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by zephyr
Tue Dec 31, 2019 5:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member - scared & looking for tips
Replies: 35
Views: 2134

Re: New member - scared & looking for tips

Can’t seem to understand why the cancer didn’t show up on the scan but I’m supposed to trust the lymph nodes as unremarkable. My GI doc wanted me to have a follow-up colonoscopy one year after my surgery. For a variety of reasons I didn't get around to it until about 18 months later. When I saw him...
by zephyr
Tue Dec 31, 2019 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic: British Colombia Travel Question
Replies: 6
Views: 375

Re: Off Topic: British Colombia Travel Question

Whoa! I sent a long PM and it's ... gone. You didn't get it and it's not in my Sent folder or in Drafts. I know I'm not making this up, I wrote and sent it. My chemo brain is not THAT bad. I'll try again.
by zephyr
Sat Dec 28, 2019 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic: British Colombia Travel Question
Replies: 6
Views: 375

Re: Off Topic: British Colombia Travel Advice

rough and rugged ? off grid backcountry ? car and hotel ? guided tours ? all in one resorts ? Thank you for the links. I had found others but not as good as the ones you posted. Part of our problem was that we really didn't know what we wanted to do because we didn't know what was easily available....
by zephyr
Sat Dec 28, 2019 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic: British Colombia Travel Question
Replies: 6
Views: 375

Off Topic: British Colombia Travel Question

Carpe Diem is my New Year's Resolution. I have tried not to let CRC hold me back from making plans but, as we probably all have experienced, it doesn't always work out that way. For myself, how can you make vacation plans when you don't know what chemo you'll be on in 6 months or how you'll feel? Di...
by zephyr
Mon Dec 23, 2019 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I rang the bell today.
Replies: 16
Views: 1450

Re: I rang the bell today.

Congratulations and HAPPY NED NEW YEAR! I'm so happy for you.
by zephyr
Tue Dec 17, 2019 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Done SBRT to the Lung?
Replies: 7
Views: 395

Re: Anyone Done SBRT to the Lung?

I had 5 sessions to treat a nodule in my upper right lung. Easy peasy. It's been 6 months and so far, so good.
by zephyr
Sat Dec 07, 2019 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My hair is falling out.
Replies: 30
Views: 3694

Re: My hair is falling out.

Here's something to look forward to: when your hair grows back, you're going to LOVE it! My hair never looked better than during the year after it started growing back. Little hairs gave longer hairs a nice lift - it was wonderful! Cut my styling time in half. Also, it came back wavy instead of stic...
by zephyr
Wed Dec 04, 2019 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hiccup
Replies: 3
Views: 536

Re: Hiccup

My grandmother always gave me a teaspoon of sugar water (with plenty of sugar, not some mamby-pamby diet-type solution). Worked like a charm. Now, about this next part - I don't think I'm making this up. I dated an ER doc many moons ago and I once mentioned this sugar water thing to him. He said it ...
by zephyr
Thu Nov 28, 2019 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just need to get it out
Replies: 6
Views: 1030

Re: Just need to get it out

It’s ok to cry, I think all of us here have been through that and continues to go through that. Sometimes I just cry out of the blue without any triggers because it’s all too much and overwhelming. Please do try to take care of yourself too. Same here. It sometimes doesn't take much. I think you ca...
by zephyr
Thu Nov 28, 2019 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 43
Views: 5243

Re: Please help, input needed

I'm so sorry. You are overwhelmed with fear and we all get it. Ok, first: breathe. When you start to panic, do a 4-7-8 breath. Seriously, it will help. Exhale completely then softly close your lips and inhale through your nose to a count of 4. Hold it for a count of 7. Now exhale through your mouth ...
by zephyr
Sun Nov 17, 2019 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Best doctor at Mayo clinic MN for metastatic to lung
Replies: 2
Views: 435

Re: Best doctor at Mayo clinic MN for metastatic to lung

I don't have an answer to your question but maybe this will help guide you: when I went to Mayo at another location, I looked for an oncologist specializing in GI cancers. You can read their full bios and go from there. Here's a link to get you started: https://www.mayoclinic.org/diseases-conditions...
by zephyr
Thu Nov 07, 2019 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda alone after allergic to Oxliplatin
Replies: 6
Views: 485

Re: Xeloda alone after allergic to Oxliplatin

I'm Stage IV and on Xeloda and Avastin for a recurrence of lung mets. It's been keeping me stable.
by zephyr
Sun Nov 03, 2019 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 794

Re: SCAN QUESTIONS

Wish we could do this. However, we have to travel and get the scans within 18 hours of the oncologist consult the following day. The reports never get released until at least 48 hours after the scan and that's when they are on weekdays. Because we come from out of town and my husband's schedule is ...
by zephyr
Sun Nov 03, 2019 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 794

Re: SCAN QUESTIONS

I don't know the answer to your questions but having been in your shoes (results & questions AFTER the appointment), I always get my results ahead of time. I'm told that scans are generally read and results available within 24 hours (otherwise they would be hopelessly backed up) so I always call...

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