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by DocSavage
Sun Jun 16, 2019 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 1451

Re: Mop up chemo - Port vs non-port for Oxi?

For what its worth - I would be a strong proponent for a port as well. It made the infusions so much easier and less uncomfortable (and you need all the less uncomfortable as you can get). The procedure to implant it was as easy as pie - I don't think it took longer than thirty minutes or so. It was...
by DocSavage
Sun Jun 16, 2019 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24019

Re: My CRC with liver mets journey

Gina - Thank you for posting about your ‘journey’. My first go round I found it so helpful to get at least an idea what is happening and how to cope. It made it a lot less scary. Having said that - it seems much more complicated when you have a recurrence with liver mets or even just liver involveme...
by DocSavage
Sun Jun 16, 2019 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back From The Shadows Again - And Scanxiety....
Replies: 10
Views: 801

Re: Back From The Shadows Again - And Scanxiety....

Right now - I am staying at Texas Oncology in Mid-town Austin. I will wait for the PET scan and see whats in there. If its ‘straight-forward’ (as if anything is) I will probably stay there as we really like team. If its otherwise I will see about getting referred to MD Anderson. I think they may do ...
by DocSavage
Thu Jun 13, 2019 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back From The Shadows Again - And Scanxiety....
Replies: 10
Views: 801

Re: Back From The Shadows Again - And Scanxiety....

Thanks juliej! I am just taking it one day at a time. I have too many things to do to just give up... I did ask the Onc will it be irinotecan (don’t some people call it i-ran-to-the-can) and he specifically said that wouldn’t be on the menu at first. With the PET scan you have radio-isotopes and I a...
by DocSavage
Thu Jun 13, 2019 6:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back From The Shadows Again - And Scanxiety....
Replies: 10
Views: 801

Re: Back From The Shadows Again - And Scanxiety....

Well as we say in Texas - poop! I got a call from the oncologist and my scan showed mets to both lobes of my liver and possibly one on a lung. The next step is a PET scan and then a biopsy to confirm that is recurrent CRC. I forgot what protocol he said we would follow - but it something and pill fo...
by DocSavage
Tue Jun 11, 2019 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back From The Shadows Again - And Scanxiety....
Replies: 10
Views: 801

Re: Back From The Shadows Again - And Scanxiety....

Pyro -

Its been 'interesting' - my CEA has never budged, pre-surgery, post surgery. post chemo...
Did your liver enzymes show anything?

-Andy
by DocSavage
Mon Jun 10, 2019 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back From The Shadows Again - And Scanxiety....
Replies: 10
Views: 801

Back From The Shadows Again - And Scanxiety....

Hi - It's me again.... So everything has been going pretty darn well since I last checked in. Everything has been running 'hot, straight and normal' for almost three years. However, my last set of labs showed slightly elevated liver enzymes. We re-tested and they dropped a bit but were still above n...
by DocSavage
Tue Jan 31, 2017 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX Treatment Diary
Replies: 67
Views: 15151

Re: FOLFOX Treatment Diary

Aussie - I had to go read your blog - very 'entertaining' if we can say that about all this :) One of the things I noted was your description of the neuropathy in the feet feeling like wet sox. I have been struggling with how to describe it to people, because for me it is not numbness like when your...
by DocSavage
Mon Jan 30, 2017 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX Treatment Diary
Replies: 67
Views: 15151

Re: FOLFOX Treatment Diary

All-righty then... My scan was clear - although the Dr said there were changes in my lungs and liver that are consistent with chemo and nothing to worry about. I think he didnt want me to freak when I read the report. Today I had my Bard Power Port removed. It was done in the surgeons office under l...
by DocSavage
Wed Dec 14, 2016 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX Treatment Diary
Replies: 67
Views: 15151

Re: FOLFOX Treatment Diary

Aussie - That sounds 'reasonable' - we have a friend (a very strong willed attorney) She just got finished with her chemo and went to her surgeon. She told him she wanted it out, He flipped through the chart and said 'well I don't see an order for that'. She said 'I want it out' so he took it out :D...
by DocSavage
Wed Dec 14, 2016 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX Treatment Diary
Replies: 67
Views: 15151

Re: FOLFOX Treatment Diary

Aussie -

DId he say why? Mine said if the scan is clear its a go. At least I think that what I heard. Even though the port and I have been very close this last six months or so I can say everytime I brush it or see it i can help but get into a bit of a funk
by DocSavage
Wed Dec 14, 2016 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lap resection surgery set for Dec
Replies: 44
Views: 4283

Re: Lap resection surgery set for Dec

Good luck! I second third and fourth the walking advice. It really does help. My wife stayed with me as she is a OR Nurse with slight OCD :) We would take a few laps about every two hours or so. Even in the night after they would come to take vitals or blood. It was a good excuse to get up and we go...
by DocSavage
Wed Dec 14, 2016 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX Treatment Diary
Replies: 67
Views: 15151

Re: FOLFOX Treatment Diary

Leon -

Reading between the lines on your sig - I think I really had it easy - you are one bad ass!

-Andy
by DocSavage
Wed Dec 14, 2016 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX Treatment Diary
Replies: 67
Views: 15151

Re: FOLFOX Treatment Diary

Sew - Looking back through the lens of rose colored glasses it wasn't so bad once I got into the rhythm. In retrospect the third treatment was the worst with bad diarrhea and stomach cramps If I had called the Oncologist office sooner I would have been made more comfortable sooner. So that one was o...
by DocSavage
Wed Dec 14, 2016 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX Treatment Diary
Replies: 67
Views: 15151

Re: FOLFOX Treatment Diary

I am currently sitting in the infusion center getting my #12 of 12 treatment! I thought I might not be getting the oxaliplatin today because the neuropathy is pretty bad - but they are doing it anyway. The dexamethasone has been run in and I can feel the jitters starting - or perhaps its the three c...

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