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by WarriorSpouse
Tue Feb 12, 2019 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 11
Views: 699

Re: Bad News

I am sorry to read your post. I know another thread currently on the board shows great results with Keytruda for similar diagnosis and potential recurrence. Read the posts and be armed with this information prior to your next Oncology visit. Keep up with the changes around us with things like Keytru...
by WarriorSpouse
Tue Feb 12, 2019 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Canadians and Immunotherapy
Replies: 4
Views: 252

Re: Canadians and Immunotherapy

https://www.fda.gov/Drugs/InformationOnDrugs/ApprovedDrugs/ucm577093.htm This is from the U.S. Food and Drug Administration. I hope by showing this, it can "prime the pump" for information that you are seeking in Canada. Together, the free world should be able to work in synergy on this is...
by WarriorSpouse
Fri Feb 08, 2019 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ops ! New lymph node
Replies: 4
Views: 409

Re: Ops ! New lymph node

I do not know much about cancer care in Turkey. I would go to your nearest cancer specialists and get a second opinion on the new lymph node involvement. Cancer centers in the USA have more experience with changing drug and treatment plans than most local hospital oncology departments. Let us know w...
by WarriorSpouse
Thu Feb 07, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ops ! New lymph node
Replies: 4
Views: 409

Re: Ops ! New lymph node

I am sorry to say, it does not sound normal. Any signs of mets or lymph node involvement will require you and your spouse to seek another professional opinion. Not certain where you live, but most here would suggest a second opinion from a major cancer center like Dana Farber / Boston; Sloan Ketteri...
by WarriorSpouse
Wed Jan 30, 2019 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: cancer cure?
Replies: 9
Views: 917

Re: cancer cure?

Always be skeptical, but never lose HOPE! Much of our current advancements in CRC treatments came from similar research and development. The more research done, the better the opportunity for cures and better outcomes. Let's hope it has a positive affect to some people here on this forum. I often wo...
by WarriorSpouse
Mon Dec 24, 2018 1:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Heart Is Gone
Replies: 17
Views: 2902

Re: My Heart Is Gone

I am sorry to hear of your loss. Many here appreciate you sharing your love, faith and family through the writings in your posts.
We are all with you in thoughts and prayers during this most difficult time.
With greatest felt sympathy,
WS
by WarriorSpouse
Thu Dec 20, 2018 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you know it was the end?
Replies: 8
Views: 2108

Re: How did you know it was the end?

Our thoughts and prayers are with you during this most difficult time... The entire CT community has your family in our thoughts.
God speed.
WS
by WarriorSpouse
Tue Dec 18, 2018 12:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you know it was the end?
Replies: 8
Views: 2108

Re: How did you know it was the end?

I am so saddened to be reading this.
Our thoughts and prayers are with you guys.
WS
by WarriorSpouse
Sat Dec 15, 2018 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 37
Views: 4444

Re: No longer NED - DEVASTATED

I love the purposeful effort...Go get it done! It is so empowering to witness others who take control of their own treatment plans and maintain control of their ship's direction. Being proactive and purposeful takes deliberate effort...I love witnessing this on this forum. Thank you for sharing. Wis...
by WarriorSpouse
Wed Dec 12, 2018 9:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 37
Views: 4444

Re: No longer NED - DEVASTATED

...It sounds like a great plan! Good luck and enjoy the sights of NYC together during the holidays as well. It is so beautiful down there this time of year. Go see the Radio City Show and/or catch a Broadway show while visiting there. I love NYC...Please keep us posted of your progress at MSK.
WS
by WarriorSpouse
Tue Dec 11, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 37
Views: 4444

Re: No longer NED - DEVASTATED

I am sorry to read this. I would be very disappointed with MGH too. Since you are close to Boston, why not go to Dana Farber for an aggressive treatment plan for the cancer reoccurrence and go to your MGH surgeon if there is surgery involved. My wife gets her treatment plan from Dana Farber and goes...
by WarriorSpouse
Sat Dec 08, 2018 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with peri mets who survived?
Replies: 21
Views: 4335

Re: Anyone with peri mets who survived?

I am sorry to read of your recent troubles. My wife has had great success with an aggressive 1st year chemo program with 5FU and Avastin; and then after becoming NED, using Zeloda and Avastin on a three week maintenance treatment schedule. She feels and looks great, and just needs to get a power nap...
by WarriorSpouse
Fri Dec 07, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 30
Views: 5948

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

Hey Opal, My wife has crossed the four year mark of NED status and is heading for year 5 now. After the first year of an aggressive treatment plan, her maintenance plan involves Zeloda pills (2 weeks on and one week off) and a visit to oncology every three weeks for an Avastin infusion. Her life is ...
by WarriorSpouse
Fri Dec 07, 2018 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I bought baby wipes and apple juice yesterday...
Replies: 9
Views: 901

Re: I bought baby wipes and apple juice yesterday...

Great photos and the umbrella straw is a nice touch too! Haha:)
Good luck in winning the contest!
WS
by WarriorSpouse
Thu Dec 06, 2018 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Im mentally breaking
Replies: 21
Views: 1473

Re: Im mentally breaking

Hey Trying, I am sorry to read of your recent troubles. I have worked and witnessed many in troubling times and have found that the following advice has helped, so I am passing it along. Life is a long race, so break each moment up into smaller pieces that are more manageable each day. As I tell my ...

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