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by LPL
Mon Jul 24, 2017 4:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 58
Views: 1894

Re: BrownBagger ....... I don't know what to say

Oh NO - SO Sad to read this :cry:
RIP BrownBagger, you will be missed !!
A Warm HUG to you CRguy.
(thinking I can feel a little how you are feeling now - I lost my 'soul'-Sister 2 days after my DH was diagnosed.)
by LPL
Sun Jul 23, 2017 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pinch me, I must be dreaming.... It was 13 years ago today!!!
Replies: 24
Views: 651

Re: Pinch me, I must be dreaming.... It was 13 years ago today!!!

cptmac,
Thank You very much for sharing your story !
And Happy Birthday/Cancerversary :D
by LPL
Fri Jul 21, 2017 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 2437

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

To Kobe, Added info about the 2017 paper Pharmacogenetic testing through the direct-to-consumer genetic testing company 23andMe that I linked to in my previous post. That paper had a Reference (#30) a systematic review and meta-analysis of individual patient data, published in The Lancet Dec 2015. T...
by LPL
Fri Jul 21, 2017 3:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On the cover of Newsweek !!!!!
Replies: 14
Views: 788

Re: On the cover of Newsweek !!!!!

Thank you so much Tom & Maia for what you both do.
You sure deserve being on the front page of Newsweek & in the article, Wonderful !! :D
by LPL
Thu Jul 20, 2017 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hellooo Neuropathyiiiiiiiiiii
Replies: 42
Views: 2117

Re: Hellooo Neuropathyiiiiiiiiiii

[Ana & Alex] wrote: Anyone has experience with Irinotecan and Capecitabine? Hi Ana, I have no experience with this treatment but I have been reading a little about side effects and genes(tests), regarding different treatments. Maybe this paper is of interest for you? From 2015 Irinotecan Therap...
by LPL
Thu Jul 20, 2017 11:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 2437

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

Hi again Kobe, I am pretending that you know how to search your raw data and how to interpret. Disclamer: Please know that I am not an expert but this below is how I interpret what I have read. Will start with this paper that I found the other day, From (Sep 2016) Capecitabine Therapy and DPYD Genot...
by LPL
Thu Jul 20, 2017 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 2437

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

Hi Kobe, :wink: How did you know that I was just looking in to this for you today (have had family visiting for a week but they left this morning). Have also found recent papers that was not published when I searched DH's 23andme raw data last year. I will post later today (I hope) with a summary. Y...
by LPL
Wed Jul 19, 2017 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Results - More Cancer???
Replies: 55
Views: 4685

Re: PET Scan Results - More Cancer???

I really, really, really, really dislike his local oncologist or at least the Cancer Center. It seems like the left hand has no idea what the right hand is doing. If this is also your husband's feeling about your local Onc/Cancer Center - then to me this does not sound good for the future .. Let me...
by LPL
Wed Jul 19, 2017 4:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Slightly O/T: Inflammatory Bowel Disease and Glyphosate
Replies: 13
Views: 1177

Re: Slightly O/T: Inflammatory Bowel Disease and Glyphosate

Jacques , Thank you very much ! I was hoping someone would suggest 'flames', because that is what I had imagined would be an alternative even though I've never seen one up front. And reading about it now, in the 1st link you posted, makes me think it would be perfekt for gravel - it's not like I ne...
by LPL
Tue Jul 18, 2017 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Direction??
Replies: 10
Views: 963

Re: New Direction??

Thank you everyone for your responses. To answer some of your questions, I am in Florida. I don't know much about the genetic testing but this is what I found in DH records KRAS/ NRAS MUTATION PANEL. This testing was done from Onc #1 when he was first dx. I'm not exactly sure what it means. We will...
by LPL
Sun Jul 16, 2017 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm busted
Replies: 33
Views: 5415

Re: I'm busted

Wonderful news :D
Big congratulations wwroam !!!
by LPL
Sun Jul 16, 2017 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1882
Views: 117308

Re: The Grim Reaper took another swipe at me !!

Dear Diane, I'm so sorry for your loss! Maybe I am speaking for many who never spoke directly to Frenchie/Ron, butt who like me read for example all his posts in this thread. It felt like I came to know him and I liked him so very much !! To me it felt like he was a very special man! I'm sure you mu...
by LPL
Sun Jul 16, 2017 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Twilight sleep or Propoful for Colonoscopy?
Replies: 17
Views: 712

Re: Twilight sleep or Propoful for Colonoscopy?

BS, Very Interesting this difference between Male & Female Colon ! Thank you for that info. As I understand it the length of the colon can vary from person to person? There was a note in the surgery report from my husband's primary tumor resection + anastomoses that his colon was very short (wha...
by LPL
Sun Jul 16, 2017 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DPD Enzyme testing - did your insurance cover it?
Replies: 4
Views: 157

Re: DPD Enzyme testing - did your insurance cover it?

Kobe, have you received your result from 23andme?
You can find some info there. I checked for my husband before he started Folfox.
by LPL
Sun Jul 16, 2017 5:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Do they keep missing polyps?
Replies: 2
Views: 434

Re: Do they keep missing polyps?

Hi cmrl, It looks like there is reseach in this area. "Fluorescence colonoscopy in patients receiving intravenous GE-137 enabled visualization of all neoplastic polyps that were visible with white light (38), as well as an additional nine polyps that were not visible with white light. This firs...

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