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by Stewsbetty
Sat Mar 16, 2019 7:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I have colon cancer at 17
Replies: 20
Views: 1036

Re: Scared I have colon cancer at 17

My cat scan came back normal and I saw the specialist and I’ve been put on miralax twice a day and a healthy diet, I still have doubts and anxieties but over all I guess I’m not freaking out as much because my cat was apparently normal Thanks for the follow up. Try to relax the anxieties but contin...
by Stewsbetty
Sat Mar 16, 2019 6:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother (70) diagnosed, surgery scheduled
Replies: 3
Views: 189

Re: Mother (70) diagnosed, surgery scheduled

Hi all, My mother had anemia symptoms for most of 2018 although it was only diagnosed in December. It wasn't too severe and she was/is pretty healthy and active. They did a colonoscopy and found a few polyps that were removed, including one that was bleeding. They also found a flat lesion that the ...
by Stewsbetty
Fri Mar 08, 2019 7:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 21
Views: 2114

Re: Keytruda

Sooooo, keytruda. Not FDA approved for colon cancer, therefore insurance will not cover it (Medicare/TRICARE), didn’t see that here anywhere. Merk is covering the drug, my Onc office is comping the treatment itself (insurance won’t pay for that either). A few more things than just needing keytruda ...
by Stewsbetty
Tue Mar 05, 2019 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumours shrinking....now what?
Replies: 11
Views: 501

Re: Tumours shrinking....now what?

Hello, Fellow Canadian here. :) I feel for you in this situation. I am a bit of a researcher myself and have been advocating for things that I feel are important. However, I also have a very concerned sister who is sometimes pushing me to do things I am not comfortable with. She came to visit while ...
by Stewsbetty
Tue Mar 05, 2019 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 27
Views: 955

Re: Starting immunotherapy next week

Hi friends, I’m going for my first immunotherapy infusion on Monday. It’s the next step in my battle with metastatic colon cancer. Three months ago, I had surgery for a single metastasis in the right lobe of my liver. Got scanned a few weeks ago and there is a new met in the left lobe. I could go f...
by Stewsbetty
Sat Feb 23, 2019 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I have colon cancer at 17
Replies: 20
Views: 1036

Re: Scared I have colon cancer at 17

L Lee[/quote Hi, So sorry for what you are going through. Do get that cat scan, but I would also really push for a colonoscopy. That will give you a true diagnoses of what is causing your symptoms. Please understand, many things could be causing your symptoms, cancer is just one possibility. By the...
by Stewsbetty
Wed Feb 20, 2019 7:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 1947

Re: Bad News

I think her KRAS mutation might rule out Keytruda for us, but I'll ask. Thank you. Kras doesn’t rule out Keytruda, however it is usually not recommended for MSS. There is a thread on here that tells of a MSS patient getting Keytruda due to her high tumour mutuational burden. If you check your mom’s...
by Stewsbetty
Sun Feb 17, 2019 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 14
Views: 905

Re: Adjuvant immunotherapy

Stewsbetty, I'm in the USA. $11K was the price negotiated by my insurer at the time of my first infusion, Cigna. Otherwise it would be something like $15K. I don't know what my current insurer, Anthem, pays for it. We hit the deductible for me so quickly this year--my H, who does that stuff, lowere...
by Stewsbetty
Sun Feb 17, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible Third Diagnoses
Replies: 12
Views: 1019

Re: Possible Third Diagnoses

If I were you I would definitely look for someone locally going through cancer to connect with. I have a very good friend with a different form of cancer and we can have real conversations that are impossible with others. Maybe just show up to one or two support meeting and see if there is someone y...
by Stewsbetty
Sun Feb 17, 2019 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hemicolectomy recovery
Replies: 6
Views: 489

Re: Hemicolectomy recovery

I don’t think I will be super helpful but I had a right hemicolectomy in June 2016. I used a lot of loperamide during my chemo (finished February 2017) but since finishing chemo haven’t found a real need for it. The only real change I have found is a need to avoid a really fatty rich meal. This can ...
by Stewsbetty
Sun Feb 17, 2019 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 21
Views: 2114

Re: Keytruda

The drs will monitor you each time for pneumonitis, colitis, blood tests for your thyroid, probably a few more too. :) Thank you! Which Facebook page? I was on Colon Cancer support, but there really isn’t a whole lot of “support”, a lot of questions, no answers, and too many people researching the ...
by Stewsbetty
Sun Feb 17, 2019 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 1947

Re: Bad News

I think her KRAS mutation might rule out Keytruda for us, but I'll ask. Thank you. Kras doesn’t rule out Keytruda, however it is usually not recommended for MSS. There is a thread on here that tells of a MSS patient getting Keytruda due to her high tumour mutuational burden. If you check your mom’s...
by Stewsbetty
Sun Feb 17, 2019 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 21
Views: 2114

Re: Keytruda

I’m MSI h as well. I have been on Keytruda since September 2017. The side effects (if you don’t have a major reaction) are quite minimal. I was able to go back to work 3 days a week as a teacher. I was completely unable to work while on chemo. In my experience there is absolutely no comparison in t...
by Stewsbetty
Wed Feb 13, 2019 8:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 21
Views: 2114

Re: Keytruda

I got offered keytruda yesterday, I’ve been on regular chemo for about 3 years minus surgery time and everything is held at bay for the time being. A “maybe” tumor in pelvis and lung, they aren’t quite sure. My question is the timing, who stopped chemo that was working well try something different?...
by Stewsbetty
Wed Feb 13, 2019 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 14
Views: 905

Re: Adjuvant immunotherapy

My oncologist said we'd do an MRI in/after the fourth month. At least I think that's what he said, month, not cycle. that would be around the 7th cycle. Because my nodes and liver met didn't show up on a CT scan, we'll go straight to MRI. I've read various things about how long it takes keytruda to...

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