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by mypinkheaven
Fri Apr 13, 2018 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 44
Views: 9817

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

I read that proton therapy didn’t cause too many side effects for at least one person on this thread. Anyone else have any experience with this? How were the side effects? I've read some Facebook posts from people who have received proton radiation and their side effects were minimal to none. Best ...
by mypinkheaven
Fri Apr 06, 2018 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 44
Views: 9817

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

My understanding is that the proton therapy will ‘buy me’ a matter of either weeks or months in terms of delaying the start of the next line of chemo, FOLFIRI I'm wondering why the docs would consider the proton therapy as "buying time". Do they not feel that the proton radiation would ki...
by mypinkheaven
Fri Apr 06, 2018 7:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 44
Views: 9817

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Ehut wrote:I just wonder if they would be willing to treat metastatic tumors in the liver or other locations or only primary tumors. I suspect the latter, but it would be interesting to know for sure.

AllieG33 and Roscoe were both talking about getting metastatic tumors treated with proton radiation therapy.
by mypinkheaven
Sun Mar 25, 2018 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T EKG SHOWS Bundle Branch Block
Replies: 2
Views: 521

Re: O/T EKG SHOWS Bundle Branch Block

I'd be upset too. But the doctors are telling you it's not a problem, so try not to worry.

I hope your surgery goes well and you have a fast recovery.

Sally
by mypinkheaven
Sun Mar 25, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1006

Re: Erythema ab igne

I use a heating pad pretty often for abdominal. I knew you could get a burn, but I didn't know about the skin problems. I do make sure I have something like my PJ's between the heating pad and my skin.

I hope yours clears up quickly.

Sally 8)
by mypinkheaven
Sat Mar 17, 2018 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump successful for candidates with lung metastases?
Replies: 4
Views: 663

Re: HAI pump successful for candidates with lung metastases?

The secretary you spoke to may have misunderstood if you were asking if the HAI pump works on lung mets. HAI would only treat the liver mets. Although Kemeny specializes in the HAI pump, she has seen patients with only lung mets - not many. Try to get in to see her as a second opinion. I know that o...
by mypinkheaven
Thu Mar 15, 2018 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS Mutation- any one long term NED?
Replies: 21
Views: 2762

Re: KRAS Mutation- any one long term NED?

My mum is not NED as she has multiple lung nodules that are inoperable. She is a NRAS mutant. Our onco also told us that there are no more drugs to use after folfiri, which made us very worried as well. Mercy I'm also NRAS mutated. After Folfox and Folfiri failed, I was put on 5FU + Erbitux before ...
by mypinkheaven
Tue Mar 13, 2018 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 3146

Re: Possible for long term remission with only chemo?

This 5th round coming up will be just before an already planned trip. Going north for oldest grandchilds hischool graduation party. So blood wrk will be taken, Avastin and one push of 5FU, no pump this time. No Oxi so I don't have side effects for the time I'm gone. 10 days of relative normalness (...
by mypinkheaven
Fri Mar 09, 2018 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 3146

Re: Possible for long term remission with only chemo?

This 5th round coming up will be just before an already planned trip. Going north for oldest grandchilds hischool graduation party. So blood wrk will be taken, Avastin and one push of 5FU, no pump this time. No Oxi so I don't have side effects for the time I'm gone. 10 days of relative normalness (...
by mypinkheaven
Sat Feb 17, 2018 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: explanations of colonoscopy
Replies: 2
Views: 379

Re: explanations of colonoscopy

My 39 year old son had his first colonoscopy yesterday, and these are the results: "A sub-mucosal, infiltrative, ulcerated and fungating non-bleeding 8 cm mass of malignant appearance and was found in the distal rectum at a distance between 8cm and 16 cm from the anus He had been bleeding and ...
by mypinkheaven
Mon Feb 12, 2018 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018
Replies: 181
Views: 46889

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

One of the best things about this forum, besides CR Guy and all the other great members, is the search function. I don't know of any other groups (including FaceBook groups) that have a search function that works as well. There is a wealth of information and experience here.
by mypinkheaven
Sat Feb 10, 2018 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got real, y'all
Replies: 29
Views: 3435

Re: Just got real, y'all

Good luck with your treatment. Let the docs know your side effects so they can be taken care of right away. You'll do fine 8)
by mypinkheaven
Sat Feb 03, 2018 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda "withdrawal" symptoms?
Replies: 9
Views: 780

Re: Xeloda "withdrawal" symptoms?

I've had hand foot syndrome since cycle 2. I've been well moisturized with Udderly Smooth. I've read that a cream with urea helps. Maybe the Udderly Smooth isn't getting to the skin layer underneath the very top - that seems like it could cause itching. Urea helps get rid of that very top super dry...
by mypinkheaven
Wed Jan 17, 2018 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please! UPDATED
Replies: 10
Views: 1151

Re: Help with Disability please! UPDATED

I'm so glad the SSDI went through quickly. Best wishes!

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