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by Swirdfish
Wed Sep 05, 2018 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Down to 104 pounds. Help
Replies: 7
Views: 1084

Re: Down to 104 pounds. Help

No matter what I do, I can not gain weight. I am 104 pounds and 5'8". I have terrible diarrhea issues...much worse than pre chemo. I went all through chemo without a bag. I finished chemo in April and really thought by now I would be bouncing back nicely. Currently I get 1x month Sandostatin a...
by Swirdfish
Tue Sep 04, 2018 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 4398

Re: STAGE 3 rectal cancer treatment without surgery

I guess its a real dice roll. I had ULAR surgery, and although I have some issues with reoccurring toilet visits and sometimes urgency, its far between. My surgery was awhile ago, and I think my body is still adapting to this day and improving. But this I can live with very easy. I feel for the peop...
by Swirdfish
Tue Sep 04, 2018 6:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 After Treatment Plans?
Replies: 9
Views: 707

Re: Stage 3 After Treatment Plans?

At least two scans a year here for next 5 years. Alternates between ultrasound and CT scan. Bloods done at every scan. I suggest do what your comfortable with.
by Swirdfish
Sat Aug 11, 2018 3:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Abdominal Pains
Replies: 4
Views: 567

Re: Abdominal Pains

Thanks All for your replys. Gives me some direction.
by Swirdfish
Thu Aug 09, 2018 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Abdominal Pains
Replies: 4
Views: 567

Abdominal Pains

Hi All, I hope you are all traveling well. Been a good year for me, all CT scans and ultrasounds have come back as good. Still even this far out, I still get clustering on the occasional days, but I have complete control. So life could be better, but for what it is, im happy. I can work, play and do...
by Swirdfish
Mon May 28, 2018 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal or Not
Replies: 23
Views: 3604

Re: Stoma Reversal or Not

P.S is not sure about everyone else but after reversal I fart extremely a lot and the smell.. omg. Work colleagues aren’t too impressed sometimes when we are in a confined space as it’s diffucult sometimes to hold in. The gym I just put my ear phones in and pretend I didn’t do it. Still I’d rather n...
by Swirdfish
Mon May 28, 2018 7:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 8175

Re: Feeling really sad and in need of support

I had x8 folfox treatments, then neuropathy in the hands and feet where starting to get severe and was annoying, however I pushed through. Im abit more then a year out now, and my hands are all but normal again, and my feet are about 80% better, but still lingering numbness especially on cold morni...
by Swirdfish
Mon May 28, 2018 2:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal or Not
Replies: 23
Views: 3604

Re: Stoma Reversal or Not

My reversal was the best thing I did. I don't think I could live with a permanent stoma, but im young and love the beach. So no emptying my bag in the water anymore as emergency's and the stares. omg the stares.. The reversal is hard, and the first couple of weeks to months is very difficult, with u...
by Swirdfish
Sun May 27, 2018 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 8175

Re: Feeling really sad and in need of support

I had x8 folfox treatments, then neuropathy in the hands and feet where starting to get severe and was annoying, however I pushed through. Im abit more then a year out now, and my hands are all but normal again, and my feet are about 80% better, but still lingering numbness especially on cold mornin...
by Swirdfish
Sun Mar 18, 2018 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2yrs NED
Replies: 5
Views: 875

Re: 2yrs NED

Well done... I'm approaching my first yearly scan.

How's the weather downunder.. Nice hey :)
by Swirdfish
Wed Mar 07, 2018 4:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy without sedation, should I?
Replies: 13
Views: 2166

Re: Colonoscopy without sedation, should I?

Get sedated and go to sleep. Nothing beats a good sleep. :lol:
by Swirdfish
Tue Feb 27, 2018 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptoms of local recurrence?
Replies: 5
Views: 1052

Re: Symptoms of local recurrence?

Change in bowel habit.. I dont think my bowels have any sort of norm after surgery. Lol.
by Swirdfish
Fri Feb 23, 2018 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 63
Views: 16940

Re: Finally....some really great news!!!

Well done... what an adventure hey. Exercise and good eating..
by Swirdfish
Mon Feb 19, 2018 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy reversal experience?
Replies: 15
Views: 4108

Re: Ileostomy reversal experience?

It's tool me a very long time to get back to a normal kind of state. I can now catch public transport. Fly on aeroplanes with the worry of if I'd have an accident. It's a long recovery process but u will get there. Anywhere up to a year. Immodium and codiene where my friends to limit my bowel functi...
by Swirdfish
Fri Feb 02, 2018 2:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Control
Replies: 9
Views: 1011

Re: Control

Immodium and Codiene.. Worked for me on planes and public transport for a good 8 hrs or so.

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