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by Stewsbetty
Tue Oct 16, 2018 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 15
Views: 534

Re: Internal Iliac Node involvement??

I had distant node involvement though at the time of surgery they weren’t sure if it was cancer or just reaction. I would definitely check to see if there is a chance at removing during surgery. Mine did not respond to chemo and they were too large by the time they were responded to for radiation. (...
by Stewsbetty
Sat Sep 29, 2018 7:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6737

Re: IMMUNOTHERAPY

So in response to your question about the tumour testing and the worry about possible other cancers. From my reading the onco company is testing your tumour chunk for mutations. So the mutations they find are in your cancer cells not necessarily your whole body. For example, my tumour tested MSI-h w...
by Stewsbetty
Sat Sep 29, 2018 6:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 15
Views: 1361

Re: 2 swollen nodes in abdomen...

Jep, I am sorry to hear about this discovery. I am hoping it's not abdominal lymph nodes. However, if they are, I want to give you some info because I have experience with it. Mine have only been detected by PET scans - never big enough by CT criteria to be seen. So, I've had PETs every 2-3 months ...
by Stewsbetty
Sat Sep 29, 2018 6:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 13
Views: 820

Re: MSI-H with liver met, in search of help

I am MSI-h, (MLH1 and PMS2) not Lynch. I did full 12 rounds of folfox and had a recurrence within 5 months. Multiple Mets to lymph nodes all over abdomen, chest and neck. We watched a lymph node in my neck grow 3 cm while doing 2 rounds of folfiri. Then I started Keytruda and within 3 months all my ...
by Stewsbetty
Sat Sep 01, 2018 6:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Homemade salad dressing recipes
Replies: 13
Views: 710

Re: Homemade salad dressing recipes

Omg I love tacos haha, mmm... Thanks stewsbetty, I’ll add this one to the list! Powdered ranch is harder for me to find for some reason, i know I’ve seen it at Costco but who needs that much ranch powder!? I guess maybe in the grocery store it’s kept with the dry packets of gravies and hollandaise s...
by Stewsbetty
Thu Aug 30, 2018 6:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Homemade salad dressing recipes
Replies: 13
Views: 710

Re: Homemade salad dressing recipes

I really like this recipe. I use it in tacos as well as salads. :)
3 tomatillos
juice of 1 lime
1/2 c buttermilk
1/2 c mayo
1/3 c sour cream
1 pkg dry ranch dressing
1 bunch cilantro
1 bunch green onions
2 cloves garlic
3 tsp sugar
Dash tabasco sauce

Put all in a blender until creamy

Beth
by Stewsbetty
Thu Aug 30, 2018 6:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disconnect
Replies: 11
Views: 831

Re: Disconnect

My mom (and I) were trained in the disconnect. I never actually did it all myself but walked my mom through the steps. I was concerned about not seeing the port area well and looking in a mirror and doing things is more challenging for me. However, I wish I had taken responsibility for it because it...
by Stewsbetty
Thu Aug 30, 2018 5:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 14710

Re: Keytruda? What else is new?

Yea! Yea! Yea! So excited to hear this. I hope to join you in the future! Beth Those on immunotherapy , what else are you doing besides keytruda or opdivo with regards to lifestyle , supplements, diet etc. Hi Henry, I haven’t changed a lot. I quit drinking pop on a regular basis and have added in m...
by Stewsbetty
Fri Aug 24, 2018 1:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 4605

Re: Genetic Testing?

My tumour was tested for gene mutations originally. Because we discovered I was MSI high I was recommended for testing for genetic mutations through my whole body. Since I have children I was anxious to know this. It was a longer wait here in Canada but it was reassuring to know that I have no genet...
by Stewsbetty
Mon Aug 13, 2018 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Stage IV Diagnosis
Replies: 9
Views: 1112

Re: New Stage IV Diagnosis

Hello, Another Canuck here. :) I’m from BC. I know what you mean about difficulties with second opinions as I am in a rural area and there are limited surgeons and oncologists here. I do think that genetic testing is very important but the folfiri plus bevacizumab doesn’t have any contraindications ...
by Stewsbetty
Fri Jul 27, 2018 6:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 15
Views: 4674

Re: A cautionary tale

i am sorry that this gentleman has passed on. I have a close friend (not a friend of a friend :) who has multiple myeloma - cancer of the blood. She has been working with her oncologist and a cancer specific naturopath since shortly after dx. She had a stem cell transplant and is on continuous chemo...
by Stewsbetty
Thu Jun 28, 2018 4:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it odd? (DH chemo pump)
Replies: 11
Views: 610

Re: Is it odd? (DH chemo pump)

My first cycle was a breeze. Other than a little cold sensitivity and first bite once I sailed through it. Second cycle not so much. Make sure he still stays on top of his meds cause if nausea or excessive diarrhea starts things can go downhill quickly. I ended up hospitalized for 5 days second cycl...
by Stewsbetty
Wed Jun 27, 2018 6:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 16
Views: 4087

Re: Does anyone have a little drinky drink during chemo?

BTW, has anyone else encountered major problems getting a simple glass of WARM water in a restaurant? I've been out a few times shortly after infusion, and I have to explain at length that yes, I really do just want some lukewarm water from the tap. One place insisted on running it through the coff...
by Stewsbetty
Tue Jun 26, 2018 7:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nervous: Where is My Period?
Replies: 9
Views: 832

Re: Nervous: Where is My Period?

Hello CA girl, I was dx’d at 42 and had normal periods all through surgery and folfox. However, with my recurrence I did 2 cycles of folfiri and that totally whacked my cycle. After those I didn’t have a period for 3 months and now that it has come back it is erratic. Sometimes 35 day cycle other ti...
by Stewsbetty
Tue Jun 26, 2018 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 18
Views: 4799

Re: Hello from a new member

Just a word of advice about the anti nausea meds. They don’t work as well if you wait until you are already feeling poorly. My chemo journey is over, thankfully, but I ended up in hospital 2x when things got out of control. When steady nausea or diarrhea kicks in you dehydrate very quickly and if yo...

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