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by WarriorSpouse
Mon Aug 12, 2019 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Off Label
Replies: 4
Views: 235

Re: Keytruda Off Label

Boxhill, Remember, Doctors have the ability to use off label based on their own training and experience. They can be the first one to off label use (FDA Approved Drugs) without others to follow. If Botox can be used to fight migraines, initially off label; Keytruda should be allowed if traditional m...
by WarriorSpouse
Fri Aug 02, 2019 11:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 20
Views: 1086

Re: Olymphians w/ surgery advice/experiences??

Siti, FYI, traditional Chemotherapy treatments, 5FU, Oxy, and Avasin treatments can work for several years for those inflicted with lymph node metastasis. If you are in the Netherlands, they surely have access to those treatments under your current healthcare plan. I would not suggest being a cash p...
by WarriorSpouse
Thu Aug 01, 2019 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life insurance, anyone?
Replies: 15
Views: 999

Re: Life insurance, anyone?

some employers have basic life insurance coverage as part of their compensation package. I know that the US Government employees can get spousal coverage and children coverage for nominal amounts. It will basically cover final expenses. Educational facilities / employers, private colleges and high s...
by WarriorSpouse
Thu Aug 01, 2019 12:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 20
Views: 1086

Re: Olymphians w/ surgery advice/experiences??

Hey Jep,
My wife is about to face the same issue with discussions for the removal of two para-aortic nodes. I will keep you posted on what we learn and what the experiences are. I will post here as we move forward.
Best wishes.
WS
by WarriorSpouse
Thu Jul 04, 2019 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 2406

Re: Bucket List

Pyro, Thank You for sharing and leading us all to a good and purposeful life. We may not be able to control the day we arrive or depart this great earth, but we do have control over how we all LIVE each day! I know the news is difficult, but as you know being a fighter jock, you can not control much...
by WarriorSpouse
Sun Jun 16, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things I should know about Avastin
Replies: 13
Views: 850

Re: Things I should know about Avastin

My wife has been on Avastin for about four in a half years. It works with little side effects. Runny nose is the only thing I have seen.
More importantly, It is not chemotherapy. The role of the drug is to take oxygen away from the cancer cells so they do not grow.
Good Luck!
WS
by WarriorSpouse
Thu Jun 13, 2019 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on attending a funeral?
Replies: 10
Views: 748

Re: Thoughts on attending a funeral?

I am sorry to read of your conflict... I understand that many here have never contemplated death until their own mortality came into play with a serious diagnosis and difficult treatments, but remember none of us are going to live forever. Heart attacks, traffic accidents, crimes of violence, and he...
by WarriorSpouse
Wed Jun 12, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone done oxiplatin twice?
Replies: 3
Views: 495

Re: Anyone done oxiplatin twice?

My wife took it after recurrence after 4 years of NED. It is doing the job and shrinking new growth. It is not an easy drug to take, I know. She is happy to keep taking it as long as it is showing progress working again. On treatment day she naps, but the following days are progressively better and ...
by WarriorSpouse
Wed Jun 05, 2019 12:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA helping cancer patients
Replies: 4
Views: 486

Re: FDA helping cancer patients

Thank you for sharing Martd! I am happy to see this and expect things that have been recently successful to some, such as Keytruda, being available to many outside of the current norm, hopefully. Drug companies have a due diligence requirement to sell and distribute things that will help and not har...
by WarriorSpouse
Sun Jun 02, 2019 12:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1478

Re: Laid off before Dx

I checked the Social Security Webpage today. It is called "Compassionate Allowance."
Here is a link to the requirements. Good luck with the process going forward.
https://secure.ssa.gov/apps10/poms.nsf/lnx/0423022215
WS
by WarriorSpouse
Fri May 31, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1478

Re: Laid off before Dx

I agree with most of what was already said here. The ACA plan will be much cheaper if your income level allows for the subsidies. Many local hospitals are directly affiliated with the large hospitals on the northern east coast in Boston, NYC and Baltimore. I am not certain where you live though. Exc...
by WarriorSpouse
Sun May 26, 2019 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible lymph node metastasis
Replies: 15
Views: 1678

Re: Possible lymph node metastasis

Genetic testing is a must, especially if you have children. This can help identify if they are at increased risk as they age. Also, some CRC respond exceptionally well to new biological drugs that look for unique genetic characteristics. These drugs are not chemotherapy and are very tolerable to the...
by WarriorSpouse
Tue May 14, 2019 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified new member from UK...joined today.
Replies: 12
Views: 1107

Re: Terrified new member from UK...joined today.

Best wishes moving forward. We are here for you when questions come up along the way.
WS
by WarriorSpouse
Tue May 14, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible lymph node metastasis
Replies: 15
Views: 1678

Re: Possible lymph node metastasis

Welcome to Colon Talk. There are many here with good advice and as stated previously, you can always use the search tool to read prior discussions such as "Olymphians," hospitals, and treatment plans. Many here always suggest seeking a consultation with a major cancer center such as Dana F...
by WarriorSpouse
Sat May 11, 2019 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CBD and/or Cannabis oil
Replies: 6
Views: 623

Re: CBD and/or Cannabis oil

I have heard that a Doctor's prescription of Marinol will provide the same benefits with the protections of the FDA approved supply chain. Unless the State that you live in has superb oversight over the new marijuana industry, the FDA is not operating in that lane, and therefore I would not trust wh...

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