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by LPL
Sun Jun 17, 2018 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 5
Views: 162

Re: A cautionary tale

risto, Thank you for your post. Very Sad to hear what happened to him & his family! ...forgo evidence based medicine and instead go with naturopathic treatment. I do wish though that more hospitals could have a naturopath included in the team. It does feel like oncologist say No to all ‘things’ ...
by LPL
Sun Jun 17, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Communicating the Complexities
Replies: 1
Views: 100

Re: Communicating the Complexities

Wonderful !! Thank you Maggie <3
by LPL
Sat Jun 16, 2018 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 11
Views: 222

Re: Taste Change Advice

I don’t know if this can give some advice.
But it is an article titled:
Understanding Taste and Smell Changes
Information for people affected by cancer
https://www.cancerwa.asn.au/resources/2 ... hanges.pdf
by LPL
Sat Jun 16, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospice
Replies: 9
Views: 397

Re: hospice

stu wrote:Sending our love at such a difficult time .
Stu

I agree with Stu’s words.
SO Sorry that you both have to be in this situation :cry:
I hope they can find relief for his pain.
by LPL
Fri Jun 15, 2018 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Frozen Bowel from Colon Resection and chemo for IIA
Replies: 5
Views: 174

Re: Frozen Bowel from Colon Resection and chemo for IIA

Emkaye, I’m sorry to hear about your mother’s problem. I hope her bowel will wake up soon and that she will feel better! For my hubby it was a slow start, it felt like they did not give him much to eat. Maybe it was to make it easier for the bowel. A longer surgery I presume will involve more bowel ...
by LPL
Fri Jun 15, 2018 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 11
Views: 222

Re: Taste Change Advice

crikklekay, Years ago, and in another cancer forum, I read & saved the following: “Some cancer drugs can affect the taste.” A lady wrote that she tried all kinds of food (for example an egg or a slice of ham) but ’everything’ tasted like ”moldy clay” (she said that of course she had never eaten ...
by LPL
Fri Jun 15, 2018 6:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What are the risks of PET scan?
Replies: 10
Views: 316

Re: What are the risks of PET scan?

CRguy wrote:
I once told a Doc I wouldn't worry either if HE was having the problem, when he said he wouldn't worry about it.

Wow CRguy, you say So many good things!
I will be saving this (also).
Thank you for being a moderator here :!:
by LPL
Thu Jun 14, 2018 5:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 10
Views: 358

Re: Does anyone have a little drinky drink during chemo?

Rikimaroo, We live in France. My husband’s doctors said ”no restrictions regarding what to eat or drink” when he asked. Hubby drank vine with dinner and maybe 1 day a week he took a ’little something’ to the coffee. mhf1986 wrote: Bilirubin is down to 2 from 6.4 a month ago and other numbers are imp...
by LPL
Sun Jun 10, 2018 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice for caregivers
Replies: 8
Views: 355

Re: Advice for caregivers

dliu, Good to hear that things are getting a little better. I do not know if it is recommended for your mom but maybe extra protein could help? There are powder you can add to favorite drinks, perhaps to hot chocolate if she likes that. You wrote: LPL, if I may ask, where are you now living? I have ...
by LPL
Fri Jun 08, 2018 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anyone here with Kras T53 mutation
Replies: 16
Views: 324

Re: anyone here with Kras T53 mutation

NHMike wrote: KRAS G13D would be similar to G12D, it's just in the 13th Codon instead of the 12th. Well.. thank you for replying Mike. I do understand it is in a different codon. Not sure it is “similar to G12D” though.. I have seen research where they say there are differences between Kras codon 1...
by LPL
Fri Jun 08, 2018 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anyone here with Kras T53 mutation
Replies: 16
Views: 324

Re: anyone here with Kras T53 mutation

Dear GrouseMan,
Do you know if I should care that my husband has another kind of Kras? See my signature, ”Kras G13D”. We do not know about any other mutations, like T53 etc. No test done for that as far as I know.
by LPL
Fri Jun 08, 2018 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 33
Views: 2497

Re: Trying Keytruda Off-Label (MSS with a Twist)

Jack&KatiesMommy wrote:UPDATE: two weeks after my second treatment of a Keytruda (as an MSS patientbwith a moderate mutation burden) my CEA has gone from 60.5 down to 39.5!

Wonderful news :)
by LPL
Thu Jun 07, 2018 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice for caregivers
Replies: 8
Views: 355

Re: Advice for caregivers

Hi dliu I’m a caregiver. But a wife not a daugher so it may be different. But I belive that all caregivers feel helpless at times - not knowing what/the best way to behave. When it happens you want it to be untrue. It is a ’family crises affecting everyone’. You want to wake up next morning and lear...
by LPL
Wed Jun 06, 2018 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 41
Views: 5139

Re: Keytruda? What else is new?

Hello Have been declared NED with clear CT and normal CEA Levels of 1.5 . To continue with Opdivo for now. May stop after 6 months or a year. Oncologist doesn't want to risk a relapse and taking conservative approach. Will update in detail later. BIG CONGRATULATIONS :D Declared NED with clear CT an...
by LPL
Mon Jun 04, 2018 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone pain
Replies: 14
Views: 429

Re: Bone pain

Sara!!!! wrote: We had a pet MRI last Monday due to the pain she was having and it did not mention anything regarding the l4 vertebra. If she had the fracture after that why was she having pain before? And if she already had fracture wudnt the pet have shown something? As I understand this paper a ...

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