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by Writingdoc2
Wed Oct 10, 2018 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Friends, i am struggling, news of cancer are awful
Replies: 13
Views: 1405

Re: Friends, i am struggling, news of cancer are awful

You might want to consult with some well known HIPEC surgeons to get advice on next steps. I know that both Sugarbaker and Sardi will review files remotely to see if they might be able to help you. I've had two HIPEC surgeries and am doing very well. There's always hope!
by Writingdoc2
Thu Mar 29, 2018 7:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 10419

Re: Scanxiety: Anyone else having testing now?

I never had scanxiety until recently. I had a CT scan last week. My oncologist called me yesterday to tell me that my thymus is enlarged and she wants me to go for a PET scan. I'm nervous as hell about the PET scan. You might have thymic rebound which can occur after chemo...it can light up on PET,...
by Writingdoc2
Wed Jan 17, 2018 11:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enlarged Lymph Nodes on 6 Month CT
Replies: 3
Views: 738

Re: Enlarged Lymph Nodes on 6 Month CT

I had some prominent lymph nodes around my surgical sites for about 8 months following my HIPEC surgery. They were reactive, not cancerous.
by Writingdoc2
Thu Dec 14, 2017 9:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS and Nivolumab (Opdivo)
Replies: 9
Views: 1272

Re: MSS and Nivolumab (Opdivo)

No I haven’t but I’m in Canada and not sure that my province would cover that? But I am meeting with my first hipec surgeon on Jan 8 for him to reconsider his position of no second hipec that he made after my hipec recurrence with lymph nodes. Hi Steph, Have you ever consulted with Dr. Sugarbaker? ...
by Writingdoc2
Sat Dec 09, 2017 10:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS and Nivolumab (Opdivo)
Replies: 9
Views: 1272

Re: MSS and Nivolumab (Opdivo)

Hi Steph,

Have you ever consulted with Dr. Sugarbaker? I know he did a second HIPEC operation on someone with lymph node involvement. I just had a second HIPEC with him although I had no lymph node involvement. It might be worth a shot to contact him. He is very responsive!
by Writingdoc2
Mon Nov 06, 2017 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3602

Re: Peri mets, Stage IV --- Need advice

AJ, If you're willing to travel for surgery, I would highly recommend calling Dr. Paul Sugarbaker's office (Google Sugarbaker Oncology) in DC. He will review your scans/records from afar and if he thinks you're a candidate, you will fly out for a consultation and then surgery. He's a pioneer in perf...
by Writingdoc2
Mon Nov 06, 2017 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain near belly button -- umbilical hernia?
Replies: 8
Views: 1522

Re: Pain near belly button -- umbilical hernia?

It could very well be a hernia, but I also had a small tumor in my abdominal wall present with a feeling like a pulled muscle about an inch near my belly button. If you are worried, an ultrasound is a good tool to see what's going on.
by Writingdoc2
Sun Oct 08, 2017 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Omentum seeding or Drop metastasis
Replies: 6
Views: 842

Re: Omentum seeding or Drop metastasis

Hi Robin, I agree with Lee that it's often necessary to interview surgeons rather than oncs when it comes to HIPEC. If you're located in Pennsylvania, I would recommend talking to Dr. Bartlett. He is an experienced HIPEC surgeon and it appears he offers free phone consultations which is wonderful. h...

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