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by LPL
Mon Mar 18, 2019 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For anyone seeking encouragement, inspiration....
Replies: 2
Views: 1357

Re: For anyone seeking encouragement, inspiration....

....please watch the linked video below. Last night, seeking my own inspiration and randomly searching pages here I discovered this thread: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=1507&p=9066&hilit=online#p9066 which led me to this video: https://youtu.be/OXpaNEWmFw8...
by LPL
Mon Mar 18, 2019 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, need some advice, very nervous!
Replies: 7
Views: 173

Re: Please help, need some advice, very nervous!

CG1644, I agree with what other members have said - no one can know for sure until a colonoscopy & biopsi is done. I am so sorry you and your son has to deal with this unknown. Good that he is coming home to his family that can support. This waiting for tests and results is hard! I am hoping it ...
by LPL
Mon Mar 18, 2019 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan-time
Replies: 8
Views: 183

Re: Scan-time

Hi Paola, scanxiety is no fun :(
Sending a Lot of Good thoughts your way!
by LPL
Sun Mar 17, 2019 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 year old with polyps
Replies: 11
Views: 191

Re: 38 year old with polyps

Ac533, Good for you to get a colonoscopy!
Glad to hear you only ha polyps and not cancer!
Maybe now that you know that you obviously are ‘making these’ unlike some other family members, you will be checked regularly I presume. All the best to you.
by LPL
Fri Mar 15, 2019 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Discharged with abnormal ECG
Replies: 11
Views: 361

Re: Discharged with abnormal ECG

Actually, he hasn't had an abnormal ECG before this except when he was in congestive heart failure in January 2017, right before he was diagnosed. It was normal this August and normal on February 25, 2019. It was also normal on the day of surgery, March 7th, then became abnormal, March 8th. In any ...
by LPL
Fri Mar 15, 2019 3:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 172661

Re: TIL Immunotherapy at NCI

DAS43 wrote:I can't believe it but it's TRUE. It's been 2 years since I received my cells!. My follow up was today and praise the lord everything remains the same. I will follow up in 6 months.

So Happy for you DAS :D
Thank you for updating us.
Big Congratulations !!!
by LPL
Thu Mar 14, 2019 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy coming up....gastroenterologist or surgeon?
Replies: 10
Views: 244

Re: Colonoscopy coming up....gastroenterologist or surgeon?

At the Cancer Center (Institute, in France) where my husband is treated, he has up to now had 2 coloscopies. His oncologist has prescribed these procedures and the same GI-doctor, actually he is a professor (not hubby’s surgeon) has done it. This Cancer Institute have a special unit for coloscopies ...
by LPL
Wed Mar 13, 2019 5:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone in similar situation? No primary, L4 and adrenal gland mets
Replies: 3
Views: 192

Re: Anyone in similar situation? No primary, L4 and adrenal gland mets

Hello everyone, My husband (52 now) was diagnosed with colon cancer metastasized to the bone last April. He'd had back pain for a while but was putting it on aging/arthritis, even though he's very active physically. Finally it got so bad that he got checked and what we thought was a pinched nerve t...
by LPL
Wed Mar 13, 2019 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why you really need to know your tumor genetics
Replies: 21
Views: 738

Re: Why you really need to know your tumor genetics

AmyG, best of luck next week! I have only given birth to 3 so I know nothing.... :lol: compared to you. I am in France and there I understood it as they wanted a few chemo (4-6) (folfox for hubby - he is kras mutant) before liver surgery, even if the tumors where resectable up front as my husband’s ...
by LPL
Wed Mar 13, 2019 4:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 90
Views: 6194

Re: Possibly still NED...our story to date

Thanks to everyone for the well wishes. I started a new thread about this in case people with pump experience have relevant information to share. Here it is: So the flow scan test that was done yesterday showed leakage into liver lymph nodes. Dr. D’Angelica did not seem overly concerned but said th...
by LPL
Tue Mar 12, 2019 5:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 90
Views: 6194

Re: Possibly still NED...our story to date

So the pump flow scan went well and I heard the only anomaly, albeit a common one, is that a couple of liver lymph nodes lit up. I don’t know what this means. All I know is that it is something that Dr. Kemeny addresses. A whirlwind of a day trying to get him discharged in the middle of rush hour. ...
by LPL
Tue Mar 12, 2019 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 67
Views: 4025

Re: CEA Levels

Rikimaroo wrote:Well thats good news then. I will mention to my Oncologist and see what his thoughts are. I have been ramping up my immune system. Taking natural stuff to see if it helps.

Rikimaroo, do you know the important genetics of your cancer?
I can’t see anything mentioned in your signature.
by LPL
Mon Mar 11, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coordination between oncologists - how to proceed?
Replies: 7
Views: 221

Re: Coordination between oncologists - how to proceed?

Zephyr. I’m sorry you did not get good news :( I was thinking, regarding your doctors - you said: “the major cancer center and the local cancer center are actually both "local".”. Maybe these doctors know each other and really want to help you if they can in this situation? I do hope they ...
by LPL
Mon Mar 11, 2019 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Never mind
Replies: 18
Views: 787

Re: Never mind

I'm not the one who has cancer, but it doesn't change the fact that this is the worst and harder thing I've ever had to face . And this is not necessarily "making it about me," it is just a fact. I also didn't see the original post, but I'm a caregiver to my husband and this statement rea...
by LPL
Mon Mar 11, 2019 3:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 74
Views: 17174

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Hi Cynthia, Thank you SO MUCH for posting your story about your Keytruda success. As a direct result of your post and this thread, my Stage IV MSS mom had an incredibly encouraging appointment this past week with Dr. VanDeusen at OSU (we live in Cincinnati) and will begin Keytruda in the next week ...

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