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by mypinkheaven
Tue Jun 26, 2018 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Send Good Vibes for Friday
Replies: 9
Views: 579

Re: Please Send Good Vibes for Friday

It's so nice to hear some good news. I'm happy for you and your hubby!
Sally
by mypinkheaven
Tue Jun 26, 2018 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 789

Re: Is the day that chemo treatment ...

Well with first chemo yesterday, last night went well as for sleep but i was up early so that stinks. I do have a headache and am aching through the back of my head and shoulders - i had this yesterday and some of the achiness started on the weekend so im thinking its from stress and the anxiety so...
by mypinkheaven
Tue Jun 26, 2018 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member - Cancer Recurrence
Replies: 11
Views: 1268

Re: New Member - Cancer Recurrence

Found out recently that my cancer has recurred after being NED for 4 years. Last time around (at age 35) I had relatively straightforward colon resection (sigmoid colon) and 12 rounds of FOLFOX. This time around, because of location, doctors have recommended what I understand to be the protocol for...
by mypinkheaven
Tue Jun 26, 2018 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stomach Cramps - 6 months after Polyp removal
Replies: 2
Views: 159

Re: Stomach Cramps - 6 months after Polyp removal

Fast forward to this past weekend and I started having stomach cramps, mild but fairly consistent and have stuck around for 3 days now. My first thought is that either something was missed or I have something growing inside of me quickly. Looking for your thoughts on how quickly things can progress...
by mypinkheaven
Thu Jun 21, 2018 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dad has just been diagnosed with stage IV
Replies: 6
Views: 799

Re: Dad hasn’t just been diagnosed with stage IV

My mum has been told that chemo isn’t an option as he can’t sit up and they’ve done some radiotherapy, but I believe that’s to kill the nerve endings in his spine to stop the pain. I've never heard about chemo not being an option because the person can't sit up. I know that at the chemo center I go...
by mypinkheaven
Fri Apr 13, 2018 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 45
Views: 11211

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

I read that proton therapy didn’t cause too many side effects for at least one person on this thread. Anyone else have any experience with this? How were the side effects? I've read some Facebook posts from people who have received proton radiation and their side effects were minimal to none. Best ...
by mypinkheaven
Fri Apr 06, 2018 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 45
Views: 11211

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

My understanding is that the proton therapy will ‘buy me’ a matter of either weeks or months in terms of delaying the start of the next line of chemo, FOLFIRI I'm wondering why the docs would consider the proton therapy as "buying time". Do they not feel that the proton radiation would ki...
by mypinkheaven
Fri Apr 06, 2018 7:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 45
Views: 11211

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Ehut wrote:I just wonder if they would be willing to treat metastatic tumors in the liver or other locations or only primary tumors. I suspect the latter, but it would be interesting to know for sure.

AllieG33 and Roscoe were both talking about getting metastatic tumors treated with proton radiation therapy.
by mypinkheaven
Sun Mar 25, 2018 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T EKG SHOWS Bundle Branch Block
Replies: 2
Views: 584

Re: O/T EKG SHOWS Bundle Branch Block

I'd be upset too. But the doctors are telling you it's not a problem, so try not to worry.

I hope your surgery goes well and you have a fast recovery.

Sally
by mypinkheaven
Sun Mar 25, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1163

Re: Erythema ab igne

I use a heating pad pretty often for abdominal. I knew you could get a burn, but I didn't know about the skin problems. I do make sure I have something like my PJ's between the heating pad and my skin.

I hope yours clears up quickly.

Sally 8)
by mypinkheaven
Sat Mar 17, 2018 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump successful for candidates with lung metastases?
Replies: 4
Views: 761

Re: HAI pump successful for candidates with lung metastases?

The secretary you spoke to may have misunderstood if you were asking if the HAI pump works on lung mets. HAI would only treat the liver mets. Although Kemeny specializes in the HAI pump, she has seen patients with only lung mets - not many. Try to get in to see her as a second opinion. I know that o...
by mypinkheaven
Thu Mar 15, 2018 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS Mutation- any one long term NED?
Replies: 21
Views: 3148

Re: KRAS Mutation- any one long term NED?

My mum is not NED as she has multiple lung nodules that are inoperable. She is a NRAS mutant. Our onco also told us that there are no more drugs to use after folfiri, which made us very worried as well. Mercy I'm also NRAS mutated. After Folfox and Folfiri failed, I was put on 5FU + Erbitux before ...
by mypinkheaven
Tue Mar 13, 2018 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 3556

Re: Possible for long term remission with only chemo?

This 5th round coming up will be just before an already planned trip. Going north for oldest grandchilds hischool graduation party. So blood wrk will be taken, Avastin and one push of 5FU, no pump this time. No Oxi so I don't have side effects for the time I'm gone. 10 days of relative normalness (...
by mypinkheaven
Fri Mar 09, 2018 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 3556

Re: Possible for long term remission with only chemo?

This 5th round coming up will be just before an already planned trip. Going north for oldest grandchilds hischool graduation party. So blood wrk will be taken, Avastin and one push of 5FU, no pump this time. No Oxi so I don't have side effects for the time I'm gone. 10 days of relative normalness (...
by mypinkheaven
Sat Feb 17, 2018 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: explanations of colonoscopy
Replies: 2
Views: 451

Re: explanations of colonoscopy

My 39 year old son had his first colonoscopy yesterday, and these are the results: "A sub-mucosal, infiltrative, ulcerated and fungating non-bleeding 8 cm mass of malignant appearance and was found in the distal rectum at a distance between 8cm and 16 cm from the anus He had been bleeding and ...

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