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by WarriorSpouse
Mon Sep 16, 2019 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guess who was told she's NED??
Replies: 33
Views: 1969

Re: Guess who was told she's NED??

It is always good to read good news here.
Congratulations!
WS
by WarriorSpouse
Mon Sep 16, 2019 10:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance denied husband’s genomic testing
Replies: 14
Views: 665

Re: Insurance denied husband’s genomic testing

Many Oncology sections have Nurse advocates that can help mitigate such insurance road blocks. Keep asking, appealing and getting professional referrals. Nothing is easy in this fight, but so many treatment options can opened-up for patients with special genetic profiles. Genetic testing is the key ...
by WarriorSpouse
Mon Sep 16, 2019 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: can you stay in oxaliplatin ?
Replies: 4
Views: 414

Re: can you stay in oxaliplatin ?

I am sorry to read what you guys are going through. Many here have used Oxaliplatin on various occasions beyond their initial treatment. I believe the side effects are strong concerning neuropathy with Oxaliplatin, and breaks are part of the normal treatment approach. It is definitely not considered...
by WarriorSpouse
Tue Sep 03, 2019 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T : I wish Brownbagger were here
Replies: 12
Views: 995

Re: O/T : I wish Brownbagger were here

What a wonderful reflection CRguy. As you do often, your comments tie the past to the present very well. BrownBagger was always an inspiration to read and witness here. There are many others too, who I leaned so much from by reviewing their personal journeys and posts. This blog is a gift to all and...
by WarriorSpouse
Thu Aug 22, 2019 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 16
Views: 2617

Re: Phuong is the new ColonClub President !

Thank You for serving Phuong!
This is the best place to hang with strangers who know exactly what is happening in your life.
Thanks for hosting this forum for all to share.
WS
by WarriorSpouse
Sun Aug 18, 2019 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid + Distant Lymph Nodes
Replies: 11
Views: 822

Re: Sigmoid + Distant Lymph Nodes

Best wishes this week Jep. I hope that they are successful on getting what they are looking for. WS Siti, ...As for do we have a normal life? Remember, once cancer enters a family's life, we all adjust to the "new normal" and appreciate each day. Life will never be the same like we were 20...
by WarriorSpouse
Sun Aug 18, 2019 1:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid + Distant Lymph Nodes
Replies: 11
Views: 822

Re: Sigmoid + Distant Lymph Nodes

Genetic testing was inconclusive at this time. Maybe we will find out more at a later date. If you live in the Netherlands you should have access to adequate and professional care. Go to your local cancer center and they should be well aware of what the treatment protocols are for this type of Metas...
by WarriorSpouse
Sat Aug 17, 2019 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid + Distant Lymph Nodes
Replies: 11
Views: 822

Re: Sigmoid + Distant Lymph Nodes

I am sorry to read this. This is the exact same progression as my wife, beginning in the fall of 2014. She had an aggressive treatment plan established by Dana Farber in Boston, MA. One full year of 5FU and Avastin with about 3/4 months or Oxy until neuropathy stopped it. She was then on maintenance...
by WarriorSpouse
Mon Aug 12, 2019 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Off Label
Replies: 4
Views: 515

Re: Keytruda Off Label

Boxhill, Remember, Doctors have the ability to use off label based on their own training and experience. They can be the first one to off label use (FDA Approved Drugs) without others to follow. If Botox can be used to fight migraines, initially off label; Keytruda should be allowed if traditional m...
by WarriorSpouse
Fri Aug 02, 2019 11:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 33
Views: 2957

Re: Olymphians w/ surgery advice/experiences??

Siti, FYI, traditional Chemotherapy treatments, 5FU, Oxy, and Avasin treatments can work for several years for those inflicted with lymph node metastasis. If you are in the Netherlands, they surely have access to those treatments under your current healthcare plan. I would not suggest being a cash p...
by WarriorSpouse
Thu Aug 01, 2019 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life insurance, anyone?
Replies: 15
Views: 1476

Re: Life insurance, anyone?

some employers have basic life insurance coverage as part of their compensation package. I know that the US Government employees can get spousal coverage and children coverage for nominal amounts. It will basically cover final expenses. Educational facilities / employers, private colleges and high s...
by WarriorSpouse
Thu Aug 01, 2019 12:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Olymphians w/ surgery advice/experiences??
Replies: 33
Views: 2957

Re: Olymphians w/ surgery advice/experiences??

Hey Jep,
My wife is about to face the same issue with discussions for the removal of two para-aortic nodes. I will keep you posted on what we learn and what the experiences are. I will post here as we move forward.
Best wishes.
WS
by WarriorSpouse
Thu Jul 04, 2019 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 3198

Re: Bucket List

Pyro, Thank You for sharing and leading us all to a good and purposeful life. We may not be able to control the day we arrive or depart this great earth, but we do have control over how we all LIVE each day! I know the news is difficult, but as you know being a fighter jock, you can not control much...
by WarriorSpouse
Sun Jun 16, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things I should know about Avastin
Replies: 13
Views: 1146

Re: Things I should know about Avastin

My wife has been on Avastin for about four in a half years. It works with little side effects. Runny nose is the only thing I have seen.
More importantly, It is not chemotherapy. The role of the drug is to take oxygen away from the cancer cells so they do not grow.
Good Luck!
WS
by WarriorSpouse
Thu Jun 13, 2019 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on attending a funeral?
Replies: 10
Views: 935

Re: Thoughts on attending a funeral?

I am sorry to read of your conflict... I understand that many here have never contemplated death until their own mortality came into play with a serious diagnosis and difficult treatments, but remember none of us are going to live forever. Heart attacks, traffic accidents, crimes of violence, and he...

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