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by Swirdfish
Wed Jun 26, 2019 5:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 34
Views: 5070

Re: Did anyone ever decide to go back to ileostomy after reversal

Thanks my brother swirdfish appreciate that feedback. I am here in Tampa Florida today to get a second opinion at Moffitt Cancer center just to cover all bases. Folfiri is tougher then folfox I feel. My docs at Cleveland clinic here in Fl wanted to do more chemo to shrink the pelvic recurrence even...
by Swirdfish
Sat Jun 15, 2019 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 34
Views: 5070

Re: Did anyone ever decide to go back to ileostomy after reversal

Rik, Im about 2 yrs out from my reversal. Yours is only well what I would call recent. It is very hard, but it takes a long time to recover and get some norm back. I still think to this day, that its still getting better, but I believe the 2yr mark is the cutoff, and anything after that you could co...
by Swirdfish
Sun Mar 24, 2019 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lower Anterior Resection Syndrome
Replies: 9
Views: 1231

Re: Lower Anterior Resection Syndrome

Im at least 2 yrs out from my ULAR. To start with its very hard, especially the first couple of days. I thought i was in hell. Its a slow process, but as time goes by it actually gets better. I still have some frequent visits to the loo, but this is achievable. However its a long process to get back...
by Swirdfish
Wed Mar 06, 2019 4:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 124
Views: 16159

Re: Possibly still NED...our story to date

I had lots of questions for my chemo, surgery and radiation. Many doctors gave me different answers, and some I didn't like. Being such a big disease there are more questions then answers. Following your posts for a while, you seem like a very difficult person to deal with. But I guess your already ...
by Swirdfish
Wed Sep 05, 2018 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Down to 104 pounds. Help
Replies: 7
Views: 1887

Re: Down to 104 pounds. Help

No matter what I do, I can not gain weight. I am 104 pounds and 5'8". I have terrible diarrhea issues...much worse than pre chemo. I went all through chemo without a bag. I finished chemo in April and really thought by now I would be bouncing back nicely. Currently I get 1x month Sandostatin a...
by Swirdfish
Tue Sep 04, 2018 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 6565

Re: STAGE 3 rectal cancer treatment without surgery

I guess its a real dice roll. I had ULAR surgery, and although I have some issues with reoccurring toilet visits and sometimes urgency, its far between. My surgery was awhile ago, and I think my body is still adapting to this day and improving. But this I can live with very easy. I feel for the peop...
by Swirdfish
Tue Sep 04, 2018 6:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 After Treatment Plans?
Replies: 9
Views: 1544

Re: Stage 3 After Treatment Plans?

At least two scans a year here for next 5 years. Alternates between ultrasound and CT scan. Bloods done at every scan. I suggest do what your comfortable with.
by Swirdfish
Sat Aug 11, 2018 3:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Abdominal Pains
Replies: 4
Views: 966

Re: Abdominal Pains

Thanks All for your replys. Gives me some direction.
by Swirdfish
Thu Aug 09, 2018 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Abdominal Pains
Replies: 4
Views: 966

Abdominal Pains

Hi All, I hope you are all traveling well. Been a good year for me, all CT scans and ultrasounds have come back as good. Still even this far out, I still get clustering on the occasional days, but I have complete control. So life could be better, but for what it is, im happy. I can work, play and do...
by Swirdfish
Mon May 28, 2018 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal or Not
Replies: 23
Views: 4916

Re: Stoma Reversal or Not

P.S is not sure about everyone else but after reversal I fart extremely a lot and the smell.. omg. Work colleagues aren’t too impressed sometimes when we are in a confined space as it’s diffucult sometimes to hold in. The gym I just put my ear phones in and pretend I didn’t do it. Still I’d rather n...
by Swirdfish
Mon May 28, 2018 7:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 11091

Re: Feeling really sad and in need of support

I had x8 folfox treatments, then neuropathy in the hands and feet where starting to get severe and was annoying, however I pushed through. Im abit more then a year out now, and my hands are all but normal again, and my feet are about 80% better, but still lingering numbness especially on cold morni...
by Swirdfish
Mon May 28, 2018 2:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal or Not
Replies: 23
Views: 4916

Re: Stoma Reversal or Not

My reversal was the best thing I did. I don't think I could live with a permanent stoma, but im young and love the beach. So no emptying my bag in the water anymore as emergency's and the stares. omg the stares.. The reversal is hard, and the first couple of weeks to months is very difficult, with u...
by Swirdfish
Sun May 27, 2018 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 11091

Re: Feeling really sad and in need of support

I had x8 folfox treatments, then neuropathy in the hands and feet where starting to get severe and was annoying, however I pushed through. Im abit more then a year out now, and my hands are all but normal again, and my feet are about 80% better, but still lingering numbness especially on cold mornin...
by Swirdfish
Sun Mar 18, 2018 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2yrs NED
Replies: 5
Views: 1260

Re: 2yrs NED

Well done... I'm approaching my first yearly scan.

How's the weather downunder.. Nice hey :)
by Swirdfish
Wed Mar 07, 2018 4:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy without sedation, should I?
Replies: 13
Views: 3400

Re: Colonoscopy without sedation, should I?

Get sedated and go to sleep. Nothing beats a good sleep. :lol:

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