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by Stewsbetty
Thu Jun 14, 2018 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 41
Views: 5301

Re: Keytruda? What else is new?

henry123 wrote:Any update on approval for immunotherapy drugs for msi-high CRC in Canada ?

Haven’t heard anything yet. I think we are often a year or two after the US. Guess it has been a year now for Keytruda.
by Stewsbetty
Sat Jun 09, 2018 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No, we don't have the best healthcare system
Replies: 24
Views: 1100

Re: No, we don't have the best healthcare system

You get used to the system you know. :). I am a Canadian living in BC - though my data wouldn’t have been included in this study since my journey didn’t start til 2016. Pretty sure after reading the reticle they were comparing apples to apples. Actual cost of treatments, not billed amounts. Anyway, ...
by Stewsbetty
Sat Jun 09, 2018 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adverse reaction to capecitabine?
Replies: 14
Views: 445

Re: Adverse reaction to capecitabine?

Ok, just went back and looked at your dog. I guess because she is stage 3. If she is unable to continue chemo I would ask the doc about doing Keytruda or Opdivo.
by Stewsbetty
Sat Jun 09, 2018 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adverse reaction to capecitabine?
Replies: 14
Views: 445

Re: Adverse reaction to capecitabine?

My mom finished her first round of Xelox regime last Wednesday. On the last three or so days of the pills she really had a hard time eating or drinking anything. Then on Sunday she was having abdominal pains that were severe enough for the on-call oncologist to tell her to go to urgent care. Urgent...
by Stewsbetty
Sat Jun 09, 2018 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolated Retroperitoneal Metastases with Unelevated Markers
Replies: 6
Views: 620

Re: Isolated Retroperitoneal Metastases with Unelevated Markers

I had previously posted about our situation in a different thread, but it may be more à propos to start a discrete thread. Essentially, my wife had a CT scan a couple of weeks ago. We didn't hear any results for a week, despite several calls. Finally, I pushed through the ER to get ahold of someone...
by Stewsbetty
Thu Jun 07, 2018 4:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cecal mass
Replies: 4
Views: 198

Re: Cecal mass

Hi, I had a right hemicolectomy for a cecal mass in June 2016. I haven’t found much effect on my system having lost a chunk of colon. I think rich foods are more difficult to digest and I get a bit of cramping and sometimes diarrhea with them. Other than that I haven’t found losing the ascending col...
by Stewsbetty
Thu Jun 07, 2018 4:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 41
Views: 5301

Re: Keytruda? What else is new?

Hello Have been declared NED with clear CT and normal CEA Levels of 1.5 . To continue with Opdivo for now. May stop after 6 months or a year. Oncologist doesn't want to risk a relapse and taking conservative approach. Will update in detail later. Yea! Yea! Yea! So excited to hear this. I hope to jo...
by Stewsbetty
Thu Jun 07, 2018 4:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 41
Views: 5301

Re: Keytruda? What else is new?

Thanks all...and good luck! They are testing his MSI. He does have Kras mutation. For those currently on Keytruda: How long have u been on it? Did they give u a length of time you will do it for? How often and how long are treatments? Do you still do regular chemo with it? And, how bad ate side eff...
by Stewsbetty
Fri Jun 01, 2018 1:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgeon has me feeling horrible
Replies: 24
Views: 1352

Re: Surgeon has me feeling horrible

Trying wrote:Thank all of you so very much. I am in canada b.c.


I’m another BC’er. Up in the north. I use the Prince George BCCA. I don’t have much to add except out journeys don’t always go as expected.

Pm me if you want to vent frustration about the BCCA. :)

Beth
by Stewsbetty
Fri May 18, 2018 6:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo question-stage 4 colon
Replies: 5
Views: 353

Re: Chemo question-stage 4 colon

Hello..i had my port inserted yesterday but chemo starts in couple weeks. I have only seen oncologist once but am having other tests done while i wait for my next appt. (pett scan and genetic scan) When it comes to chemo does a certain type only work a few months or so then you need a new type or o...
by Stewsbetty
Sun May 06, 2018 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4410

Re: Switching back to Pembro

Hi. Things are good overall I think. Recent developments. Had a PET scan last week which showed a small area of FDG uptake with no corresponding lesion on CT. They ordered an MRI with liver specific contrast which is supposedly the most sensitive/specific imaging for liver mets and it showed nothin...
by Stewsbetty
Sun Apr 29, 2018 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4410

Re: Switching back to Pembro

[/quote] Hi. Things are good overall I think. Recent developments. Had a PET scan last week which showed a small area of FDG uptake with no corresponding lesion on CT. They ordered an MRI with liver specific contrast which is supposedly the most sensitive/specific imaging for liver mets and it showe...
by Stewsbetty
Fri Apr 20, 2018 4:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 3150

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

I seem to have become quite forgetful as compared to earlier especially with regards to names and upcoming appointments. Could it be related to Nivolumab ? Has anybody else on Opdivo /Keytruda experienced similar memory loss related symptoms. Occasional muscular pains are still there. But overall, ...
by Stewsbetty
Sun Feb 25, 2018 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So worried and unsure
Replies: 4
Views: 696

Re: So worried and unsure

Is there a reason for just doing the sigmoidoscopy? In my opinion if you are doing the prep they might as well scope the whole thing. My tumour was at the juncture of the small and large bowel. A sigmoidoscopy would have seen no problems.
by Stewsbetty
Thu Jan 11, 2018 7:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 1429

Re: Question for Canadians re genomic testing

I pushed to have my tumour tested for MSI status and it was done on the tumour sample, not a blood test. I also asked about mutations and that was done as a standard I think. I live in BC. I would enquire as to whether there are still samples of his tumour left. I wouldn’t be surprised if there were...

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