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by Stewsbetty
Mon Apr 08, 2019 11:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Floating Stool - bowel question
Replies: 10
Views: 568

Re: Floating Stool - bowel question

Not sure on this but I have heard that stool floats when it has more fat in it. Maybe your colectomy keeps you from breaking down all the fat? I know when I have a higher fat meal (Caesar salad and garlic bread or a thick, rich soup) I get stomach cramping for a while afterwards. It seems like my bo...
by Stewsbetty
Sun Mar 31, 2019 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 33
Views: 2442

Re: Starting immunotherapy next week

Hello, could those who have been on keytruda or mono immunotherapies of the like please chime in with your experiences based on the following?: colon cancer was diagnosed about 4 years ago, surgery to remove the mass and total colectomy was performed followed by 6 months of folfox and was NED for l...
by Stewsbetty
Sun Mar 31, 2019 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 339
Views: 97011

Re: Calling ALL Colorectal CANUCKS !

Hi I am from Canada currently living in Newfoundland. I am just recently diagnosed with Colon cancer. It was found during a colonoscopy and my GI doctor feels it could be early stage and my CT scan came back clear for Mets. I am meeting with the surgeon on April 1 to get talk about surgery treatmen...
by Stewsbetty
Sat Mar 16, 2019 7:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I have colon cancer at 17
Replies: 20
Views: 1246

Re: Scared I have colon cancer at 17

My cat scan came back normal and I saw the specialist and I’ve been put on miralax twice a day and a healthy diet, I still have doubts and anxieties but over all I guess I’m not freaking out as much because my cat was apparently normal Thanks for the follow up. Try to relax the anxieties but contin...
by Stewsbetty
Sat Mar 16, 2019 6:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother (70) diagnosed, surgery scheduled
Replies: 3
Views: 278

Re: Mother (70) diagnosed, surgery scheduled

Hi all, My mother had anemia symptoms for most of 2018 although it was only diagnosed in December. It wasn't too severe and she was/is pretty healthy and active. They did a colonoscopy and found a few polyps that were removed, including one that was bleeding. They also found a flat lesion that the ...
by Stewsbetty
Fri Mar 08, 2019 7:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 21
Views: 2338

Re: Keytruda

Sooooo, keytruda. Not FDA approved for colon cancer, therefore insurance will not cover it (Medicare/TRICARE), didn’t see that here anywhere. Merk is covering the drug, my Onc office is comping the treatment itself (insurance won’t pay for that either). A few more things than just needing keytruda ...
by Stewsbetty
Tue Mar 05, 2019 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumours shrinking....now what?
Replies: 11
Views: 629

Re: Tumours shrinking....now what?

Hello, Fellow Canadian here. :) I feel for you in this situation. I am a bit of a researcher myself and have been advocating for things that I feel are important. However, I also have a very concerned sister who is sometimes pushing me to do things I am not comfortable with. She came to visit while ...
by Stewsbetty
Tue Mar 05, 2019 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 33
Views: 2442

Re: Starting immunotherapy next week

Hi friends, I’m going for my first immunotherapy infusion on Monday. It’s the next step in my battle with metastatic colon cancer. Three months ago, I had surgery for a single metastasis in the right lobe of my liver. Got scanned a few weeks ago and there is a new met in the left lobe. I could go f...
by Stewsbetty
Sat Feb 23, 2019 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared I have colon cancer at 17
Replies: 20
Views: 1246

Re: Scared I have colon cancer at 17

L Lee[/quote Hi, So sorry for what you are going through. Do get that cat scan, but I would also really push for a colonoscopy. That will give you a true diagnoses of what is causing your symptoms. Please understand, many things could be causing your symptoms, cancer is just one possibility. By the...
by Stewsbetty
Wed Feb 20, 2019 7:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 2095

Re: Bad News

I think her KRAS mutation might rule out Keytruda for us, but I'll ask. Thank you. Kras doesn’t rule out Keytruda, however it is usually not recommended for MSS. There is a thread on here that tells of a MSS patient getting Keytruda due to her high tumour mutuational burden. If you check your mom’s...
by Stewsbetty
Sun Feb 17, 2019 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 21
Views: 1268

Re: Adjuvant immunotherapy

Stewsbetty, I'm in the USA. $11K was the price negotiated by my insurer at the time of my first infusion, Cigna. Otherwise it would be something like $15K. I don't know what my current insurer, Anthem, pays for it. We hit the deductible for me so quickly this year--my H, who does that stuff, lowere...
by Stewsbetty
Sun Feb 17, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible Third Diagnoses
Replies: 13
Views: 1374

Re: Possible Third Diagnoses

If I were you I would definitely look for someone locally going through cancer to connect with. I have a very good friend with a different form of cancer and we can have real conversations that are impossible with others. Maybe just show up to one or two support meeting and see if there is someone y...
by Stewsbetty
Sun Feb 17, 2019 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hemicolectomy recovery
Replies: 6
Views: 564

Re: Hemicolectomy recovery

I don’t think I will be super helpful but I had a right hemicolectomy in June 2016. I used a lot of loperamide during my chemo (finished February 2017) but since finishing chemo haven’t found a real need for it. The only real change I have found is a need to avoid a really fatty rich meal. This can ...
by Stewsbetty
Sun Feb 17, 2019 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 21
Views: 2338

Re: Keytruda

The drs will monitor you each time for pneumonitis, colitis, blood tests for your thyroid, probably a few more too. :) Thank you! Which Facebook page? I was on Colon Cancer support, but there really isn’t a whole lot of “support”, a lot of questions, no answers, and too many people researching the ...
by Stewsbetty
Sun Feb 17, 2019 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 2095

Re: Bad News

I think her KRAS mutation might rule out Keytruda for us, but I'll ask. Thank you. Kras doesn’t rule out Keytruda, however it is usually not recommended for MSS. There is a thread on here that tells of a MSS patient getting Keytruda due to her high tumour mutuational burden. If you check your mom’s...

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