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by WarriorSpouse
Sat Oct 13, 2018 12:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stay local or travel for Surgeon?
Replies: 13
Views: 359

Re: Stay local or travel for Surgeon?

If you are going to travel anyway, why not go to NYC. Hopefully others will chime in from the west coast too. Maybe there is someone out there from a major cancer center. I would assume CA has specialists closer to you. I know that Dana Farber in Boston, MA has an agreement with some local long stay...
by WarriorSpouse
Fri Oct 12, 2018 8:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 15
Views: 487

Re: Internal Iliac Node involvement??

Sorry to read of what you are going through. There are many here with lymphatic Stage IV treatment plans. You should use your search tool under "Quick Links" to learn from them. If possible get a second opinion from a major cancer center and do not be afraid of an aggressive treatment plan...
by WarriorSpouse
Sun Oct 07, 2018 8:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Hope
Replies: 16
Views: 1008

Re: Stage 4 Hope

Great news Stu!
It is always good to read such great news on the Colon Talk community forum.
America sends your Mum warm thoughts and heartfelt wishes for continued good health and success!
WS
by WarriorSpouse
Sat Sep 29, 2018 7:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 28
Views: 7058

Re: MSI or MSS

Thank you for the kind words Stu.
Here are more links on the Cairo3 CRC Study.

https://www.karger.com/Article/FullText/453027
2016 article

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5844763/
2018 article

Keep moving FORWARD! :)
WS
by WarriorSpouse
Fri Sep 28, 2018 6:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 28
Views: 7058

Re: MSI or MSS

Stu, Thank you for drawing attention to this issue both in the UK and around the world on this forum. Many in the world can not put a face on the consequence of the State deciding who they will support with best treatment practices based on a cost a benefit analysis matrix. It may be a good fiscal a...
by WarriorSpouse
Wed Sep 26, 2018 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 28
Views: 7058

Re: MSI or MSS

https://www.ncbi.nlm.nih.gov/pubmed/25862517 "Maintenance treatment with capecitabine and bevacizumab in metastatic colorectal cancer (CAIRO3): a phase 3 randomised controlled trial of the Dutch Colorectal Cancer Group... BACKGROUND: The optimum duration of first-line treatment with chemotherap...
by WarriorSpouse
Wed Sep 26, 2018 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin
Replies: 6
Views: 755

Re: Aspirin

Thank you for sharing. Not only is Aspirin good to prevent CRC, it is good to help prevent strokes and heart attacks according to the American Heart Association. All should consult with their doctors before taking this action.
WS
by WarriorSpouse
Tue Sep 25, 2018 6:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 28
Views: 7058

Re: MSI or MSS

Stu, My observation of the UK's NHS is that most of their decisions are based on cost benefit analysis as opposed to the American Cancer Center's problem solving analysis. I do not know the NHS like someone who lives in the UK, but I have witnessed that important drugs like Avastin are no longer cov...
by WarriorSpouse
Fri Sep 21, 2018 6:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 14
Views: 1286

Re: 2 swollen nodes in abdomen...

Sorry to read this Jep. I would suggest getting the PET scan as directed and taking the results to a major cancer center near your home. Dana Farber (Boston), Sloan Kettering (NYC), or MD Andeson (Houston). The large centers see more and support aggressive treatment plans. Much has changed in the us...
by WarriorSpouse
Wed Sep 12, 2018 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - ritz75
Replies: 15
Views: 5101

Re: Nik Colon - ritz75

I am saddened to read this. I know that she had difficulty and stopped communicating on the public forum. I hope that some of what has been written here has helped her along the way. Sometimes people are quite, but participate by reading and relating to other's experiences. If you can share, please ...
by WarriorSpouse
Wed Sep 12, 2018 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hernia? Nope, looks like cancer is back
Replies: 6
Views: 743

Re: Hernia? Nope, looks like cancer is back

I am sorry to read this fluff. Reoccurrence is something nobody wants hear on this forum. Much like your initial diagnosis, buckle down and get ready to fight again. Your oncologist will dictate the plan and my recommendation would be to make sure you visit your closest major cancer center to make s...
by WarriorSpouse
Sun Sep 09, 2018 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 47
Views: 13077

Re: Bev G

I am saddened to read of the loss of Bev G. She was wonderful making people feel comfortable living with the new normal of cancer. If my memory is correct, she had other health issues prior to being diagnosed with cancer. Her life lived as a long term Stage IV survivor is one that many here should u...
by WarriorSpouse
Tue Sep 04, 2018 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Heart murmur...possible side effect folfiri avistin??
Replies: 2
Views: 263

Re: Heart murmur...possible side effect folfiri avistin??

Interesting question. No experience on my wife's front, but I will share if something like this comes up. Please keep us posted and our thoughts are with you as you seek answers along the way. I hope you are feeling better soon.
WS
by WarriorSpouse
Sun Sep 02, 2018 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 16
Views: 3733

Re: DH had surgery consult yesterday for para aortic nodes

Sorry to read of the reoccurrence. My wife found that 5FU and Avastin took care of her para-aortic lymph nodes without surgery. PET Scans determined this to put her at NED in 2015. I think once the disease progressed outside of regional lymph nodes it would be correctly staged at IV. This may be ben...
by WarriorSpouse
Sun Aug 26, 2018 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety Part 1000
Replies: 18
Views: 4849

Re: Scanxiety Part 1000

Welcome. We are sorry that circumstances have brought you here, but this is a great place to understand the new normal your Mum is about to experience. Like Stu, we are all here under similar circumstances and are walking the same path. Together we are all learning from each other's treatments and e...

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