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by Big Jay
Thu Jun 28, 2018 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Watch & Wait Approach?
Replies: 3
Views: 454

Re: Watch & Wait Approach?

There's a thread dedicated to W&W on the forum: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53498&hilit=habr When I had a post-radiation CCR, in November 2016, I did a lot of research into W&W. I even went so far as to meet with Dr. Garcia-Aguilar at MSK who's running...
by Big Jay
Fri Jun 15, 2018 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Frozen Bowel from Colon Resection and chemo for IIA
Replies: 5
Views: 359

Re: Frozen Bowel from Colon Resection and chemo for IIA

My surgery was 9hrs... they were closing things up when the initial path report came back showing dirty margins. So they went back in an removed a bit more ... clean margins the 2nd time around. Yep, the wasn't fun but it's still infinitely better than cancer. Soon enough it'll all be a distant, mil...
by Big Jay
Fri Jun 15, 2018 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Frozen Bowel from Colon Resection and chemo for IIA
Replies: 5
Views: 359

Re: Frozen Bowel from Colon Resection and chemo for IIA

The condition is officially called an Ileus. Basically your gut has it's own mini nervous system and, if it gets handled too long or roughly during surgery, it will go to sleep and it can take a while to wake back up. Best as I can tell it's just a matter of waiting. Eventually things will start mov...
by Big Jay
Wed Apr 25, 2018 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gastrogaffin Enema procedure
Replies: 1
Views: 383

Re: Gastrogaffin Enema procedure

Took about 9hrs for my colon to calm down after the enema. However I think I got the enema stuff out of my system w/in the first few hours. After that it was mainly mucus. If I had a decent buildup of the gunk in just 3mo I'd bet you built up quite a bit more over 8mo.
by Big Jay
Sat Mar 03, 2018 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alcohol use since diagnosis
Replies: 28
Views: 3551

Re: Alcohol use since diagnosis

I stick with the "everything in moderation" philosophy. There's actually a lot of evidence that moderate drinking can have various health benefits. However, pretty much anything is bad for you when taken to extremes.
by Big Jay
Mon Dec 11, 2017 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enemas before Ilio Reversal to prevent LARS?
Replies: 4
Views: 488

Re: Daily Enemas before Ilio Reversal to prevent LARS?

I'd definitely want to wait until after I'd passed the gastrografin leak test. That's what, 4-6 wks after surgery? It's kind of hard to discuss this with my doctor since he has no knowledge of it. I'll keep doin' the research. If things are going they way the Oncologists claim then I won't have chem...
by Big Jay
Mon Dec 11, 2017 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enemas before Ilio Reversal to prevent LARS?
Replies: 4
Views: 488

Daily Enemas before Ilio Reversal to prevent LARS?

I have a TME in my near future and I'm pretty paranoid about LARS. I know it'll be what it'll be and I'll just have to deal w/ whatever is to come. However, I want know what I can do pre/post-op to help prevent, or at least lessen, any future issues. I was reading up on LARS on "Up to Date"...
by Big Jay
Thu Nov 16, 2017 10:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and laparoscopic surgery, new paper on origins
Replies: 15
Views: 958

Re: LAR Syndrome and laparoscopic surgery, new paper on origins

I did do watch and wait. At my one year scope we (I saw we because I stay awake for the flex sig) saw that something wasn't right. There was more fleshiness.. nodularity in medical terms... next to the scar that hadn't been there before. Biopsy came back as cancer. So, time to go back to the origina...
by Big Jay
Thu Nov 16, 2017 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and laparoscopic surgery, new paper on origins
Replies: 15
Views: 958

Re: LAR Syndrome and laparoscopic surgery, new paper on origins

Interesting paper. I was especially interested in the research into the length of the remaining rectal stump and the method of reconnection. Basically the more rectum the better with a minimum of 4cm for best results. Also some sort of reservoir, be it J-Pouch, or Side-End, is significantly better i...
by Big Jay
Sun Nov 12, 2017 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 195
Views: 58836

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Oh, I'm well aware of the lack of a proper controlled study on this W&W thing. I posted this mainly to get the word out that the chance of regrowth might be a bit higher than the 20-ish percent that the non-scientific studies have shown. I do not regret my decision to pursue W&W. From all I'...
by Big Jay
Tue Nov 07, 2017 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 195
Views: 58836

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

A year ago I decided to go w/ W&W after I'd had a CCR. Went in last week for my 1yr scans and scope. Scans came back clear. Unfortunately there was a bit of cancer regrowth at the edge of the scar. So looks like a TME is in my not too distant future. Knowing what I did at time that I made the W&...
by Big Jay
Fri Jun 30, 2017 7:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 195
Views: 58836

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Here's a rather reassuring article from the May of this year posted in Lancet: http://thelancet.com/journals/langas/article/PIIS2468-1253(17)30074-2/fulltext "Most patients treated by watch-and-wait avoid radical surgery and of those who have regrowth almost all have salvage therapy. Although w...
by Big Jay
Fri Feb 10, 2017 11:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncologist Support... or lack thereof...
Replies: 5
Views: 820

Oncologist Support... or lack thereof...

Being somewhat new to "journey" that is cancer I'd like some advice on this one: My latest CT scans found a 2mm lung nodule that had never been seen on previous scans. The radiology report says "No convincing evidence of metastatic disease"... I do so love the medical weaseling h...
by Big Jay
Thu Nov 17, 2016 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 195
Views: 58836

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I'd love to hear from other patients' experiences with the W&W strategy. I was one of the lucky ones to have a cCR and am interested in learning more about this option. So far I've had all of my treatment, from DX until now, done at Johns Hopkins Hospital. When I met w/ my surgeon to plan the su...
by Big Jay
Fri Sep 30, 2016 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neoadjuvant ChemoRad Advice
Replies: 22
Views: 2404

Re: Neoadjuvant ChemoRad Advice

Thanks all for the advice and support. The whole process wasn't as bad as I expected. The Xeloda was a a bit of a non-event w/ some minor gut discomfort and really dry feet after the last week wrapped up. The radiation... well... my bladder got quite a sunburn and a full bladder became an amazingly ...

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