Did they have to do another surgery, my body is so beat up not sure if I can handle much more, I have lupus and Sjögren's syndrome so this has really sent me over the limit. I had hernia repair and then 6wks later the lar. :? No no surgery , the interventional radiology put a drainage that came out...

My fiancé had a leakage three days after they did the LAR and they found out because he complained about chills and back pain.... they did a scan without contrast and that's where they found it

All the best with your fiance. BeansMama has had great success with Keytruda. I believe they are the same. She had gone from "not a candidate for surgery" to "surgery in her near future". Larry's getting his eviction notice. Hope it is as successful for your fiance. Lee Thank yo...

Maia wrote:That is so good to know. Eliz, are the doctors planning to have him nivolumab monotherapy, or keep a combination with chemo?

As of now just nivolumab by itself..... Praying that this tratment will work its magic

Steph20021 wrote:Wishing your fiancé all the success with his trial!

Thank you for your wishes

My fiancé started his first treatment with Opdivo yesterday! I provided a copy of all the information I have gathered from here and colontown fb page gave him a copy so that he knows I'm on top of my finance's health and I'm well informed( not an expert but I am trying everyday to become more knowle...

wow now it makes me wonder if this is the reason why Folfiri wasnt effective on my fiance... he was getting the neulasta shot throughout his 8 folfiri treatments

I don't even know how to put this in words. I just found out forum member Delinda2 has left us. She passed away on February 5th. To show you the type of person she is/was, last year she reached out to me when I was not doing well emotionally. We developed a friendship over PMs which turned into ema...

Pita wrote:Sorry, I wish the best for you both and hugs and prayers... oxo

thank you Pita... sending prayers your way too xoxoxo

Dmondgirl, you're too kind. : ) Feel free to PM or keep in touch in the open, if you like. Came back here to say: consider the TIL trial at the NIH. Read all the story of our friend and fellow forum Celine, from getting into the immumotheraphy trial with Dr Rosenberg until becoming an historical fi...

MSK has all my respect, they are wonderful. However, yes --they tend to exhaust first standard of care options. Maybe it's because they have not a lot of slots in trials; over the years, I think I heard of trials being offered only to those patients who are proactive. However, do not second guess y...

immunostains for DNA repair proteins demonstrate preservation of staining for MLH1, MSH2, MSH6 and PMS2 within tumor cell nuclei. Yes! That means he's MSS (and not MSI-high, neither has Lynch syndrome). Being at the MSK, it was very likely they had that in consideration. If you don't mind me being ...

So sorry you two are having such a tough road with this. I'm sorry I can't offer much help, Maia will be a wonderful help to you. She has helped me and given wonderful advice. I will send extra prayers your way. Thank you beansmama :) and even though I don't post a lot I am always reading and prayi...

Thinking of you and your boyfriend. So very sorry this is happening to him and your. So VERY glad Maia is here to help you. Don't give up the hope and we are here. Lee Lee, Thank you and believe me every time I feel so overwhelmed and I look at him and see the desperation to get this cancer out of ...

DarknessEmbraced wrote:I'm so sorry you and your boyfriend are going through this!*hugs* I hope things get better for him!*hugs* I'm sorry he's been through so much!*hugs*

Thank you :/