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by zephyr
Mon Mar 25, 2019 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 425

Re: Lung specialist at MSK or MDA? Advice, please.

I wasn't allowed to e-mail you direcly because i guess I am new. I'll PM you my email address. Just send me a normal email (using copy and paste of my email address into your email program) so I have your email address. Rather than starting a long dialogue here, I'll email you privately, ok? Thanks.
by zephyr
Sun Mar 24, 2019 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 425

Re: Lung specialist at MSK or MDA? Advice, please.

Dr, Wayne H. In MDA. I can’t recall his last name. You may want to hurry up because they can do things on max 5/6 mets and if more appear they won t do anything. I am considering YAG in Germany and already sent them my scan. Is there any way I can contact you to ask a few questions about YAG surger...
by zephyr
Fri Mar 22, 2019 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 425

Re: Lung specialist at MSK or MDA? Advice, please.

I'm sorry your are dealing with more mets. I do not know about either place. I do know that UCLA has a powerhouse lung program. It is at that location cryo for pulmonary mets was pioneered. You see Saab and he is pretty knowledgeable and also quite flexible. I fly out this weekend to visit him. Als...
by zephyr
Thu Mar 21, 2019 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 425

Re: Lung specialist at MSK or MDA? Advice, please.

Pyro wrote:
You’ve been through a lot, do you think the surgeons will play wack-a-mole again?


Yes, I've already been in contact with the surgeons and that option is on the table. It's nice to have a good backup plan.
by zephyr
Thu Mar 21, 2019 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 425

Re: Lung specialist at MSK or MDA? Advice, please.

Have you had your Tumor Mutation Burden tested? I won't go into the whole story here but I am MSS also and because I had my tumor tested at Foundation One they also determined my Tumor Mutation Burden. I had 12 mutations which was a lot for an MSS tumor. So because of that my oncologist got permiss...
by zephyr
Wed Mar 20, 2019 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 425

Re: Lung specialist at MSK or MDA? Advice, please.

Jack&KatiesMommy wrote:Are you MSI or MSS?


MSS
by zephyr
Wed Mar 20, 2019 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung specialist at MSK or MDA? Advice, please.
Replies: 15
Views: 425

Lung specialist at MSK or MDA? Advice, please.

After the initial CRC surgery, 2 years of chemo, and 2 thoracotomies, I had a clean CT. Fast forward 3 months and I now have 3 suspicious lung nodules. I was already chemo resistant to everything that would work on my genetic mutations so I need someone who will think outside the box this time aroun...
by zephyr
Tue Mar 19, 2019 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice of colorectal cancer Survivors
Replies: 10
Views: 669

Re: Seeking advice of colorectal cancer Survivors

disissue wrote:Is It insane of not going to chemo for stage 3 colon cancer?


In my opinion, yes.
by zephyr
Wed Mar 13, 2019 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy coming up....gastroenterologist or surgeon?
Replies: 10
Views: 271

Re: Colonoscopy coming up....gastroenterologist or surgeon?

For the first look after surgery, I would go with the surgeon. For all other colonoscopies, definitely the gastroenterologist. That's what I did.
by zephyr
Wed Mar 13, 2019 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had pain from lung mets?
Replies: 2
Views: 214

Re: Has anyone had pain from lung mets?

As martd said, report it to your oncologist right away. Could be nothing but it could be something. I vaguely remember something - maybe just a twinge, maybe tightness, maybe pain - at one point when I was on chemo and my oncologist order a CT scan STAT. Turned out it was nothing but there was a ris...
by zephyr
Mon Mar 11, 2019 8:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coordination between oncologists - how to proceed?
Replies: 8
Views: 353

Re: Coordination between oncologists - how to proceed?

Thank you for your replies. As you can imagine, my head is spinning and I appreciate the guidance and support ... I started to write "more than you can imagine" but that's silly because I know you can imagine how much it means. I'm struggling a little at the moment, mainly for my husband, ...
by zephyr
Mon Mar 11, 2019 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coordination between oncologists - how to proceed?
Replies: 8
Views: 353

Re: Coordination between oncologists - how to proceed?

Thanks hiker. I picked up my CT scan about an hour ago and, unfortunately, the worst happened. I have an appointment with my regular oncologist tomorrow and the 2nd oncologist next week.
by zephyr
Mon Mar 11, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coordination between oncologists - how to proceed?
Replies: 8
Views: 353

Coordination between oncologists - how to proceed?

Over the years I've read posts here about having a major cancer center give treatment direction to a local cancer center or oncology practice. How do you do that logistically? Is it a common enough practice that everyone just goes along with it? I have started seeing a second oncologist - a GI cance...
by zephyr
Fri Mar 08, 2019 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Healthy Eating Cookbook Available Today
Replies: 1
Views: 112

Healthy Eating Cookbook Available Today

Today only on the Kindle Daily Deal is Rebecca Katz's book (Kindle version only), Clean Soups . It's $3.99. She is the same author who wrote The Cancer Fighting Kitchen, and seems to be well-regarded in medical circles for her nutritional cooking and cookbooks. I haven't read Clean Soups and can't c...
by zephyr
Thu Mar 07, 2019 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any surgeons doing Laser surgery?
Replies: 22
Views: 8963

Re: Any surgeons doing Laser surgery?

Hello Zephyr. I do hope you are continuing to move forward positively and are keeping well. I have watched you from afar and wanted to private message you but for some reason(mainly ‘cos i’m hopeless and a techno phobe) I am not able. Really interested in your experience in Germany as i’m hoping to...

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