Search found 19 matches

Go to advanced search

by Tupelo honey
Fri Apr 06, 2018 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tagamet and MCP
Replies: 5
Views: 639

Re: Tagamet and MCP

Eleda wrote:Is anybody taking Tagmet ( cemitadine ) and modified citrus pectin prior and after surgery to avoid surgery induced metastasis???


I used both. So far, so good.
by Tupelo honey
Thu Oct 12, 2017 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doctors disagree on rectal cancer treatment
Replies: 10
Views: 983

Re: Doctors disagree on rectal cancer treatment

If I could change one thing about my treatment, it would be to have xelox sooner. I was (am?) seriously worried about the fact that between diagnosis in Sept 2015 and surgery in March 2016, absolutely nothing was officially done to address biopsy-related or natural metastasis. Yes, I took Xeloda dur...
by Tupelo honey
Thu Oct 12, 2017 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 90
Views: 8890

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

I did not recall Acetyl L Carnitine being an antioxidant; and just checked. I do not find that it is.... Alpha lipoic acid is, which I did not take. I was a bit more concerned about the calcium magnesium combo, as it's been a little controversial. It used to be a standard part of treatment based on ...
by Tupelo honey
Thu Oct 12, 2017 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 90
Views: 8890

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

Thanks, CRguy. Tupelo honey, Did you speak to your oncologist about the l-carnitine supplements? I am wondering because I am reading about Acetyl l-carnitine (this appears to be the recommended form for neuropathy, not the l-carnitine form) and it's an antioxidant that increases ADP production. I'v...
by Tupelo honey
Sun Oct 08, 2017 1:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 90
Views: 8890

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

I didn't see half of these messages yesterday for some reason. Tupelo honey, what supplements did you take? I saw your comments a while back on the What Supplements Do You Take? thread but I would really appreciate it if you could repeat here. Thanks! I know it's been officially discounted for a lo...
by Tupelo honey
Sat Oct 07, 2017 4:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 90
Views: 8890

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(15)00018-2/fulltext This one seems to be fairly recent. Although the article itself was a bit equivocal regarding gains vs possible side effects, what I was after was this: "...At 3 years, the absolute gain in the primary trial endp...
by Tupelo honey
Fri Oct 06, 2017 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 90
Views: 8890

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

And don't forget Oxi may not be as bad as he's dreading. While I did have some temporary effects during treatment, and some mild numbness of fingertips and crampy toes from appx 2- 5 months after treatment, I did complete the full course of Oxi with no permanant side effects.
by Tupelo honey
Mon Jul 31, 2017 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 30-40 Grams of Fiber Per Day !!!
Replies: 9
Views: 1180

Re: 30-40 Grams of Fiber Per Day !!!

I use Nopalina, a fiber mix one of my coworkers has taken for years. I used to be afraid of fiber, convinced it would constipate me after a bad experience with Metamucil and inadequate fluid intake years ago. I tend toward constipation these days since I take immodium every morning to keep my spazzy...
by Tupelo honey
Fri Jul 21, 2017 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To port or not for Oxi
Replies: 20
Views: 5248

Re: To port or not for Oxi

I did 6 rounds of oxaliplatin without a port. We decided that if I had to do more we would get a port. My only side effect from IV oxy was a stiff, tingly arm after infusion - only lasted a few days and didn't hinder my daily life. Remember , you can always start with IV and switch to a port if you...
by Tupelo honey
Mon Jul 17, 2017 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Results - More Cancer???
Replies: 62
Views: 15451

Re: PET Scan Results - More Cancer???

Just curious: since he is currently post surgical, do you have him on the cimetidine and / or modified citrus pectin to reduce chances of post surgical metasis?
by Tupelo honey
Mon Jul 17, 2017 6:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Results - More Cancer???
Replies: 62
Views: 15451

Re: PET Scan Results - More Cancer???

I took glutamine(15-30 grams/day) l-carnitine(1000 -2000mg) , plus oral magnesium (1gram) and calcium (1 gram) the day of chemo (and for 5 days after chemo on the glutamine and l-carnitine). Plus 100 mg B-6 daily throughout. I was able to complete the entire course of chemo with full oxi dose withou...
by Tupelo honey
Fri Jul 07, 2017 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Results - More Cancer???
Replies: 62
Views: 15451

Re: PET Scan Results - More Cancer???

I did take all my rounds of Oxi through the veins as I did not want a port. It did burn for a day or two afterwards each time but is definitely doable.
by Tupelo honey
Wed Apr 05, 2017 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is bowel regularity possible after reversal?
Replies: 15
Views: 3523

Re: Is bowel regularity possible after reversal?

Just over a year out from surgery and although I do have a routine, I can lead a pretty normal life: work full time, travel, shop, etc. I take two immodium and 1 Tylenol with codeine 300-30 every morning around 8:45 am. (The codeine is for the radiation proctitis- I have discomfort without it but th...
by Tupelo honey
Wed Sep 28, 2016 3:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda and Bleeding
Replies: 7
Views: 950

Re: Xeloda and Bleeding

Thank you for everyone's replies. I currently am taking no supplements beyond my normal prescriptions. I do go to Simmons Cancer Center at UTSW in Dallas and the pharmacist at the hospital has been helpful several times. As an update, I went to see my radiation doc last week after the diagnosis of r...
by Tupelo honey
Wed Sep 21, 2016 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda and Bleeding
Replies: 7
Views: 950

Re: Xeloda and Bleeding

I had read your original post, but just didn't have any advice to give you - other than asking if your oncologist knows about the supplements you are taking. I'm sorry you've been going through such a hard time and I'm glad you're being taken care of now. I hope you're feeling better soon. Thank yo...

Go to advanced search