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by zephyr
Sat Dec 07, 2019 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My hair is falling out.
Replies: 30
Views: 3239

Re: My hair is falling out.

Here's something to look forward to: when your hair grows back, you're going to LOVE it! My hair never looked better than during the year after it started growing back. Little hairs gave longer hairs a nice lift - it was wonderful! Cut my styling time in half. Also, it came back wavy instead of stic...
by zephyr
Wed Dec 04, 2019 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hiccup
Replies: 3
Views: 425

Re: Hiccup

My grandmother always gave me a teaspoon of sugar water (with plenty of sugar, not some mamby-pamby diet-type solution). Worked like a charm. Now, about this next part - I don't think I'm making this up. I dated an ER doc many moons ago and I once mentioned this sugar water thing to him. He said it ...
by zephyr
Thu Nov 28, 2019 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just need to get it out
Replies: 6
Views: 840

Re: Just need to get it out

It’s ok to cry, I think all of us here have been through that and continues to go through that. Sometimes I just cry out of the blue without any triggers because it’s all too much and overwhelming. Please do try to take care of yourself too. Same here. It sometimes doesn't take much. I think you ca...
by zephyr
Thu Nov 28, 2019 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 43
Views: 3215

Re: Please help, input needed

I'm so sorry. You are overwhelmed with fear and we all get it. Ok, first: breathe. When you start to panic, do a 4-7-8 breath. Seriously, it will help. Exhale completely then softly close your lips and inhale through your nose to a count of 4. Hold it for a count of 7. Now exhale through your mouth ...
by zephyr
Sun Nov 17, 2019 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Best doctor at Mayo clinic MN for metastatic to lung
Replies: 2
Views: 329

Re: Best doctor at Mayo clinic MN for metastatic to lung

I don't have an answer to your question but maybe this will help guide you: when I went to Mayo at another location, I looked for an oncologist specializing in GI cancers. You can read their full bios and go from there. Here's a link to get you started: https://www.mayoclinic.org/diseases-conditions...
by zephyr
Thu Nov 07, 2019 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda alone after allergic to Oxliplatin
Replies: 6
Views: 363

Re: Xeloda alone after allergic to Oxliplatin

I'm Stage IV and on Xeloda and Avastin for a recurrence of lung mets. It's been keeping me stable.
by zephyr
Sun Nov 03, 2019 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 645

Re: SCAN QUESTIONS

Wish we could do this. However, we have to travel and get the scans within 18 hours of the oncologist consult the following day. The reports never get released until at least 48 hours after the scan and that's when they are on weekdays. Because we come from out of town and my husband's schedule is ...
by zephyr
Sun Nov 03, 2019 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 645

Re: SCAN QUESTIONS

I don't know the answer to your questions but having been in your shoes (results & questions AFTER the appointment), I always get my results ahead of time. I'm told that scans are generally read and results available within 24 hours (otherwise they would be hopelessly backed up) so I always call...
by zephyr
Fri Nov 01, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 714

Re: 3 month scan ? What to expect. (Rectal)

My first scan showed shrinkage. It's hard to stay positive, I know. I believe with all my heart that the caregiver has the hardest job. I don't know how my husband does it, and I'm more thankful to him than I could possibly express. One thing that kept me going during some dark periods was his insis...
by zephyr
Thu Oct 31, 2019 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance question: Are colonoscopies considered preventative?
Replies: 4
Views: 240

Re: Insurance question: Are colonoscopies considered preventative?

Thanks for the responses. From my net searches it appears that there are two categories of colonoscopy: screening/preventive and diagnostic/medical. I asked my insurance company and am waiting for their response, but I believe we are subject to the diagnostic/medial category. I would think your gas...
by zephyr
Wed Oct 30, 2019 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS and other findings help
Replies: 8
Views: 421

Re: KRAS and other findings help

I'm not a medical professional, just another patient. From what I understand, KRAS is a fairly common mutation that can make the cancer difficult to treat. A large percentage of patients (myself included) with colon cancer have the KRAS mutation. I've read estimates as low as 30% - 40% to as high as...
by zephyr
Tue Oct 29, 2019 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive fecal occult test
Replies: 15
Views: 656

Re: Positive fecal occult test

I had no symptoms or known history of colon cancer in my family when I was diagnosed during my first, routine, baseline colonoscopy. After having regular follow-up colonoscopies, I was diagnosed with an aggressive Stage IV recurrence a few years later. As part of my genetic testing, I ran down many ...
by zephyr
Thu Oct 24, 2019 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need to vent
Replies: 9
Views: 1048

Re: I need to vent

I had a chronic UTI for about a year, probably the result of clustering and sitz baths. At one point I was refusing to take an antibiotic because diarrhea was a known side effect and I just couldn't do it anymore. The pharmacist persuaded me to try taking a probiotic 1-2 hours before taking the anti...
by zephyr
Fri Oct 11, 2019 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX vs. FOLFIRI
Replies: 11
Views: 879

Re: FOLFOX vs. FOLFIRI

Some questions for those folks in my same or similar situation. 1. How long were you on first line treatment before moving on? 2. Any why the change (e.g., toxicities, intolerance of side effects, stopped working)? I'm fortunate to not experience physical side effects other than cold sensitivity fr...
by zephyr
Fri Oct 11, 2019 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering fatigue and changes in stool
Replies: 5
Views: 650

Re: Lingering fatigue and changes in stool

Gravelyguy wrote:I certainly could own stock in Charmin!

Dave


... and Cottonelle. :mrgreen:

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