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by Stewsbetty
Thu Jun 28, 2018 4:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it odd? (DH chemo pump)
Replies: 11
Views: 411

Re: Is it odd? (DH chemo pump)

My first cycle was a breeze. Other than a little cold sensitivity and first bite once I sailed through it. Second cycle not so much. Make sure he still stays on top of his meds cause if nausea or excessive diarrhea starts things can go downhill quickly. I ended up hospitalized for 5 days second cycl...
by Stewsbetty
Wed Jun 27, 2018 6:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 16
Views: 917

Re: Does anyone have a little drinky drink during chemo?

BTW, has anyone else encountered major problems getting a simple glass of WARM water in a restaurant? I've been out a few times shortly after infusion, and I have to explain at length that yes, I really do just want some lukewarm water from the tap. One place insisted on running it through the coff...
by Stewsbetty
Tue Jun 26, 2018 7:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nervous: Where is My Period?
Replies: 9
Views: 656

Re: Nervous: Where is My Period?

Hello CA girl, I was dx’d at 42 and had normal periods all through surgery and folfox. However, with my recurrence I did 2 cycles of folfiri and that totally whacked my cycle. After those I didn’t have a period for 3 months and now that it has come back it is erratic. Sometimes 35 day cycle other ti...
by Stewsbetty
Tue Jun 26, 2018 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 16
Views: 806

Re: Hello from a new member

Just a word of advice about the anti nausea meds. They don’t work as well if you wait until you are already feeling poorly. My chemo journey is over, thankfully, but I ended up in hospital 2x when things got out of control. When steady nausea or diarrhea kicks in you dehydrate very quickly and if yo...
by Stewsbetty
Thu Jun 14, 2018 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 42
Views: 6053

Re: Keytruda? What else is new?

henry123 wrote:Any update on approval for immunotherapy drugs for msi-high CRC in Canada ?

Haven’t heard anything yet. I think we are often a year or two after the US. Guess it has been a year now for Keytruda.
by Stewsbetty
Sat Jun 09, 2018 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No, we don't have the best healthcare system
Replies: 24
Views: 1193

Re: No, we don't have the best healthcare system

You get used to the system you know. :). I am a Canadian living in BC - though my data wouldn’t have been included in this study since my journey didn’t start til 2016. Pretty sure after reading the reticle they were comparing apples to apples. Actual cost of treatments, not billed amounts. Anyway, ...
by Stewsbetty
Sat Jun 09, 2018 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adverse reaction to capecitabine?
Replies: 14
Views: 526

Re: Adverse reaction to capecitabine?

Ok, just went back and looked at your dog. I guess because she is stage 3. If she is unable to continue chemo I would ask the doc about doing Keytruda or Opdivo.
by Stewsbetty
Sat Jun 09, 2018 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adverse reaction to capecitabine?
Replies: 14
Views: 526

Re: Adverse reaction to capecitabine?

My mom finished her first round of Xelox regime last Wednesday. On the last three or so days of the pills she really had a hard time eating or drinking anything. Then on Sunday she was having abdominal pains that were severe enough for the on-call oncologist to tell her to go to urgent care. Urgent...
by Stewsbetty
Sat Jun 09, 2018 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolated Retroperitoneal Metastases with Unelevated Markers
Replies: 6
Views: 675

Re: Isolated Retroperitoneal Metastases with Unelevated Markers

I had previously posted about our situation in a different thread, but it may be more à propos to start a discrete thread. Essentially, my wife had a CT scan a couple of weeks ago. We didn't hear any results for a week, despite several calls. Finally, I pushed through the ER to get ahold of someone...
by Stewsbetty
Thu Jun 07, 2018 4:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cecal mass
Replies: 4
Views: 235

Re: Cecal mass

Hi, I had a right hemicolectomy for a cecal mass in June 2016. I haven’t found much effect on my system having lost a chunk of colon. I think rich foods are more difficult to digest and I get a bit of cramping and sometimes diarrhea with them. Other than that I haven’t found losing the ascending col...
by Stewsbetty
Thu Jun 07, 2018 4:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 42
Views: 6053

Re: Keytruda? What else is new?

Hello Have been declared NED with clear CT and normal CEA Levels of 1.5 . To continue with Opdivo for now. May stop after 6 months or a year. Oncologist doesn't want to risk a relapse and taking conservative approach. Will update in detail later. Yea! Yea! Yea! So excited to hear this. I hope to jo...
by Stewsbetty
Thu Jun 07, 2018 4:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 42
Views: 6053

Re: Keytruda? What else is new?

Thanks all...and good luck! They are testing his MSI. He does have Kras mutation. For those currently on Keytruda: How long have u been on it? Did they give u a length of time you will do it for? How often and how long are treatments? Do you still do regular chemo with it? And, how bad ate side eff...
by Stewsbetty
Fri Jun 01, 2018 1:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgeon has me feeling horrible
Replies: 24
Views: 1422

Re: Surgeon has me feeling horrible

Trying wrote:Thank all of you so very much. I am in canada b.c.


I’m another BC’er. Up in the north. I use the Prince George BCCA. I don’t have much to add except out journeys don’t always go as expected.

Pm me if you want to vent frustration about the BCCA. :)

Beth
by Stewsbetty
Fri May 18, 2018 6:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo question-stage 4 colon
Replies: 5
Views: 377

Re: Chemo question-stage 4 colon

Hello..i had my port inserted yesterday but chemo starts in couple weeks. I have only seen oncologist once but am having other tests done while i wait for my next appt. (pett scan and genetic scan) When it comes to chemo does a certain type only work a few months or so then you need a new type or o...
by Stewsbetty
Sun May 06, 2018 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4509

Re: Switching back to Pembro

Hi. Things are good overall I think. Recent developments. Had a PET scan last week which showed a small area of FDG uptake with no corresponding lesion on CT. They ordered an MRI with liver specific contrast which is supposedly the most sensitive/specific imaging for liver mets and it showed nothin...

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