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by zephyr
Fri Oct 11, 2019 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX vs. FOLFIRI
Replies: 9
Views: 392

Re: FOLFOX vs. FOLFIRI

Some questions for those folks in my same or similar situation. 1. How long were you on first line treatment before moving on? 2. Any why the change (e.g., toxicities, intolerance of side effects, stopped working)? I'm fortunate to not experience physical side effects other than cold sensitivity fr...
by zephyr
Fri Oct 11, 2019 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering fatigue and changes in stool
Replies: 5
Views: 392

Re: Lingering fatigue and changes in stool

Gravelyguy wrote:I certainly could own stock in Charmin!

Dave


... and Cottonelle. :mrgreen:
by zephyr
Wed Oct 09, 2019 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice Needed: Is lung surgery the best approach?
Replies: 9
Views: 349

Re: Advice Needed: Is lung surgery the best approach?

The surgeon plans to palpitate each lung to remove any additional tumors that may not be visible on the CT scan. That's terrific. My surgeons did the same thing and found more nodules than showed up on my CT scan. The CT scan reported 7 nodules but between the two surgeries, they removed 11. Of tho...
by zephyr
Wed Oct 09, 2019 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice Needed: Is lung surgery the best approach?
Replies: 9
Views: 349

Re: Advice Needed: Is lung surgery the best approach?

So some questions: 1. If you’ve had this 2 part open surgery, do you have any regrets? 2. What is your lung function like now? 3. Have Mets returned after? 4. Have you been on maintenance chemo? 5. I know surgery is typically the gold standard, but we obviously have some concerns that we’d be going...
by zephyr
Sat Sep 21, 2019 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 1274

Re: Questions regarding Folfox treatments

It's weird that I have basically abandoned my yoga practice since my diagnosis. I haven't been swimming either. It's like those things are a part of my old life and I get kind of sad thinking about it. Don't beat yourself up. You're adjusting to a new normal and adjustments take time. Plus - it's n...
by zephyr
Sat Sep 21, 2019 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 1274

Re: Questions regarding Folfox treatments

Rob and the others pretty much covered it, and I only have a couple of quick comments to add. I don't remember seeing this but maybe I missed it so please forgive if it's duplication. First, the reason it's so important to keep your doctor and nurses fully in the loop about the neuropathy is that if...
by zephyr
Fri Sep 20, 2019 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All done...hard to believe
Replies: 13
Views: 829

Re: All done...hard to believe

O.M.G.

CONGRATULATIONS! I am a vibrant emerald green with envy :mrgreen: but my happiness for you is through the roof!
by zephyr
Fri Sep 20, 2019 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wife, 10 years NED - stage IV
Replies: 15
Views: 1657

Re: My wife, 10 years NED - stage IV

Thanks for posting an encouraging message. Being Stage IV myself, it's always uplifting to read about others who achieved long term NED.
by zephyr
Thu Sep 19, 2019 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Do I need to eat meat during chemoradiation?
Replies: 11
Views: 544

Re: Do I need to eat meat during chemoradiation?

I was never told I needed to eat meat for the protein requirement, only that I needed a lot of extra protein during treatment and it's challenging to get enough without meat. I was vegan when I was diagnosed and found it difficult to get enough protein so I went vegetarian but that still wasn't enou...
by zephyr
Wed Sep 18, 2019 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 1868

Re: Treatment at MSK

Yikes, that's a lot of money. But that's the kind of ballpark figure I was expecting. I guess we're lucky it's all free here in Denmark. As I think someone else mentioned, ask about a cash pay price. Even U.S. citizens who have insurance but with high deductibles sometimes pay cash out of pocket up...
by zephyr
Tue Sep 17, 2019 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 1868

Re: Treatment at MSK

Yikes, that's a lot of money. But that's the kind of ballpark figure I was expecting. I guess we're lucky it's all free here in Denmark. As I think someone else mentioned, ask about a cash pay price. Even U.S. citizens who have insurance but with high deductibles sometimes pay cash out of pocket up...
by zephyr
Mon Sep 16, 2019 5:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What Helped You Make It Through Folfox Cycles 6-8
Replies: 11
Views: 662

Re: What Helped You Make It Through Folfox Cycles 6-8

I don't know if someone mentioned this and I missed it but it's important enough to repeat: the reason you MUST tell your oncology team about neuropathy progression is because if they don't adjust the dosage soon enough, the neuropathy can be permanent. As for nausea, I couldn't take the anti-nausea...
by zephyr
Mon Sep 16, 2019 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 25
Views: 3372

Re: Screw Cancer, Hospice is Here

bitchslapped wrote:... spirit of a Winner. He didn't lose to cancer...or anything. No such thing exists.



I'm hanging that on my bookcase.
by zephyr
Sun Sep 15, 2019 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 25
Views: 3372

Re: Screw Cancer, Hospice is Here

Wishing you laughter, love, and peace.
by zephyr
Sat Sep 14, 2019 8:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with bowels
Replies: 54
Views: 3811

Re: Help with bowels

Thank you, my husband said it's nice to know the name of the constant "urge" to go. It is relieving to know that there is hope because right now he is feeling pretty hopeless about the whole situation. I looked up the bentyl, not sure that is for his actual issue. He seems to just not hav...

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