Search found 13 matches

Go to advanced search

by khadars
Mon May 23, 2016 2:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have luck with non-traditonal late stage treatment
Replies: 10
Views: 1535

Re: Anyone have luck with non-traditonal late stage treatment

Sorry I know of no non-traditional cures. If cancer could be eliminated with "all-natural sunshine" and such things, no one would ever suffer from this terrible disease.

Chemo, radiation, surgery -> those are all the tools we have.
by khadars
Mon May 23, 2016 1:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR three years on
Replies: 9
Views: 1265

Re: LAR three years on

OK. Please try more soluble fiber. Apples, bananas and rice to some extent have a good track record of firming up stools. After eating those foods to firm up the bulk, you may need to get on some colace temporarily to keep the stool flowing through your colon. Unless this is a LAR syndrome (which a ...
by khadars
Sun May 22, 2016 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Searching for what is or is not reasonable
Replies: 5
Views: 1083

Re: Searching for what is or is not reasonable

Seattle is much better than Arizona in cancer care.

Please go to the University of Washington Cancer Center.
by khadars
Sun May 22, 2016 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR three years on
Replies: 9
Views: 1265

Re: LAR three years on

Metamucil!
by khadars
Sun May 22, 2016 10:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Folfox on Monday
Replies: 48
Views: 4740

Re: Starting Folfox on Monday

Please ask your doctor to add a biologic to kill any remaining cells/cancer in your body.

I would recommend you ask for Avastin (Biologic) as well as a PET scan to see if the stuff is anywhere else in your body.
by khadars
Sun May 22, 2016 10:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Awaiting Colonospy Date Scared
Replies: 37
Views: 3811

Re: Awaiting Colonospy Date Scared

Get it done ASAP. It is always better to know than to not know.

Stare the fear into its face. Blessings.
by khadars
Sun May 22, 2016 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 weeks post-reversal
Replies: 11
Views: 4450

Re: 5 weeks post-reversal

I had all of the above that you've described. The only thing that helped was time. I've seen a lot of board members use colace. This seems to help with keeping the stool moving through your colon. Often times, after ileostomy surgery, the colon is confused after having been disconnected for so long....
by khadars
Sun May 22, 2016 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation for lungs???
Replies: 14
Views: 1754

Re: Radiation for lungs???

I will post my two cents here. Take my advice/comments with a grain of salt, since I am not a medical oncologist or radiologist. Having said that, a lot of board members here have had SBRT (I am assuming this is the kind you will have) on their lung mets. This seems to have been very successful, and...
by khadars
Thu May 19, 2016 5:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BIG (BIG!) MSS-CRC Immunotherapy News Out of ASCO! (MEKi + PDL1i)
Replies: 13
Views: 7798

Re: BIG (BIG!) MSS-CRC Immunotherapy News Out of ASCO! (MEKi + PDL1i)

cobimetinib was approved by FDA last year, and atezolizumab was approved yesterday. i'm sure that if you find a way to convince your doctor to ask you to give you the drugs, it's possible.

i'm sorry that a clinical trial is not possible.
by khadars
Thu May 19, 2016 7:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 CC and no scans for first 5 months of treatment?
Replies: 14
Views: 1823

Re: Stage 4 CC and no scans for first 5 months of treatment?

Please push for a scan. If they don't approve it don't fret. Is it better to know than to not know? Yes, definitely. It is better to know if anything pops up. Don't be afraid of a scan. It makes a big difference to go to a cancer center that is on the NCI list. The higher ranked the better, IMHO. Th...
by khadars
Thu May 19, 2016 7:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about possible future lung mets
Replies: 13
Views: 1377

Re: Question about possible future lung mets

See if you can go to Germany or UK to get the Lung Surgery from Dr. Axel Rolle or George Ladas. There are a few here on this site who have been there and done that. In order for these guys to see you, the only affected organ has to be the liver, I believe, 99% sure, especially dr. Rolle. Dr. Ladas i...
by khadars
Thu May 19, 2016 7:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BIG (BIG!) MSS-CRC Immunotherapy News Out of ASCO! (MEKi + PDL1i)
Replies: 13
Views: 7798

Re: BIG (BIG!) MSS-CRC Immunotherapy News Out of ASCO! (MEKi + PDL1i)

Bless you Tom. Having the right information is half the battle with Stage IV MSS-CRC! Gives us a chance to spend more time with loved ones! Best.
by khadars
Wed May 04, 2016 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New MSS-CRC Immunotherapy Trial: TIL Trial at MD Anderson
Replies: 2
Views: 1459

Re: New MSS-CRC Immunotherapy Trial: TIL Trial at MD Anderson

DK37, Do you have any idea of where the 2nd TIL site might be? Thanks!

Go to advanced search