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by WarriorSpouse
Wed Sep 23, 2020 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3796

Re: Blood clots and low oxygen and hospice OH MY

Dear Mohrfamily, I am sorry to read here what you have recently been through and your loss. You know that you are among friends here who know what you've been through as a supportive spouse and caretaker. This forum has been great for both patient and caregiver, because it allows us to see that we a...
by WarriorSpouse
Wed Sep 23, 2020 9:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 21
Views: 1534

Re: To my CC family

I have not logged in for a bit due to Covid19, work and kid priorities. I am sorry to read of your loss Jepp, We all know this disease is brutal, but at least here we are among friends who have encountered similar circumstances and hardships. You were not alone in your husband's fight or in your fam...
by WarriorSpouse
Thu Jul 02, 2020 1:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!
Replies: 12
Views: 1840

Re: FDA Approved Keytruda for MSS Tumors w/ TMB of 10+!!!

Great news Cynthia! Thank You for sharing this with us. I am glad it is working well for you.
All the best!
WS
by WarriorSpouse
Thu May 28, 2020 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maintenance Chemo Questions
Replies: 5
Views: 1232

Re: Maintenance Chemo Questions

Hey Tater, Sorry for the delay in response. I have not been reading these posts as much recently. My wife has been on maintenance chemo a couple of times during her journey. Side effects of Zeloda pills are different for each patient, but my wife has stronger hand and foot issues on these pills. Wha...
by WarriorSpouse
Sun May 24, 2020 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Club mentioned in the Miami Herald
Replies: 3
Views: 740

Re: Colon Club mentioned in the Miami Herald

Thank you for sharing Grouseman. I hope you are doing well.
by WarriorSpouse
Mon Apr 06, 2020 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scary times . . .
Replies: 74
Views: 13835

Re: Scary times . . .

https://clinicaltrials.gov/ct2/show/NCT04275414 A clinical trial of Avastin is currently being used for off label Coronavirus treatments. For once, cancer patients using Avastin may be the reason why some patients are doing well, considering the circumstances of this current pandemic. I hope all are...
by WarriorSpouse
Wed Feb 19, 2020 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hope vs reality
Replies: 9
Views: 1877

Re: Hope vs reality

At the time of my wife's diagnosis, she was given a 12% chance of survival... Many with her condition passed within 6 months to a year. At that point I began to advocate the 50% rule to put statistics in her favor. The treatments will either prolong life or they won't (50/50); and the next surgery w...
by WarriorSpouse
Fri Feb 14, 2020 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 for 4 years, looking for advice
Replies: 17
Views: 2993

Re: Stage 4 for 4 years, looking for advice

Hey Michelle, Great question and thread for conversation. My wife has CRC lymph node metastasis and initially followed the "Cairo Study" plan after a year of Chemo and Avastin treatments. She went on Zeloda (pills) and Avastin maintenance chemo for three years, but had recurrence and neede...
by WarriorSpouse
Tue Feb 11, 2020 12:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT Side Effects?
Replies: 1
Views: 544

Re: SBRT Side Effects?

Hey James, My wife recently had SBRT on two para-aortic nodes and complained about similar pain in the treatment area and being tired. Remember, it is a treatment and it does cause the fight inside of your cells within your body. Inflammation at the site of the SBRT is normal, which is why they post...
by WarriorSpouse
Wed Jan 29, 2020 1:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years since diagnosed
Replies: 19
Views: 4684

Re: 10 years since diagnosed

Excellent News! Thank You for sharing.
WS
by WarriorSpouse
Tue Jan 07, 2020 2:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 3306

Re: 7 Year cancerversary

I always love to read these:) Congratulations and thank you for sharing the great news!
WS
by WarriorSpouse
Tue Jan 07, 2020 2:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccurance Questions/Help
Replies: 7
Views: 1680

Re: Reoccurance Questions/Help

Bumping-up to hear an update or any other suggestions for cancer centers in northern Utah.
WS
by WarriorSpouse
Wed Jan 01, 2020 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccurance Questions/Help
Replies: 7
Views: 1680

Re: Reoccurance Questions/Help

Anyone here on Colon Talk, from Northern Utah, that has a suggestion for a major cancer care provider.
WS
by WarriorSpouse
Wed Jan 01, 2020 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2020, the decade of...
Replies: 2
Views: 579

Re: 2020, the decade of...

Great things are happening in 2020! All the best to those on the cure for cancer journey today and into the New Year! Collaboration among research, cancer care providers, and private sector manufacturing will hopefully create new breakthroughs in 2020 for all to benefit. All the best to those making...
by WarriorSpouse
Sat Dec 14, 2019 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 6765

Re: Para-aortic node recurrence

I agree with AT's position on this too... Proper scanning schedule, including PET scans are important on being successful in fighting off active PALN issues. About a year ago my wife had PALN recurrence, but going back on her initial treatment plan, as well as some SBRT radiation, it appears to be d...

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