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by WarriorSpouse
Sun Jun 16, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things I should know about Avastin
Replies: 13
Views: 565

Re: Things I should know about Avastin

My wife has been on Avastin for about four in a half years. It works with little side effects. Runny nose is the only thing I have seen.
More importantly, It is not chemotherapy. The role of the drug is to take oxygen away from the cancer cells so they do not grow.
Good Luck!
WS
by WarriorSpouse
Thu Jun 13, 2019 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on attending a funeral?
Replies: 10
Views: 554

Re: Thoughts on attending a funeral?

I am sorry to read of your conflict... I understand that many here have never contemplated death until their own mortality came into play with a serious diagnosis and difficult treatments, but remember none of us are going to live forever. Heart attacks, traffic accidents, crimes of violence, and he...
by WarriorSpouse
Wed Jun 12, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone done oxiplatin twice?
Replies: 3
Views: 311

Re: Anyone done oxiplatin twice?

My wife took it after recurrence after 4 years of NED. It is doing the job and shrinking new growth. It is not an easy drug to take, I know. She is happy to keep taking it as long as it is showing progress working again. On treatment day she naps, but the following days are progressively better and ...
by WarriorSpouse
Wed Jun 05, 2019 12:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FDA helping cancer patients
Replies: 4
Views: 329

Re: FDA helping cancer patients

Thank you for sharing Martd! I am happy to see this and expect things that have been recently successful to some, such as Keytruda, being available to many outside of the current norm, hopefully. Drug companies have a due diligence requirement to sell and distribute things that will help and not har...
by WarriorSpouse
Sun Jun 02, 2019 12:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1187

Re: Laid off before Dx

I checked the Social Security Webpage today. It is called "Compassionate Allowance."
Here is a link to the requirements. Good luck with the process going forward.
https://secure.ssa.gov/apps10/poms.nsf/lnx/0423022215
WS
by WarriorSpouse
Fri May 31, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1187

Re: Laid off before Dx

I agree with most of what was already said here. The ACA plan will be much cheaper if your income level allows for the subsidies. Many local hospitals are directly affiliated with the large hospitals on the northern east coast in Boston, NYC and Baltimore. I am not certain where you live though. Exc...
by WarriorSpouse
Sun May 26, 2019 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible lymph node metastasis
Replies: 15
Views: 1358

Re: Possible lymph node metastasis

Genetic testing is a must, especially if you have children. This can help identify if they are at increased risk as they age. Also, some CRC respond exceptionally well to new biological drugs that look for unique genetic characteristics. These drugs are not chemotherapy and are very tolerable to the...
by WarriorSpouse
Tue May 14, 2019 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified new member from UK...joined today.
Replies: 12
Views: 923

Re: Terrified new member from UK...joined today.

Best wishes moving forward. We are here for you when questions come up along the way.
WS
by WarriorSpouse
Tue May 14, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible lymph node metastasis
Replies: 15
Views: 1358

Re: Possible lymph node metastasis

Welcome to Colon Talk. There are many here with good advice and as stated previously, you can always use the search tool to read prior discussions such as "Olymphians," hospitals, and treatment plans. Many here always suggest seeking a consultation with a major cancer center such as Dana F...
by WarriorSpouse
Sat May 11, 2019 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CBD and/or Cannabis oil
Replies: 6
Views: 493

Re: CBD and/or Cannabis oil

I have heard that a Doctor's prescription of Marinol will provide the same benefits with the protections of the FDA approved supply chain. Unless the State that you live in has superb oversight over the new marijuana industry, the FDA is not operating in that lane, and therefore I would not trust wh...
by WarriorSpouse
Sat May 11, 2019 12:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence - The Longest Month
Replies: 10
Views: 906

Re: Recurrence - The Longest Month

I am sorry to read of your recurrence. Going to Dan Farber and MSK in NYC are great opportunities for progress back to NED. I noticed that your footer does not reflect taking Oxyplatin, Avasitin or other drugs commonly mentioned on this blog. It would appear that you have many more options, dependin...
by WarriorSpouse
Wed Apr 24, 2019 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News!
Replies: 7
Views: 780

Re: Good News!

Excellent news!
WS
by WarriorSpouse
Sat Apr 06, 2019 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years
Replies: 7
Views: 695

Re: 5 years

Excellent news!
Thank you for sharing and many more years to come:)
WS
by WarriorSpouse
Thu Apr 04, 2019 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My husband has passed
Replies: 22
Views: 2335

Re: My husband has passed

My thoughts and prayers are with you and your family.
WS
by WarriorSpouse
Tue Mar 26, 2019 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of you AmyG
Replies: 26
Views: 2035

Re: Thinking of you AmyG

Great news Amy G. Thank you for sharing it with us!
I love babies and large families too. It is so wonderful to read of your good news and to see everyone here enjoy it as well.
Congratulations!
WS

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