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by zephyr
Tue Mar 31, 2020 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 749

Re: Chemo break due to covid-19 outbreak

My husband is on the same maintenance chemo. Does it cause you really bad side effects? Aside from terrible hands and feet, he seems very strong and our oncologist said he’s not considered high risk with his current treatment. Now I’m beginning to wonder if we should ask our oncologist again. I've ...
by zephyr
Mon Mar 30, 2020 3:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 749

Re: Chemo break due to covid-19 outbreak

jsbsf wrote:The oncologist assured him it would make no difference and would allow his immune system a better chance to repair itself


Here too - taking a two week Xeloda break to give my immune system a boost. I'm more afraid of COVID-19 than I am of the cancer.
by zephyr
Mon Mar 09, 2020 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU Tips?
Replies: 2
Views: 302

Re: 5FU Tips?

I'll give you the answer I gave my own father when he was going through chemo for lung cancer. See a naturopathic oncologist or an integrative medicine doctor to help control chemo side effects and strengthen your immune system. I think my naturopathic oncologist saved my life by leading me back off...
by zephyr
Wed Feb 26, 2020 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Medical intuitive
Replies: 2
Views: 458

Re: Medical intuitive

I haven't worked with a medical intuitive but if I were thinking about it, I would probably start with Carolyn Myss. She doesn't do private sessions anymore but she holds workshops and has some online resources. https://www.myss.com If you end up seeing someone, please check back and let us know abo...
by zephyr
Thu Feb 20, 2020 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: growing concerned about care
Replies: 5
Views: 583

Re: growing concerned about care

I don't want to give you potentially false hope but, in my experience, the term "inoperable" is one of those assessments that is date and place specific. By that I mean that on THIS date and at THIS location (state or cancer center or possibly country), you are inoperable. A month from now...
by zephyr
Thu Feb 20, 2020 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clot-Busting in Port?
Replies: 6
Views: 573

Re: Clot-Busting in Port?

I had a similar thing happen and they used some clot-busting tricks. As I recall, they injected heparin and maybe something else to dissolve the clot. It was pretty simple and it worked. That was about 2 years ago and I haven't had any problems since. My port is accessed at least 2 times every week ...
by zephyr
Thu Jan 30, 2020 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: whining...
Replies: 9
Views: 1349

Re: whining...

I think the risk of infection is pretty low but, that said, if I were in your shoes, I would go on the trip but take precautions, especially during this early period while they are trying to figure out how this corona virus thing will develop. Ask your oncologist or one of the chemo nurses to tell y...
by zephyr
Tue Jan 28, 2020 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mistletoe
Replies: 2
Views: 965

Re: Mistletoe

I've used it on and off for about 2 years. I quit using it for a few months while I was traveling for surgeries (too complicated for TSA, hospitals, etc.) and also for a while when my blood counts were holding strong and steady, but they're dropping again so I'm starting back on it this week. During...
by zephyr
Tue Dec 31, 2019 5:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member - scared & looking for tips
Replies: 35
Views: 3194

Re: New member - scared & looking for tips

Can’t seem to understand why the cancer didn’t show up on the scan but I’m supposed to trust the lymph nodes as unremarkable. My GI doc wanted me to have a follow-up colonoscopy one year after my surgery. For a variety of reasons I didn't get around to it until about 18 months later. When I saw him...
by zephyr
Tue Dec 31, 2019 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic: British Colombia Travel Question
Replies: 6
Views: 618

Re: Off Topic: British Colombia Travel Question

Whoa! I sent a long PM and it's ... gone. You didn't get it and it's not in my Sent folder or in Drafts. I know I'm not making this up, I wrote and sent it. My chemo brain is not THAT bad. I'll try again.
by zephyr
Sat Dec 28, 2019 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic: British Colombia Travel Question
Replies: 6
Views: 618

Re: Off Topic: British Colombia Travel Advice

rough and rugged ? off grid backcountry ? car and hotel ? guided tours ? all in one resorts ? Thank you for the links. I had found others but not as good as the ones you posted. Part of our problem was that we really didn't know what we wanted to do because we didn't know what was easily available....
by zephyr
Sat Dec 28, 2019 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic: British Colombia Travel Question
Replies: 6
Views: 618

Off Topic: British Colombia Travel Question

Carpe Diem is my New Year's Resolution. I have tried not to let CRC hold me back from making plans but, as we probably all have experienced, it doesn't always work out that way. For myself, how can you make vacation plans when you don't know what chemo you'll be on in 6 months or how you'll feel? Di...
by zephyr
Mon Dec 23, 2019 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I rang the bell today.
Replies: 16
Views: 2157

Re: I rang the bell today.

Congratulations and HAPPY NED NEW YEAR! I'm so happy for you.
by zephyr
Tue Dec 17, 2019 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Done SBRT to the Lung?
Replies: 7
Views: 624

Re: Anyone Done SBRT to the Lung?

I had 5 sessions to treat a nodule in my upper right lung. Easy peasy. It's been 6 months and so far, so good.

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