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by WarriorSpouse
Tue Jan 07, 2020 2:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 2274

Re: 7 Year cancerversary

I always love to read these:) Congratulations and thank you for sharing the great news!
WS
by WarriorSpouse
Tue Jan 07, 2020 2:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccurance Questions/Help
Replies: 7
Views: 1087

Re: Reoccurance Questions/Help

Bumping-up to hear an update or any other suggestions for cancer centers in northern Utah.
WS
by WarriorSpouse
Wed Jan 01, 2020 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccurance Questions/Help
Replies: 7
Views: 1087

Re: Reoccurance Questions/Help

Anyone here on Colon Talk, from Northern Utah, that has a suggestion for a major cancer care provider.
WS
by WarriorSpouse
Wed Jan 01, 2020 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2020, the decade of...
Replies: 2
Views: 309

Re: 2020, the decade of...

Great things are happening in 2020! All the best to those on the cure for cancer journey today and into the New Year! Collaboration among research, cancer care providers, and private sector manufacturing will hopefully create new breakthroughs in 2020 for all to benefit. All the best to those making...
by WarriorSpouse
Sat Dec 14, 2019 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 27
Views: 5602

Re: Para-aortic node recurrence

I agree with AT's position on this too... Proper scanning schedule, including PET scans are important on being successful in fighting off active PALN issues. About a year ago my wife had PALN recurrence, but going back on her initial treatment plan, as well as some SBRT radiation, it appears to be d...
by WarriorSpouse
Wed Nov 27, 2019 2:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccurance Questions/Help
Replies: 7
Views: 1087

Re: Reoccurance Questions/Help

Hey Tater, I am sorry to read of what you guys are going through. It definitely sounds like a unique situation, one I have not read about often on this blog. The only suggestion I have is to seek an opinion from a major cancer center. Not sure where you guys are located and how close they are to you...
by WarriorSpouse
Mon Nov 04, 2019 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years of survival today
Replies: 17
Views: 1036

Re: Celebrating 10 years of survival today

That is great news! Thank you for coming back and sharing. We are all catching up:)
WS
by WarriorSpouse
Tue Oct 29, 2019 12:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive peri met stories please
Replies: 9
Views: 725

Re: Positive peri met stories please

Lymph node metastasis affects a smaller amount of CRC patients. I want to say about 12% of the cases You can read of other's experiences from past posts by using the search tool under quick links on the top left of the screen. Many have referred themselves as "lymphonians", I believe. Twea...
by WarriorSpouse
Mon Oct 28, 2019 11:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More chemo after a solitary lung met?
Replies: 13
Views: 1079

Re: More chemo after a solitary lung met?

My wife has gone back to her original treatment after a few years of maintenance chemo, and it has appeared to work in some regard. She has also used SBRT to attack two specific para-aortic nodes. We will know more if the SBRT has worked after the holidays and her next PET scan. Everyone is differen...
by WarriorSpouse
Sat Oct 26, 2019 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive peri met stories please
Replies: 9
Views: 725

Re: Positive peri met stories please

My wife is still going five years into a Stage IV diagnosis with peri-mets. Stay on top of it. Visit a major cancer center for guidance and proper protocols based on recent science, evidence and practices. Make sure you have an advocate by your side keeping track of your treatments and keeping up wi...
by WarriorSpouse
Mon Sep 16, 2019 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Guess who was told she's NED??
Replies: 33
Views: 2525

Re: Guess who was told she's NED??

It is always good to read good news here.
Congratulations!
WS
by WarriorSpouse
Mon Sep 16, 2019 10:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance denied husband’s genomic testing
Replies: 14
Views: 862

Re: Insurance denied husband’s genomic testing

Many Oncology sections have Nurse advocates that can help mitigate such insurance road blocks. Keep asking, appealing and getting professional referrals. Nothing is easy in this fight, but so many treatment options can opened-up for patients with special genetic profiles. Genetic testing is the key ...
by WarriorSpouse
Mon Sep 16, 2019 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: can you stay in oxaliplatin ?
Replies: 4
Views: 541

Re: can you stay in oxaliplatin ?

I am sorry to read what you guys are going through. Many here have used Oxaliplatin on various occasions beyond their initial treatment. I believe the side effects are strong concerning neuropathy with Oxaliplatin, and breaks are part of the normal treatment approach. It is definitely not considered...
by WarriorSpouse
Tue Sep 03, 2019 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T : I wish Brownbagger were here
Replies: 12
Views: 1226

Re: O/T : I wish Brownbagger were here

What a wonderful reflection CRguy. As you do often, your comments tie the past to the present very well. BrownBagger was always an inspiration to read and witness here. There are many others too, who I leaned so much from by reviewing their personal journeys and posts. This blog is a gift to all and...
by WarriorSpouse
Thu Aug 22, 2019 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 19
Views: 5607

Re: Phuong is the new ColonClub President !

Thank You for serving Phuong!
This is the best place to hang with strangers who know exactly what is happening in your life.
Thanks for hosting this forum for all to share.
WS

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