, if you or a friend speak German that...
by zephyr
Fri Mar 23, 2018 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 10
Views: 1356

Re: Any surgeons doing Laser surgery?

Has anyone had any luck contacting the U.K. hospital and finding out who has taken over for Dr. Ladas? They haven't responded to my email and my Google searches are turning up nothing. I have written to Dr. Drewes in Germany but I would like also to get information from the U.K. Thanks in advance fo...
by zephyr
Sun Mar 11, 2018 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are followup colonoscopies counted as preventative?
Replies: 5
Views: 638

Re: Are followup colonoscopies counted as preventative?

My experience was that it was not considered preventative. The explanation I was given was that if you have no reason to believe anything is wrong, it's considered preventative -- but otherwise no. Again, this was just my experience -- your insurance company may treat it differently. Edited to add: ...
by zephyr
Fri Mar 09, 2018 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 3100

Re: Possible for long term remission with only chemo?

All this gets me to saying I'm an optimistic realist hoping long term chemo will work, but knowing what the outcome can be. Someone has to be in the good response group so why not you or me! And with a good response, who knows what opportunities lie ahead with treatments and trials. Keep the Faith!...
by zephyr
Wed Mar 07, 2018 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 3100

Re: Possible for long term remission with only chemo?

Thanks for asking this question. I have the same concerns about my inoperable lung mets. I started on Folfox, then 5fu/Avastin, then just 5fu and everything was running smoothly until it all stopped working. Then I was switched to Folfiri. I added Vitamin C IVs and quercetin to the mix but whether o...
by zephyr
Tue Feb 20, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Black
Replies: 8
Views: 1091

Re: Black

I know exactly how you feel. I was spiraling downward. With the help of my nurse navigator, I was put in contact with the oncology counselor at my cancer center. She has been helping me. She also set me up with a psychiatric nurse practitioner for medication. You may need to have a dose change on y...
by zephyr
Tue Feb 20, 2018 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post Surgery Help and CEA
Replies: 10
Views: 1025

Re: Post Surgery Help and CEA

From Memorial Sloane Kettering -- Patient Warnings and Do Not Take If regarding taking curcumin/turmeric during chemo:
https://www.mskcc.org/cancer-care/integrative-medicine/herbs/turmeric

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