Search found 586 matches

Go to advanced search

by LPL
Mon Apr 15, 2019 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21264

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Pyro wrote:Well I get my 8 week blood test results today,probably followed my a scan. Cross your fingers, I don’t know what to do if it hasn’t worked.

Best Wishes for you Pyro !
My fingers are crossed.
by LPL
Mon Apr 08, 2019 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 104
Views: 11051

Re: My CRC with liver mets journey

Well I must be doing well because they want to start the pump chemo TODAY. We were just expecting saline. Glad I had sushi yesterday! Sounds like they only found one affected lymph node, near the colon, which was removed during surgery. Pathology on all the other nodes was negative. I was a bit sur...
by LPL
Sun Apr 07, 2019 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 104
Views: 11051

Re: My CRC with liver mets journey

I had a CT scan yesterday and Sandy called me today to say there was a blood clot on my spleen vein. Back to MSK for syringes full of blood thinner - I gave myself a shot in the bathroom and then we took a bus tour of NY! I’m now 9 days out. My swelling has been reduced significantly, and I’m walki...
by LPL
Fri Apr 05, 2019 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mixed mri results
Replies: 36
Views: 1452

Re: mixed mri results

Hurray!! So happy to hear this Hopie :)
Best wishes that the surgery will go very well.
by LPL
Fri Apr 05, 2019 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My husband has passed
Replies: 20
Views: 1147

Re: My husband has passed

I am so sorry to hear this sad news :cry:
Sending love to you and your children.
by LPL
Thu Apr 04, 2019 12:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of you AmyG
Replies: 26
Views: 1603

Re: Thinking of you AmyG

Amy, I’m sending positive vibrations and Best of luck regarding your port placement and CT tomorrow!
Will be thinking about you <3
by LPL
Thu Apr 04, 2019 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mixed mri results
Replies: 36
Views: 1452

Re: mixed mri results

Hopie, Wonderful news about the surgeon you wanted! :)
Best of luck (again :wink: ) tomorrow!
by LPL
Thu Apr 04, 2019 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2019
Replies: 42
Views: 6131

Re: Cancer immunotherapy may have a dark side

I see a recent article in Science that will be published soon that there are concerns the possibility that in a few instances that so called checkpoint inhibitors could be the cause of "hyperprogression" seen in a few patients. Some cancer researchers wonder whether it is simply an illusi...
by LPL
Thu Apr 04, 2019 12:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mixed mri results
Replies: 36
Views: 1452

Re: mixed mri results

Good Luck today Hopie ! My husband did 4 chemo before liver resection and 8 after. The CT-scan after 4 chemo showed that 1 met had shrunk a little and 1 met had grown a little. (I called that ”no change” in my signature). The pathology said the same for both liver mets; that it was very few living c...
by LPL
Sun Mar 31, 2019 2:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 104
Views: 11051

Re: My CRC with liver mets journey

Oh wow :shock: I presume they had my bed on max the whole time then. I could feel how the mattress changed now and then.
Good that you figured out how to make it better.
by LPL
Sat Mar 30, 2019 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 104
Views: 11051

Re: My CRC with liver mets journey

The pump study went well, the follow told me it was working perfectly. In other good news we learned to hack these terrible beds. I swear the bed is giving me more pain than the surgery! Still no bowel movement, so they don’t want to discharge me. But I’m feeling good so I may insist on it tomorrow...
by LPL
Sat Mar 30, 2019 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tests for evaluating chemo between scans?
Replies: 15
Views: 703

Re: Tests for evaluating chemo between scans?

Zephyr wrote: I believe the combination of MSI and KRAS exclude immunotherapy options but I'm checking into the Foundation One information. Where have you heard that? I thought it was the MSI status and not the mutations that was of importance.. Please share when you find out. Is there an emoticon ...
by LPL
Sat Mar 30, 2019 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Preparing a facts & to-do-list for "newcomers"?
Replies: 35
Views: 3293

Re: Preparing a facts & to-do-list for "newcomers"?

Here's another little-known fact relevant for newcomers from the US or Canada: In the U.S., possible toxicity due to excess folate or Vitamin B9 https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50140&hilit=folate#p382499 Thank you for posting this O Stoma Mia. I didn’t know ther...
by LPL
Sat Mar 30, 2019 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tests for evaluating chemo between scans?
Replies: 15
Views: 703

Re: Tests for evaluating chemo between scans?

Zephyr wrote:
I believe the combination of MSI and KRAS exclude immunotherapy options but I'm checking into the Foundation One information.

Where have you heard that? I thought it was the MSI status and not the mutations that was of importance.. Please share when you find out.

Go to advanced search