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by Joecool1983
Fri Aug 31, 2018 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spasms
Replies: 3
Views: 640

Spasms

Does anyone else, who has late stage/end cancer, experience frequent spasms from the legs or body? I think it's caused by long-term, high doses of pain meds.
by Joecool1983
Mon Aug 27, 2018 10:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Radiation
Replies: 4
Views: 800

Re: Palliative Radiation

Lee wrote:What part of your body is being radiated? And how long?

Good luck, I hope it is successful in reducing your pain.

Lee


Right Abdomen and Right Diaphragm
by Joecool1983
Fri Aug 24, 2018 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 79
Views: 33969

Re: Low Anterior Resection Syndrome: Do you have it?

I got a Colostomy back in January of this year. January 11 actually. I got it due to the severe bowel issues I was having because of LARS. Constipation, diarrhea when I took laxatives/stool softeners and when I had chemo. Most severely stool fragmentation and clustering. Going to the bathroom 10, 20...
by Joecool1983
Fri Aug 24, 2018 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Radiation
Replies: 4
Views: 800

Palliative Radiation

I am starting Palliative Radiation next week. Hoping to lessen the pain I am in from these tumors. Just wanted to see if anyone else has been through this and has any experiences.
by Joecool1983
Thu Jul 26, 2018 5:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Losing the will to live
Replies: 16
Views: 5040

Re: Losing the will to live

Honestly, my advice would be to support her in whatever decisions she makes and help make her feel as comfortable as possible.
by Joecool1983
Mon Jul 23, 2018 1:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have less than a year to live
Replies: 9
Views: 1771

Re: I have less than a year to live

DH is on Vectabix and getting a great response...I don't see that in your sig...did you try it? Haven't been on anything since I quit the Irinotecan last August. I was having severe nausea, vomiting, and diarrhea, even at half the dose. It was extremely toxic to me. I chose to quit because it was m...
by Joecool1983
Wed Jul 18, 2018 12:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have less than a year to live
Replies: 9
Views: 1771

I have less than a year to live

So, I met with my surgeon yesterday. 4 months after having Liver Resection Surgery and thinking I was in the clear, I got the news that the Cancer is back. I have new metastatic activity/tumors in my peritoneum and diaphragm. My surgeon said without any further treatment, I probably have less than a...
by Joecool1983
Sun Apr 15, 2018 3:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 weeks post-op Liver Resection surgery
Replies: 1
Views: 557

5 weeks post-op Liver Resection surgery

So, I am 5 weeks post-op from Liver Resection surgery. I had the right lobe of my Liver and my gallbladder removed. The surgeon also cut out a tumor that was on my diaphragm and a removed a malignant lymph node that was just right outside the Liver. He also cut out part of my Adrenal gland, which he...
by Joecool1983
Thu Mar 15, 2018 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe bone pain in lower leg
Replies: 6
Views: 1340

Re: Severe bone pain in lower leg

Back in October/November 2017, I was having severe leg pain also. Just in my right leg. I couldn't put any weight on my right leg at all. I couldn't move my right leg at all. I went to the emergency room twice in the month of December. Once in mid-December and the 2nd time, 3 days after Thanksgiving...
by Joecool1983
Tue Feb 27, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver Surgery
Replies: 2
Views: 580

Liver Surgery

So, after getting the results of a CT scan 3 weeks ago and a PET scan last week, my new Surgeon has scheduled me for Liver Surgery next Thursday, March 8th. I have had 3 Tumors on my Liver since last January. There's been significant growth. The Surgeon is going to remove the whole right lobe of the...
by Joecool1983
Sat Jan 13, 2018 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colostomy
Replies: 4
Views: 663

Colostomy

I finally made the jump. I had surgery Thursday to get a colostomy. Feeling very relieved to have made the decision and relieved that I got the stent, that I had put in 4 weeks ago, removed yesterday.
by Joecool1983
Fri Dec 22, 2017 12:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery
Replies: 6
Views: 915

Re: Surgery

So, update. I have a new Surgeon. I had been having severe pain in my right leg, from my right butt down to my ankle that was getting progressively worse. I could not put any weight on my right leg at all. I was stuck in bed. Unable to move. I was taking 15mg Oxycodone every 6 hours. I went to a pai...
by Joecool1983
Tue Nov 07, 2017 4:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quitting chemo
Replies: 9
Views: 2281

Re: Quitting chemo

Edited bc I didn't see your second post. Do you mean when is the best time to say hey I have had enough, no more treatment? Yes, that is exactly what I meant. To give an update, I stopped chemotherapy in the beginning of August. Been off of it for going on 3 months now. It was just taking a major t...
by Joecool1983
Tue Nov 07, 2017 3:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery
Replies: 6
Views: 915

Surgery

So, I was supposed to go in for surgery this Wednesday, November 8. But, surgery is now off for the time being. My parents and I went to meet with the Surgeon, last Friday, to sign the consent forms. But, I had an emotional meltdown and a disagreement with my surgeon. I ended up cursing. My Surgeon ...
by Joecool1983
Sat Aug 19, 2017 2:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quitting chemo
Replies: 9
Views: 2281

Re: Quitting chemo

I had 8 Treatments of FOLFOX last year, post surgery between May and October. It ended up spreading though. In January of this year, a routine CT scan found 3 Metastases on the liver

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