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by mypinkheaven
Sat Feb 17, 2018 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: explanations of colonoscopy
Replies: 2
Views: 122

Re: explanations of colonoscopy

My 39 year old son had his first colonoscopy yesterday, and these are the results: "A sub-mucosal, infiltrative, ulcerated and fungating non-bleeding 8 cm mass of malignant appearance and was found in the distal rectum at a distance between 8cm and 16 cm from the anus He had been bleeding and ...
by mypinkheaven
Mon Feb 12, 2018 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018
Replies: 176
Views: 38597

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

One of the best things about this forum, besides CR Guy and all the other great members, is the search function. I don't know of any other groups (including FaceBook groups) that have a search function that works as well. There is a wealth of information and experience here.
by mypinkheaven
Sat Feb 10, 2018 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got real, y'all
Replies: 19
Views: 1332

Re: Just got real, y'all

Good luck with your treatment. Let the docs know your side effects so they can be taken care of right away. You'll do fine 8)
by mypinkheaven
Sat Feb 03, 2018 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda "withdrawal" symptoms?
Replies: 9
Views: 328

Re: Xeloda "withdrawal" symptoms?

I've had hand foot syndrome since cycle 2. I've been well moisturized with Udderly Smooth. I've read that a cream with urea helps. Maybe the Udderly Smooth isn't getting to the skin layer underneath the very top - that seems like it could cause itching. Urea helps get rid of that very top super dry...
by mypinkheaven
Wed Jan 17, 2018 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please! UPDATED
Replies: 10
Views: 833

Re: Help with Disability please! UPDATED

I'm so glad the SSDI went through quickly. Best wishes!
by mypinkheaven
Wed Jan 17, 2018 10:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back in the fight
Replies: 60
Views: 3062

Re: Back in the fight

Best wishes to you macpudd!
by mypinkheaven
Tue Jan 16, 2018 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 39
Views: 2721

Re: Tribute to my dear friend Anne - aka BeansMama

I really thought that Annie would grow to be an old lady and see her Bean get married and have grandchildren. It's so sad that that was not to be. But Annie left a legacy of love that I hope will sustain her family and friends. Best wishes to her sweet daughter.
by mypinkheaven
Sun Jan 14, 2018 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama is gone.
Replies: 37
Views: 2321

Beansmama is gone.

I just read a FaceBook post that Annie has died. She fought so hard and was such a sweet person. My sincerest condolences to all her many friends and family.
by mypinkheaven
Sat Dec 16, 2017 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA treatment in MSKCC - covered by insurance? costs?
Replies: 4
Views: 401

Re: RFA treatment in MSKCC - covered by insurance? costs?

We aren't patients there. We aren't wealthy and he doesn't have insurance. I need to look into getting him insurance once I'm there. Im not even sure where to start. Your father may be eligible for Medicaid if he is low income. Go to Medicaid.gov to get information on how to apply. MSK accepts medi...
by mypinkheaven
Sat Dec 16, 2017 1:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why would my Oncologist say Surgery is no longer an option
Replies: 11
Views: 1323

Re: Why would my Oncologist say Surgery is no longer an option

Hi there. new to the forum. I was just dx with recurrant mets to the peritoneum and my Onc said that surgery is no longer an option. I am trying to understand why he automatically ruled that out. Last February I had a liver and colon ressection (They also took my gall bladder as well) and I recover...
by mypinkheaven
Sat Dec 16, 2017 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Medicare versus Private Insurance--Advice please?
Replies: 4
Views: 472

Re: Medicare versus Private Insurance--Advice please?

When you're on SSDI, you're automatically enrolled in Medicare after 2 years. Medicare will cover 80% of your medical costs. You'll need to enroll in a prescription plan - you can find them on the Medicare website. You should have some supplemental insurance to cover the 20% that Medicare doesn't co...
by mypinkheaven
Sat Dec 16, 2017 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: At Slight Crossroads and NCT01174121
Replies: 15
Views: 1303

Re: At Slight Crossroads and NCT01174121

DAS43 wrote:I just had my follow up there. It is working great for me. I will be praying for great results for your wife


You're having shrinkage on the TIL trial? 8)
by mypinkheaven
Sun Dec 10, 2017 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please! UPDATED
Replies: 10
Views: 833

Re: Help with Disability please!

If you are also low income, you can apply for Medicaid. Medicaid will cover the 20% of medical bills that Medicare doesn't cover. Also look up "Medicare Extra Help" for help paying for prescriptions.
by mypinkheaven
Sun Dec 10, 2017 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccuring Digestive issues
Replies: 13
Views: 594

Re: Reoccuring Digestive issues

I've had 3 abdominal surgeries plus pelvic radiation and have dealt with digestive issues daily for 5 years. Like Miss Molly, I would recommend Miralax. I take it once every day. I also have to stay way from too many vegetables. Well cooked ones are OK. The low fiber diet is easier to digest and the...

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