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by Eternal optimist
Wed Oct 02, 2019 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Do you have experience with CareOncology.com?
Replies: 7
Views: 836

Re: Do you have experience with CareOncology.com?

I have been on the care oncology protocol for just over 2 years, and against the odds became NED about 20 months ago. I started the regime after my second recurrence, I had little/no response to my first line chemo and was diagnosed with multiple mets, and I credit the Care Oncology protocol with he...
by Eternal optimist
Sat Sep 07, 2019 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 2782

Re: It has come back...in the LNs...

This is why you should have chemo first before any targeted treatment. Hi Eternal optimist, I was wondering what do you mean by doing chemo first before any targeted treatment, do you mean targeted antibodies or did you mean removal of LNs? Regards, Siti Sorry I missed this Siti, I've been busy and...
by Eternal optimist
Sat Sep 07, 2019 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Budwig diet
Replies: 8
Views: 763

Re: The Budwig diet

I used to follow the Budwig diet for a while. I had the Budwig muesli for breakfast, but didnt do this rest of the diet... which actually lays out exactly what you eat every day and when (starting with sauerkraut juice before the muesli and including a glass of champagne mid morning!) Some days I li...
by Eternal optimist
Wed Jun 05, 2019 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 2782

Re: It has come back...in the LNs...

I had PALN mets when was diagnosed, and 2 PALN recurrences. The first were surgically removed, the second treated with radiotherapy and the third shrunk away within my first 3 months of chemo for life. They stopped showing up on scans 18 months ago, and I have had no evidence of visible disease for ...
by Eternal optimist
Mon Sep 24, 2018 1:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix - Distant LN spread
Replies: 6
Views: 1234

Re: Vectibix - Distant LN spread

I have been on Erbitux since my last recurrence a year ago, with irrinotican and 5fu for 15 cycles which got me to NED and with 5fu alone as a maintenance treatment since my operation in july. I find it completely tolerable, I don't get a significant rash or any other side effects except split skin ...
by Eternal optimist
Wed Aug 22, 2018 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 currently NED- what would you do now?
Replies: 6
Views: 1963

Re: Stage 4 currently NED- what would you do now?

Hi all, sorry for my slow reply, I was away over the weekend and our break turned out much busier than I had envisaged so I didn't get back online. Thank you for your responses, they have helped me think more clearly about my decisions. I am on the COC protocol, and also take various supplements (I ...
by Eternal optimist
Thu Aug 16, 2018 4:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 currently NED- what would you do now?
Replies: 6
Views: 1963

Stage 4 currently NED- what would you do now?

Hi all, I'm just looking for opinions on what treatment I should have now. I was diagnosed stage 4, with spread to para aortic nodes, 3 1/2 years ago. Since then I have had 2 recurrences, 1 to para aortic nodes (PALNs) and 6 months later PALNs again, plus possibly lungs. The PET scan that found my s...
by Eternal optimist
Mon Jan 29, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Para-aortic node recurrence
Replies: 15
Views: 3490

Re: Para-aortic node recurrence

Hi Brenda, Sorry its taken me so long to to reply, I had a busy christmas and haven't been on the site much. I've updated my signature, so as you can see I had another recurrence last summer, but I'm doing ok in that am feeling well on the treatment and seem to be responding. I had felt foolhardy no...
by Eternal optimist
Mon Jan 29, 2018 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Care Oncology Clinic
Replies: 3
Views: 1083

Re: Care Oncology Clinic

I use Care Oncology Clinic in the UK, and know a number of other people who also use their protocol, and who are very keen on it. They offer 1 main protocol, with tweeks for some patients I believe. The meds they prescribe are metformin, statins, doxycycline and mebendazole, with the latter 2 each t...
by Eternal optimist
Mon May 15, 2017 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help- signet ring cell & two primary cancers! Rare & scared
Replies: 20
Views: 5213

Re: Please help- signet ring cell & two primary cancers! Rare & scared

Its great to hear that your husband his recovered so well after his surgery. The two centres that perform Hipec in the UK are Basingstoke Hospital and Christies in Manchester. I may be mistaken but believe Basingstoke have been doing the procedure for longer and have more experience. I know a few pe...
by Eternal optimist
Sun Apr 30, 2017 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Odd Feeling
Replies: 4
Views: 1334

Re: Odd Feeling

I have similar 'odd feelings' around my previous stoma site and (less so) around my resection site. I have been told its adhesions and other scar tissue. Mostly I have a pulling sensation- which is the scar tissue not being flexible, but I also get a pressure feeling and some crampy pain when I have...
by Eternal optimist
Mon Apr 10, 2017 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid tumor & Para Aorta spread - Please help our little family -
Replies: 14
Views: 4464

Re: Sigmoid tumor & Para Aorta spread - Please help our little family -

Hi Sarah, My understaning of UK treatment for stage 4 bowel cancer is that you will get chemo first, before any operation. This will probably be folfox- oxalyplatin and capecitabine or 5fu. It is possible that your husband will be offered another first line treatment instead, but they are all from a...
by Eternal optimist
Fri Apr 07, 2017 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid tumor & Para Aorta spread - Please help our little family -
Replies: 14
Views: 4464

Re: Sigmoid tumor & Para Aorta spread - Please help our little family -

Hi there, I can only write a quick message as I'm in the UK and its past my bedtime! I was diagnosed just over 2 years ago with para aortic spread. My para aortic nodes were operable as they were low down (some are not possible to operate on as they are buried in the chest), but I had 6 months of ch...
by Eternal optimist
Tue Feb 21, 2017 9:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice about interruption of Radiotherapy treatment
Replies: 2
Views: 617

Re: Need advice about interruption of Radiotherapy treatment

I'm dont know the specifics in terms of numbers, but radiotherapy is cumulative- it works because the treatments are delivered over time and the cells are not given a chance to recover before they get their next dose and are damaged again. For example at my hospital over christmas they schedule sess...
by Eternal optimist
Sat Jan 07, 2017 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 16
Views: 3796

Re: Stg 4 para aortic and Iliac Lymph Nodes

Hi there, When i was diagnosed my illiac lymph nodes were enlarged (i dont know whether they lit up on the PET). They were still slightly enlarged before my surgery 9 months later, but have been normal ever since (12 months), so were reactive even before surgery or chemo. My tumour was in my sigmoid...

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