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by L2saint
Fri Jan 13, 2017 3:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 135
Views: 33882

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

This is good stuff. Unfortunately, I did not have a complete response to neo-adjuvant chemoradiation. This wasn't discovered until the pathology report came back from my surgery, where 8 of 12 lymph nodes were found to have cancer cells. Curious to know how they determine complete response? Is it ab...
by L2saint
Fri Jan 13, 2017 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 53
Views: 4711

Re: Just Diagnosed

Hi. I was in the same boat as you in the spring of 2015. 41yo with a husband and 4yo son, diagnosed with a malignant tumor in my rectum. No family history of colorectal cancer. Just this persistent bowel upset (constipation - diarrhea - constipation - diarrhea) no matter what I ate. And blood. Lots ...
by L2saint
Thu Oct 06, 2016 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maryland Support Groups?
Replies: 15
Views: 1000

Re: Maryland Support Groups?

Hi all, I attended the support group at Hopkins on September 16th. It was a good experience. It was my first time having face-to-face interactions with other survivors of this disease. I urge anybody who is interested to reach out to Tam. Technically, the programs are for Hopkins patients, but they ...
by L2saint
Mon Aug 22, 2016 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year later
Replies: 15
Views: 1282

Re: One year later

Congratulations, and thank you for sharing your outcome! I'm coming up on the one year anniversary of my surgery (September 8, 2015). Had my ileostomy reversed back in April. I am happy to report that I have had days where I don't think about poop. I go in the morning, and maybe again at night after...
by L2saint
Tue Aug 02, 2016 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maryland Support Groups?
Replies: 15
Views: 1000

Re: Maryland Support Groups?

Hello again! My appointment with Dr. Youngjee Choi at Johns Hopkins last week was well worth the time! She spent an unprecedented 90 minutes with me, gathering history and information about my current health concerns. She also connected me with a bunch of resources - nutritionists, genetic counselin...
by L2saint
Thu Jul 21, 2016 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maryland Support Groups?
Replies: 15
Views: 1000

Re: Maryland Support Groups?

I have an appointment with a physician at the Hopkins Colorectal Cancer Survivorship Clinic next week. I will be sure to ask about support groups, and see if they have the patient data (numbers) to support such an initiative. BTW, check out their page - I feel like this resource may be underpubliciz...
by L2saint
Thu Jul 21, 2016 5:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maryland Support Groups?
Replies: 15
Views: 1000

Re: Maryland Support Groups?

Well, I finally heard back from the Claudia Mayer/Tina Broccolino Cancer Resource Center. Based on the Center's data (we only have access to intake data from persons who utilize the Center), there are quite low numbers of persons with this diagnosis. There are other disease sites with significantly ...
by L2saint
Tue Jun 14, 2016 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sucky Cancer Birthday
Replies: 13
Views: 887

Re: Sucky Cancer Birthday

Last year I started chemo-radiation the day before my birthday, and had my surgery on my wedding anniversary. Yay! This year I finished treatment right before my birthday, and just as I was getting ready to celebrate and be happy I made the mistake of going for a mammogram. Long story short, I had l...
by L2saint
Tue Jun 14, 2016 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what is a normal weight loss for CRC surgery and chemo?
Replies: 20
Views: 1654

Re: what is a normal weight loss for CRC surgery and chemo?

I started losing weight without even trying before my diagnosis. It was one of the symptoms that tipped me off to something being wrong. I was down about 15 pounds, and then I just kept losing weight through the first round of neo-adjuvant chemo-radiation. After the surgery (I had a total mesorectal...
by L2saint
Tue Jun 14, 2016 7:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maryland Support Groups?
Replies: 15
Views: 1000

Re: Maryland Support Groups?

Update: I reached out to social workers at HopeWell and the Mayer Cancer Center here in Howard County. So far only the Claudia Mayer/Tina Broccolino Cancer Resource Center has responded. The next step is to schedule a meeting to line up a meeting space, a facilitator and a process for communicating ...
by L2saint
Tue May 31, 2016 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maryland Support Groups?
Replies: 15
Views: 1000

Re: Maryland Support Groups?

Good to know. I'll keep you posted. My surgeon said he's had four new patients in our (relatively young <50) age range since my diagnosis. I gave him permission to share my contact info, but guessing they are in the thick of treatment and overwhelmed, so hoping to find some folks on here. Who knows ...
by L2saint
Tue May 31, 2016 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maryland Support Groups?
Replies: 15
Views: 1000

Maryland Support Groups?

Hi, I live in Ellicott City, MD and was diagnosed last spring with stage 3 rectal cancer. I was 41 at the time! I'm now 43 and done with treatment, but still feeling shell-shocked and eager to connect with others who are dealing with this disease. My efforts to locate a support group in Central Mary...

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